Validation of the Childhood Health Assessment Questionnaire in the juvenile idiopathic myopathies. Juvenile Dermatomyositis Disease Activity Collaborative Study Group

Autor: Am, Huber, Je, Hicks, Pa, Lachenbruch, Md, Perez, Ls, Zemel, Rm, Rennebohm, Ca, Wallace, Cb, Lindsley, Mh, Passo, Sh, Ballinger, Sl, Bowyer, Am, Reed, Ph, White, Im, Katona, Frederick Miller, Lg, Rider, Bm, Feldman, Juvenile Dermatomyositis Disease Activity Collaborative Study Group

Publikováno v: Europe PubMed Central

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=dedup_wf_001::f472e5e4fd24d69dff1b07eb93762195
http://europepmc.org/abstract/med/11361197

Results of a healthcare transition learning collaborative for emerging adults with sickle cell disease: the ST3P-UP study transition quality improvement collaborative.

Autor: Osunkwo I; Atrium Health Levine Cancer, Charlotte, North Carolina, USA.; Novo Nordisk Rare Disease, Zurich, Switzerland., Cornette JS; Atrium Health Levine Cancer, Charlotte, North Carolina, USA., Noonan L; Center for Advancing Pediatric Excellence, Levine Children's Hospital, Atrium Health, Charlotte, North Carolina, USA., Courtlandt C; Center for Advancing Pediatric Excellence, Levine Children's Hospital, Atrium Health, Charlotte, North Carolina, USA., Mabus S; Center for Advancing Pediatric Excellence, Levine Children's Hospital, Atrium Health, Charlotte, North Carolina, USA., White PH; Got Transition, The National Alliance to Advance Adolescent Health, Washington, DC, USA., McManus M; Got Transition, The National Alliance to Advance Adolescent Health, Washington, DC, USA., Robinson MM; Department of Biostatistics and Data Sciences, Atrium Health Levine Cancer, Charlotte, North Carolina, USA., Wallander ML; Atrium Health Levine Cancer, Charlotte, North Carolina, USA., Eckman JR; Emory University, Atlanta, Georgia, USA., Saah E; Children's Healthcare of Atlanta, Atlanta, Georgia, USA., Alvarez OA; Pediatric Hematology, University of Miami School of Medicine, Miami, Florida, USA., Goodwin M; Sickle Cell Thalassemia Patients Network, New York, New York, USA., Jerome Clay L; Johns Hopkins All Children's Hospital, St Petersburg, Florida, USA., Desai P; Atrium Health Levine Cancer, Wake Forest School of Medicine, Charlotte, North Carolina, USA., Lawrence RH; Jiann Ping Hsu College of Public Health, Georgia Southern University, Statesboro, Georgia, USA rlawrence@georgiasouthern.edu.

Publikováno v: BMJ quality & safety [BMJ Qual Saf] 2024 Nov 21. Date of Electronic Publication: 2024 Nov 21.

Perceived changes in trait attributions to others and the self.

Autor: Sanbonmatsu DM; University of Utah., Adams T; University of Utah., White PH; University of Utah.

Publikováno v: The Journal of social psychology [J Soc Psychol] 2024 Sep 02; Vol. 164 (5), pp. 588-606. Date of Electronic Publication: 2022 Nov 16.

Implementation of Rheumatology Health Care Transition Processes and Adaptations to Systems Under Stress: A Mixed-Methods Study.

Autor: Chang JC; Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, and Boston Children's Hospital, Boston, Massachusetts., Sears C; Children's Hospital of Philadelphia, Philadelphia, Pennsylvania., Bitencourt N; Loma Linda University Medical Center, Loma Linda, California., Peterson R; Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, and Dell Children's Medical Center, Austin, Texas., Alperin R; NYU Langone Health, New York, New York., Goh YI; The Hospital for Sick Children, Toronto, Ontario, Canada, and SickKids Research Institute, Toronto, Ontario, Canada., Overbury RS; University of Utah, Salt Lake City., Sadun R; Duke University Medical Center, Durham, North Carolina., Smitherman E; University of Alabama and Children's of Alabama, Birmingham., White PH; Got Transition, The National Alliance to Advance Adolescent Health, and School of Medicine and Health Sciences, George Washington University, Washington, DC., Lawson EF; University of California, San Francisco., Carandang K; Child and Adolescent Services Research Center, San Diego, California.

