Zobrazeno 1 - 4
of 4
pro vyhledávání: '"Petra J. Mauritz"'
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 17, Iss 1, Pp 1-9 (2022)
Abstract Background Epidermolysis bullosa is a rare, often severe, genetic disorder characterized by fragility of the skin and mucous membranes. Despite the important role of parents during wound care, an essential factor in adapting to this disease,
Externí odkaz:
https://doaj.org/article/c4a05db33c8d43b5a563cfafc49d9048
The relationship between quality of life and coping strategies of children with EB and their parents
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-9 (2021)
Abstract Background Epidermolysis bullosa (EB) is a group of rare genetic skin disorders that primarily manifest as blisters and erosions following mild mechanical trauma. Despite the crucial role of the parents of children with EB in managing the di
Externí odkaz:
https://doaj.org/article/d23175e5999c49f59720646b4334e69d
Autor:
Florencia Pérez, K. Martin, B. Kennedy, Petra J. Mauritz, Kristina Soon, J. K. Asche, G. Jaega, F. Browne, K. M. Mayre-Chilton, Rebecca Cross Bodán, S. Geuens, N. García García, V. Zmazek, A. Downe
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 14, Iss 1, Pp 1-21 (2019)
Orphanet Journal of Rare Diseases
Orphanet Journal of Rare Diseases
Epidermolysis Bullosa (EB) is a group of rare genetic disorders resulting in skin fragility and other symptoms. Commissioned by DEBRA International and funded by DEBRA Norway, this evidence-bases guideline provides recommendations to optimise psychos
Autor:
Mariët Hagedoorn, José C. Duipmans, Petra J. Mauritz, Catrin Finkenauer, Sanne Visser, Marcel F. Jonkman
Publikováno v:
Acta Dermato-Venereologica, Vol 99, Iss 9, Pp 783-788 (2019)
Acta Dermato-Venereologica, 99(9), 783-788. ACTA DERMATO-VENEREOLOGICA
Acta Dermato-Venereologica, 99(9), 783-788. ACTA DERMATO-VENEREOLOGICA
Epidermolysis bullosa (EB) is a group of rare inherited bullous skin disorders that differ in nature and severity. Currently, there is no cure for the disease. One of the complex problems of EB is the repetitive and painful care of skin wounds. The p