What are the main symptoms and concerns reported by patients with advanced chronic heart failure?-a secondary analysis of the Palliative care Outcome Scale (POS) and Integrated Palliative care Outcome Scale (IPOS)

Autor: Ping Guo, Fliss E M Murtagh, Lesley Dunleavy, Anna Oriani, Pauline M. Kane, Amy Gadoud

Publikováno v: Annals of palliative medicine. 8(5)

There is a lack of valid disease-specific patient-reported outcome measures (PROMs) for detecting symptoms and concerns in patients with advanced chronic heart failure (CHF). The Palliative care Outcome Scale (POS) and Integrated Palliative care Outc

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::1ea02a1e9cdee341699b24f2c70ec835
https://pubmed.ncbi.nlm.nih.gov/31594366

Understanding how a palliative-specific patient-reported outcome intervention works to facilitate patient-centred care in advanced heart failure: A qualitative study

Autor: C Howley, Karen Ryan, Pauline M. Kane, Brendan McAdam, Jonathan Koffman, Barbara A Daveson, Regina McQuillan, BuildCARE, C Tracey, Geraldine O’Gara, Niall G Mahon, Clare Ellis-Smith, Caroline Raleigh, Irene J Higginson, Fliss E M Murtagh

Publikováno v: Kane, P M, Ellis-Smith, C I, Daveson, B A, Ryan, K, Mahon, N G, McAdam, B, McQuillan, R, Tracey, C, Howley, C, O'Gara, G, Raleigh, C, Higginson, I J, Murtagh, F E, Koffman, J 2018, ' Understanding how a palliative-specific patient-reported outcome intervention works to facilitate patient-centred care in advanced heart failure : A qualitative study ', Palliative Medicine, vol. 32, no. 1, pp. 143-155 . https://doi.org/10.1177/0269216317738161

Background: Palliative care needs of patients with chronic heart failure are poorly recognised. Policy makers advise a patient-centred approach to holistically assess patients’ needs and care goals. Patient-reported outcome measures are proposed to

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::44813d8e1d72018584816e3689a360cd
https://pubmed.ncbi.nlm.nih.gov/29154724

Measures to assess commonly experienced symptoms for people with dementia in long-term care settings:A systematic review

Autor: Clare, Ellis-Smith, Catherine J, Evans, Anna E, Bone, Lesley A, Henson, Mendwas, Dzingina, Pauline M, Kane, Irene J, Higginson, Barbara A, Daveson, Gao, Wei

Publikováno v: Ellis-Smith, C, Evans, C J, Bone, A E, Henson, L A, Dzingina, M, Kane, P M & Higginson, I J & Daveson, B A 2016, ' Measures to assess commonly experienced symptoms for people with dementia in long-term care settings : A systematic review ', BMC Medicine, vol. 14, 38 . https://doi.org/10.1186/s12916-016-0582-x
BMC Medicine
Ellis-Smith, C, Evans, C J, Bone, A E, Henson, L A, Dzingina, M, Kane, P M & Higginson, I J & Daveson, B A 2016, ' Measures to assess commonly experienced symptoms for people with dementia in long-term care settings : a systematic review ', BMC Medicine, vol. 14, 38 . https://doi.org/10.1186/s12916-016-0582-x

Background High symptom burden is common in long-term care residents with dementia and results in distress and behavioral challenges if undetected. Physicians may have limited time to regularly examine all residents, particularly those unable to self

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::41d648246cf1eb390cc839e2fe8bb513
https://kclpure.kcl.ac.uk/en/publications/25b0daf4-98a0-4a31-a705-b3b9fb5c2abe

Clinical and prognostic associations of liver volume determined using computed tomography in patients with cirrhosis

Autor: John Karani, Pauline M. Kane, N D Heaton, S.-L. Kelly, Sarah Brown, P. Peddu, W Bernal, Tiong Yeng Lim

Publikováno v: Journal of Hepatology. 66:S676

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::76870dfae477e245a0ee9107d0a37a08
https://doi.org/10.1016/s0168-8278(17)31822-6

Liver transplantation for neonatal haemochromatosis

Autor: C. Ball, M. Rela, Pauline M. Kane, A Baker, N D Heaton, A. P. Mowat, Roger Williams, Paolo Muiesan, A. Dawan

Publikováno v: Scopus-Elsevier
Università degli studi di Firenze-IRIS

Two cases of neonatal haemochromatosis, a rare and often fatal metabolic disorder, presenting with acute liver failure, are reported. Both presented in the first week of life with hypoglycaemia, jaundice, and coagulopathy, with rapid deterioration of

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::f40fdab530a8533b3f79fb3b3bd29328
http://hdl.handle.net/2158/1200025