Zobrazeno 1 - 10
of 17
pro vyhledávání: '"Patricia Furlong"'
Publikováno v:
Research Involvement and Engagement, Vol 10, Iss 1, Pp 1-11 (2024)
Abstract Background Engaging individuals living with disease in drug development and regulatory processes leads to more thoughtful and sensitive trial designs, drives more informative and meaningful outcomes from clinical studies, and builds trust be
Externí odkaz:
https://doaj.org/article/15b21f5fbf914c78a217489a730162f0
Autor:
Rachel D. Torok, Jennifer S. Li, Prince J. Kannankeril, Andrew M. Atz, Raafat Bishai, Ellen Bolotin, Stefanie Breitenstein, Cathy Chen, Thomas Diacovo, Timothy Feltes, Patricia Furlong, Michael Hanna, Eric M. Graham, Daphne Hsu, D. Dunbar Ivy, Dianne Murphy, Lisa A. Kammerman, Gregory Kearns, John Lawrence, Brigitte Lebeaut, Danshi Li, Christoph Male, Brian McCrindle, Pierre Mugnier, Jane W. Newburger, Gail D. Pearson, Vasum Peiris, Lisa Percival, Miriam Pina, Ronald Portman, Robert Shaddy, Norman L. Stockbridge, Robert Temple, Kevin D. Hill
Publikováno v:
Journal of the American Heart Association: Cardiovascular and Cerebrovascular Disease, Vol 7, Iss 4 (2018)
Externí odkaz:
https://doaj.org/article/358997288c0745aea8f714749db9b506
Publikováno v:
The patient. 15(5)
Caregivers routinely inform medical and regulatory decision making in rare pediatric diseases. While differences in treatment preferences across caregivers and patients have been observed for Duchenne muscular dystrophy, this evidence was limited by
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::db7f48e7b665a698f8888a02697e4051
https://pubmed.ncbi.nlm.nih.gov/35243571
https://pubmed.ncbi.nlm.nih.gov/35243571
Publikováno v:
Am J Bioeth
After witnessing extraordinary scientific and regulatory efforts to speed development of and access to new COVID-19 interventions, patients facing other serious diseases have begun to ask "where's our Operation Warp Speed?" and "why isn't Emergency U
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::c0ddbb259eec9a80250a8832725b072e
https://pubmed.ncbi.nlm.nih.gov/34806973
https://pubmed.ncbi.nlm.nih.gov/34806973
Autor:
Anne L R, Schuster, Norah L, Crossnohere, Ryan, Fischer, Patricia, Furlong, John F P, Bridges
Publikováno v:
Therapeutic innovationregulatory science. 56(4)
Duchenne muscular dystrophy has been a launching pad for patient-focused drug development (PFDD). Yet, PFDD efforts have largely neglected non-ambulatory patients. To support PFDD efforts in this population, we primarily sought to understand the need
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=pmid________::10984805fdbc3574dd5b8ffbd5c3d93d
https://pubmed.ncbi.nlm.nih.gov/35325439
https://pubmed.ncbi.nlm.nih.gov/35325439
Autor:
Timothy Coetzee, Mad Price Ball, Marc Boutin, Abby Bronson, David T Dexter, Rebecca A English, Patricia Furlong, Andrew D Goodman, Cynthia Grossman, Adrian F Hernandez, Jennifer E Hinners, Lynn Hudson, Annie Kennedy, Mary Jane Marchisotto, Lynn Matrisian, Elizabeth Myers, W Benjamin Nowell, Brian A Nosek, Todd Sherer, Carolyn Shore, Ida Sim, Luba Smolensky, Christopher Williams, Julie Wood, Sharon F Terry
UNSTRUCTURED REMOVE
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::0a096c9feaca0dd16a0eba29f67598b6
https://doi.org/10.2196/preprints.31371
https://doi.org/10.2196/preprints.31371
Autor:
Abby Bronson, Adrian F. Hernandez, Brian A. Nosek, Julie Wood, Mary Jane Marchisotto, Luba Smolensky, David T. Dexter, Ida Sim, Jennifer E Hinners, Patricia Furlong, Mad Price Ball, Lynn D. Hudson, Lynn M. Matrisian, Carolyn Shore, Andrew D. Goodman, Annie Kennedy, Timothy Coetzee, Marc Boutin, Christopher Williams, W Benjamin Nowell, Todd Sherer, Cynthia Grossman, Sharon F. Terry, Elizabeth R. Myers, Rebecca English
Publikováno v:
Journal of Participatory Medicine
Journal of Participatory Medicine, vol 13, iss 2
Journal of participatory medicine, vol 13, iss 2
Journal of Participatory Medicine, vol 13, iss 2
Journal of participatory medicine, vol 13, iss 2
Sharing clinical trial data can provide value to research participants and communities by accelerating the development of new knowledge and therapies as investigators merge data sets to conduct new analyses, reproduce published findings to raise stan
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::7b43569e715977e9247e5652d5252e50
http://europepmc.org/articles/PMC8280826
http://europepmc.org/articles/PMC8280826
Autor:
Timothy Coetzee, Mad Price Ball, Marc Boutin, Abby Bronson, David T Dexter, Rebecca A English, Patricia Furlong, Andrew D Goodman, Cynthia Grossman, Adrian F Hernandez, Jennifer E Hinners, Lynn Hudson, Annie Kennedy, Mary Jane Marchisotto, Elizabeth Myers, W Benjamin Nowell, Brian A Nosek, Todd Sherer, Carolyn Shore, Ida Sim, Luba Smolensky, Christopher Williams, Julie Wood, Sharon F Terry, Lynn Matrisian
UNSTRUCTURED Sharing clinical trial data can provide value to research participants and communities by accelerating the development of new knowledge and therapies as investigators merge data sets to conduct new analyses, reproduce published findings
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::f1ff20fc20f3b354bdb7347075b90a83
https://doi.org/10.2196/preprints.23011
https://doi.org/10.2196/preprints.23011
Autor:
Vincenzo Garzya, Helena Binder, Helena Chung, Guy Yeoman, Michael Seres, Patricia Furlong, Rachel Rm Jones
Publikováno v:
BMJ Innovations
Background Patient engagement is an essential aspect in the research/development of biopharmaceutical products and disease management. Improving the lives of patients requires a deep understanding of their medical conditions, experiences, needs and p
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::7112f3a1ed6911be6173c2f9f19761a4
https://doi.org/10.1136/bmjinnov-2016-000157
https://doi.org/10.1136/bmjinnov-2016-000157
Autor:
David T. Dexter, Jennifer E Hinners, Lynn M. Matrisian, Lynn D. Hudson, Julie Wood, Andrew D. Goodman, Elizabeth R. Myers, Rebecca English, Abby Bronson, Mary Jane Marchisotto, Luba Smolensky, Annie Kennedy, Ida Sim, Patricia Furlong, Adrian F. Hernandez, Cynthia Grossman, Todd Sherer, Brian A. Nosek, Carolyn Shore, Marc Boutin, Timothy Coetzee, Christopher Williams, Sharon F. Terry, W Benjamin Nowell, Mad Price Ball
Publikováno v:
Journal of Participatory Medicine
Sharing clinical trial data can provide value to research participants and communities by accelerating the development of new knowledge and therapies as investigators merge data sets to conduct new analyses, reproduce published findings to raise stan
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::2c305a60e29595e1d082deae9ab7a2e4
https://doi.org/10.2196/23011
https://doi.org/10.2196/23011