Zobrazeno 1 - 3
of 3
pro vyhledávání: '"People living with rare disorders"'
Autor:
Birute Tumiene, Harm Peters, Bela Melegh, Borut Peterlin, Algirdas Utkus, Natalja Fatkulina, György Pfliegler, Holm Graessner, Sanja Hermanns, Maurizio Scarpa, Jean-Yves Blay, Sharon Ashton, Lucy McKay, Gareth Baynam
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 17, Iss 1, Pp 1-20 (2022)
Abstract People living with rare diseases (PLWRD) still face huge unmet needs, in part due to the fact that care systems are not sufficiently aligned with their needs and healthcare workforce (HWF) along their care pathways lacks competencies to effi
Externí odkaz:
https://doaj.org/article/6407632929da40bb8a36b39315418770
Akademický článek
Tento výsledek nelze pro nepřihlášené uživatele zobrazit.
K zobrazení výsledku je třeba se přihlásit.
K zobrazení výsledku je třeba se přihlásit.
Autor:
Birute Tumiene, Harm Peters, Bela Melegh, Borut Peterlin, Algirdas Utkus, Natalja Fatkulina, György Pfliegler, Holm Graessner, Sanja Hermanns, Maurizio Scarpa, Jean-Yves Blay, Sharon Ashton, Lucy McKay, Gareth Baynam
Publikováno v:
Orphanet journal of rare diseases, London : BMC, 2022, vol. 17, art. no. 441, p. [1-20]
People living with rare diseases (PLWRD) still face huge unmet needs, in part due to the fact that care systems are not sufficiently aligned with their needs and healthcare workforce (HWF) along their care pathways lacks competencies to efficiently t
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::17ce5be43f66f2cbda0d5dc6bdf82ac0