Publikováno v: Arthritis care & research [Arthritis Care Res (Hoboken)] 2023 Mar; Vol. 75 (3), pp. 689-696. Date of Electronic Publication: 2022 Nov 11.

Pediatric to Adult Transition Literature: Scoping Review and Rheumatology Research Prioritization Survey Results.

Autor: Bitencourt N; N. Bitencourt, MD, Department of Pediatrics, Loma Linda University Medical Center, Loma Linda, California, USA; Nicole_Bitencourt@yahoo.com., Lawson E; E. Lawson, MD, Department of Pediatrics, University of California San Francisco Medical Center, San Francisco, California, USA., Bridges J; J. Bridges, MD, MS, Division of Pediatric Rheumatology/Division of Clinical Immunology and Rheumatology, University of Alabama at Birmingham, Birmingham, Alabama, USA., Carandang K; K. Carandang, PhD, OTR/L, Patients' Autoimmune Research & Empowerment Alliance, University of Wisconsin-River Falls, River Falls, Wisconsin, USA., Chintagunta E; E. Chintagunta, Patient Partner, Childhood Arthritis Rheumatology Research Alliance, Washington, DC, USA., Chiraseveenuprapund P; P. Chiraseveenuprapund, MD, Department of Pediatrics, Division of Allergy, Immunology, Rheumatology, and Kawasaki Disease, University of California, San Diego, San Diego, California, USA., DeQuattro K; K. DeQuattro, MD, MM, Department of Medicine, Division of Rheumatology, University of Pennsylvania Health Systems, Philadelphia, Pennsylvania, USA., Goh YI; Y.I. Goh, PhD, Division of Rheumatology, The Hospital for Sick Children; Child Health Evaluative Services, SickKids Research Institute, Toronto, Ontario, Canada., Lee TC; T.C. Lee, MD, Pediatric Rheumatology, Stanford University School of Medicine, Stanford, California, USA., Moore KF; K.F. Moore, MD, Section of Pediatric Rheumatology, Children's Hospital Colorado, University of Colorado School of Medicine, Aurora, Colorado, USA., Peterson RG; R.G. Peterson, MD, MSCE, Department of Pediatrics, Division of Pediatric Rheumatology, Dell Medical School at UT Austin, Austin, Texas, USA., Roberts JE; J.E. Roberts, MD, J.C. Chang, MD, MSCE, Division of Immunology, Department of Pediatrics, Harvard Medical School, Boston Children's Hospital, Boston, Massachusetts, USA., Ronis T; T. Ronis, MDCM, Pediatric Rheumatology, Children's National Hospital, Department of Pediatrics, George Washington University, Washington DC, USA., Sadun RE; R.E. Sadun, MD, PhD, Department of Pediatric and Department of Medicine, Duke University Medical Center, Durham, North Carolina, USA., Smitherman EA; E.A. Smitherman, MD, MS, Department of Pediatrics, Division of Pediatric Rheumatology, University of Alabama at Birmingham, Birmingham, Alabama, USA., Stringer E; E. Stringer, MD, MSc, FRCPC, Associate Professor of Pediatrics, IWK Health, Dalhousie University, Halifax, Nova Scotia, Canada., White PH; P.H. White, MD, MA, Got Transition National Center, National Alliance to Advance Adolescent Health, Division of Rheumatology, George Washington University School of Medicine and Health Sciences, Washington, DC, USA., Chang JC; J.E. Roberts, MD, J.C. Chang, MD, MSCE, Division of Immunology, Department of Pediatrics, Harvard Medical School, Boston Children's Hospital, Boston, Massachusetts, USA.

Publikováno v: The Journal of rheumatology [J Rheumatol] 2022 Nov; Vol. 49 (11), pp. 1201-1213. Date of Electronic Publication: 2022 Aug 01.