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Autor:
Julia Mugnaini, Jonathan D. Cooper, Favio Pesaola, Frances M. Platt, Heather R. Adams, Romina Kohan, Perla K. de Hidalgo, Rachel Brown, Ana María Oller de Ramirez, Inés Adriana Cismondi, Inés Noher de Halac, Gisela Evelín Rautenberg, Michael Bond, Sophia-Martha Kleine Holthaus, Sara E. Mole
Publikováno v:
Biochimica et Biophysica Acta (BBA) - Molecular Basis of Disease. 1852(10):2316-2323
This article addresses the educational issues associated with rare diseases (RD) and in particular the Neuronal Ceroid Lipofuscinoses (NCLs, or CLN diseases) in the curricula of Health Sciences and Professional's Training Programs. Our aim is to deve