Digital measures of respiratory and upper limb function in spinal muscular atrophy: design, feasibility, reliability, and preliminary validity of a smartphone sensor-based assessment suite

Autor: Perumal, Thanneer Malai, Wolf, Detlef, Berchtold, Doris, Pointeau, Grégoire, Zhang, Yan-Ping, Cheng, Wei-Yi, Lipsmeier, Florian, Sprengel, Jörg, Czech, Christian, Chiriboga, Claudia A., Lindemann, Michael

Publikováno v: In Neuromuscular Disorders November 2023 33(11):845-855

Reverse Engineering of Digital Measures: Inviting Patients to the Conversation

Autor: Mueller, Arne, Nam, Julian, Ng, Wan Fai, Nobbs, David, Orfaniotou, Foteini, Perumal, Thanneer Malai, Piwko, Wojciech, Ries, Anja, Scotland, Alf, Taptiklis, Nick, Torous, John, Vereijken, Beatrix, Xu, Shuai, Baltzer, Laurenz, Vetter, Thorsten, Goldhahn, Jörg, Hoffmann, Steven C, clay, ieuan, Clay, Ieuan, Peerenboom, Nele, Connors, Dana E., Bourke, Steven, Keogh, Alison, Wac, Katarzyna, Gur-Arie, Tova, Baker, Justin, Bull, Christopher, Cereatti, Andrea, Cormack, Francesca, Eggenspieler, Damien, Foschini, Luca, Ganea, Raluca, Groenen, Peter M. A., Gusset, Nicole, Izmailova, Elena, Kanzler, Christoph M., Leyens, Lada, Lyden, Kate

Publikováno v: Digital Biomarkers, 7 (1)

Background: Digital measures offer an unparalleled opportunity to create a more holistic picture of how people who are patients behave in their real-world environments, thereby establishing a better connection between patients, caregivers, and the cl

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::577906758b4d217a35d4d00c3fcfd4aa

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Reverse Engineering of Digital Measures: Inviting Patients to the Conversation.

Autor: Clay I; VivoSense Inc., Newport Beach, CA, USA., Peerenboom N; VivoSense Inc., Newport Beach, CA, USA., Connors DE; The Foundation for the NIH, North Bethesda, MD, USA., Bourke S; PersonalPulse GmbH, Basel, Switzerland., Keogh A; Insight Centre for Data Analytics, UC Dublin, Dublin, Ireland.; Mobilise-D, Newcastle University, Newcastle upon Tyne, UK., Wac K; Quality of Life Lab, University of Geneva, Geneva, Switzerland., Gur-Arie T; Mobilise-D, Newcastle University, Newcastle upon Tyne, UK., Baker J; Harvard Medical School, Cambridge, MA, USA., Bull C; Newcastle University, Newcastle, UK.; IDEA-FAST, Newcastle University, Newcastle upon Tyne, UK., Cereatti A; Mobilise-D, Newcastle University, Newcastle upon Tyne, UK.; Polytechnic University of Torino, Torino, Italy., Cormack F; IDEA-FAST, Newcastle University, Newcastle upon Tyne, UK.; Cambridge Cognition Ltd, Cambridge, UK., Eggenspieler D; Sysnav Healthcare, Vernon, France., Foschini L; Sage Bionetworks, Seattle, WA, USA., Ganea R; SHL Medical, Zug, Switzerland., Groenen PMA; Idorsia Pharmaceuticals Ltd., Allschwil, Switzerland., Gusset N; SMA Schweiz, Heimberg, Switzerland., Izmailova E; Koneksa Health, New York, NY, USA., Kanzler CM; Biogen Digital Health International GmbH, Baar, Switzerland., Leyens L; F. Hoffmann-La Roche, Basel, Switzerland., Lyden K; VivoSense Inc., Newport Beach, CA, USA., Mueller A; Mobilise-D, Newcastle University, Newcastle upon Tyne, UK.; Novartis, Basel, Switzerland., Nam J; F. Hoffmann-La Roche, Basel, Switzerland., Ng WF; Newcastle University, Newcastle, UK.; IDEA-FAST, Newcastle University, Newcastle upon Tyne, UK., Nobbs D; IDEA-FAST, Newcastle University, Newcastle upon Tyne, UK.; F. Hoffmann-La Roche, Basel, Switzerland., Orfaniotou F; F. Hoffmann-La Roche, Basel, Switzerland., Perumal TM; F. Hoffmann-La Roche, Basel, Switzerland., Piwko W; Takeda Pharmaceuticals International, Zurich, Switzerland., Ries A; F. Hoffmann-La Roche, Basel, Switzerland., Scotland A; Biogen Digital Health International GmbH, Baar, Switzerland., Taptiklis N; IDEA-FAST, Newcastle University, Newcastle upon Tyne, UK.; Cambridge Cognition Ltd, Cambridge, UK., Torous J; Harvard Medical School, Cambridge, MA, USA., Vereijken B; Mobilise-D, Newcastle University, Newcastle upon Tyne, UK.; Norwegian University of Science and Technology, Trondheim, Norway., Xu S; Sibel Health, Niles, IL, USA., Baltzer L; Swiss Federal Institute of Technology, Zurich, Switzerland., Vetter T; European Medicines Agency, Amsterdam, The Netherlands., Goldhahn J; Swiss Federal Institute of Technology, Zurich, Switzerland., Hoffmann SC; The Foundation for the NIH, North Bethesda, MD, USA.

Publikováno v: Digital biomarkers [Digit Biomark] 2023 May 12; Vol. 7 (1), pp. 28-44. Date of Electronic Publication: 2023 May 12 (Print Publication: 2023).