Patient perceived needs and experiences of person-centered care in patients with inflammatory arthritis

Autor: Kim, van Slingerland, Margot J M, Walter, Heleen A, van der Stege, AnneLoes, van Staa, Philomine A, van Pelt, Pascal H P, de Jong

Publikováno v: Journal of the American Association of Nurse Practitioners, 34(8), 963-967. John Wiley & Sons Ltd.

Background:Health care is shifting toward a person-centered care (PCC) approach. For implementation of PCC, there may be a special role for nurse practitioners (NPs).Purpose:The aim of this study was to explore the patient-perceived levels of and nee

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::c657be1c15d35e2c80630ee2193937b0
https://doi.org/10.1097/jxx.0000000000000746

Patient-reported Joint Count in Juvenile Idiopathic Arthritis: The Reliability of a Manikin Format

Autor: Lisette W A van Suijlekom-Smit, J. Anink, Maryanne Dijkstra, Philomine A van Pelt, Johanna M. W. Hazes

Publikováno v: Journal of Rheumatology, 42(3), 527-533. Journal of Rheumatology

Objective.To evaluate the reliability of a manikin format, patient-reported joint count in juvenile idiopathic arthritis (JIA), and to detect changes in agreement at a second visit.Methods.Patients with JIA aged 12–21 were asked to mark joints with

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::ccf1c550fbdbd47bb24ac91eafa9cd23
https://doi.org/10.3899/jrheum.140073

EULAR / PReS standards and recommendations for the transitional care of young people with juvenile-onset rheumatic diseases

Autor: Kirsten Minden, Simon Stones, Berna Eren Fidanci, Rachel Tattersall, Karin Berggren, Jennifer M Waite-Jones, Ruth Wyllie, Loreto Carmona, Carine Wouters, Helen E. Foster, Janet E. McDonagh, Tamás Constantin, Daniel Clemente, Leticia Leon, Philomine A van Pelt, Sylvia Kamphuis, Susanne Schalm, Seza Ozen, Burak Erer, Alberto Martini, Erkan Dermikaya

Publikováno v: Foster, H, Minden, K, Clemente, D, Leon, L, McDonagh, J E, Kamphuis, S, Berggren, K, van Pelt, P, Wouters, C, Waite-Jones, J, Tattersall, R, Wyllie, R, Stones, S R, Martini, A, Constantin, T, Schalm, S, Fidanci, B, Erer, B, Demirkaya, E, Ozen, S & Carmona, L 2017, ' EULAR / PReS standards and recommendations for the transitional care of young people with juvenile-onset rheumatic diseases ', Annals of the rheumatic diseases . https://doi.org/10.1136/annrheumdis-2016-210112
Annals of the Rheumatic Diseases, 76(4). BMJ Publishing Group

Aims. To develop standards and recommendations for transitional care for young people (YP) with juvenile onset rheumatic and musculoskeletal diseases (jRMD). Methods. The consensus process involved the following: 1) Establishing an international expe

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::09c8b67a6f85346f49d9b0d0a83b55d3
https://doi.org/10.1136/annrheumdis-2016-210112

Disease activity and dropout in young persons with juvenile idiopathic arthritis in transition of care: a longitudinal observational study

Autor: Philomine A, van Pelt, Radboud J E M, Dolhain, Aike A, Kruize, Judy J W, Ammerlaan, Johanna W, Hazes, Johannes W J, Bijlsma, Nico M, Wulffraat

Publikováno v: Clinical and experimental rheumatology. 36(1)

Reaching a certain age, juvenile idiopathic arthritis (JIA) patients in paediatric care are transferred to adult care. An increased disease activity after transfer and increased dropout has been suggested, however, evidence is scarce. Our aim is to d

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=pmid________::04370bab311c9c46a9bcac9d58b50e34
https://pubmed.ncbi.nlm.nih.gov/29461957

Treatment choices of paediatric rheumatologists for juvenile idiopathic arthritis: etanercept or adalimumab?

Autor: Rebecca ten Cate, Simone L Gorter, Wijnand A. A. Swen, Joost F Swart, Janneke Anink, Marion A J van Rossum, Nico M Wulffraat, Lisette W A van Suijlekom-Smit, Koert M. Dolman, Philomine A van Pelt, Danielle M.C. Brinkman, J. Merlijn van den Berg, Marieke H Otten, Sylvia Kamphuis, Wineke Armbrust, Y. Koopman-Keemink, Femke H M Prince, Esther P A H Hoppenreijs

Publikováno v: Rheumatology, 52, 9, pp. 1674-9
Rheumatology, 52(9), 1674-1679
Rheumatology, 52, 1674-9
Rheumatology, 52(9), 1674-1679. Oxford University Press
Rheumatology (Oxford, England), 52(9), 1674-1679. Oxford University Press

Item does not contain fulltext Objectives. To evaluate differences in baseline characteristics between etanercept- and adalimumab-treated JIA patients and to reveal factors that influence the choice between these TNF inhibitors, which are considered

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::021b81569ca5acd0d2b40b5c86f33055
https://doi.org/10.1093/rheumatology/ket170