Zobrazeno 1 - 10
of 416
pro vyhledávání: '"Patient reported outcome measurement"'
Autor:
Priya S. Kishnani, Barry J. Byrne, Kristl G. Claeys, Jordi Díaz-Manera, Mazen M. Dimachkie, Hani Kushlaf, Tahseen Mozaffar, Mark Roberts, Benedikt Schoser, Noemi Hummel, Agnieszka Kopiec, Fred Holdbrook, Simon Shohet, Antonio Toscano, on behalf of the PROPEL Study Group
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 8, Iss 1, Pp 1-9 (2024)
Abstract Background Late-onset Pompe disease (LOPD), a rare autosomal recessive multisystemic disorder, substantially impacts patients’ day-to-day activities, outcomes, and health-related quality of life (HRQoL). The PROPEL trial compared cipagluco
Externí odkaz:
https://doaj.org/article/6c94129535e0439fa3e890c6a89ede54
Autor:
Josephine J. Koldenhof, Bernice O. Akpobome, Danielle Zweers, Stance Klaasse, Saskia C. C. M. Teunissen, Petronella O. Witteveen, Karijn P. M. Suijkerbuijk, Alexander de Graeff, Frederieke H. van der Baan
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 8, Iss 1, Pp 1-8 (2024)
Abstract Introduction The Utrecht Symptom Diary (USD) is a validated Dutch patient-reported outcome measurement (PROM) tool - based on the Edmonton Symptom Assessment System - to assess and monitor symptoms in cancer patients. The USD contains 11 ite
Externí odkaz:
https://doaj.org/article/ed426d8ccce442a5abfc3e6493f545b6
Autor:
Alex Woods, Anthony Howard, Nicholas Peckham, Ines Rombach, Asma Saleh, Juul Achten, Duncan Appelbe, Praveen Thamattore, Stephen E. Gwilym
Publikováno v:
Bone & Joint Open, Vol 5, Iss 7, Pp 534-542 (2024)
Aims: The primary aim of this study was to assess the feasibility of recruiting and retaining patients to a patient-blinded randomized controlled trial comparing corticosteroid injection (CSI) to autologous protein solution (APS) injection for the tr
Externí odkaz:
https://doaj.org/article/76252c03e83c4e7ea5fe1a501fda5049
Publikováno v:
PEC Innovation, Vol 4, Iss , Pp 100264- (2024)
Objective: Prospective cohort study to test the real-life feasibility of longitudinal patient-reported outcome measurement PROM (Integrated Palliative Outcome Scale IPOS, and NCCN Distress Thermometer DT) required for outpatients with non-curable lun
Externí odkaz:
https://doaj.org/article/0d21a440939644609169cb3470131ed4
Autor:
Kai Lin, Mi Yao, Xinxin Ji, Rouyan Li, Lesley Andrew, Jacques Oosthuizen, Moira Sim, Yongsong Chen
Publikováno v:
BMC Primary Care, Vol 25, Iss 1, Pp 1-14 (2024)
Abstract Background Measuring treatment burden is important for the effective management of Type 2 Diabetes Mellitus (T2DM) care. The purpose of this systematic review was to identify the most robust approach for measuring treatment burden in people
Externí odkaz:
https://doaj.org/article/8c922aae5eae4458a420ac01edc9a311
Autor:
Madeleine Fink, Sandy M?ller, Eva Warnecke, J?rg Hense, Martin Schuler, Martin Teufel, Maria Rosa Salvador Comino, Mitra Tewes
Publikováno v:
Palliative Medicine Reports, Vol 5, Iss 1, Pp 194-200 (2024)
Background: The overall level of physical and psychological symptom burden of advanced cancer patients (ACP) in an outpatient setting is notoriously difficult to assess. Therefore, more efficient and objective assessment is needed to accomplish this
Externí odkaz:
https://doaj.org/article/e241abd5bc884568b721a7dc60f88a85
Publikováno v:
Heliyon, Vol 10, Iss 18, Pp e37435- (2024)
Background: The neurogenic bladder symptom score (NBSS) has been widely used to specifically measure symptoms and consequences of neurogenic bladder (NB). The cognitive interviewing (CI) is effective in assessing item clarity and identifying key issu
Externí odkaz:
https://doaj.org/article/6652a87a811f41fca745583e34df69ce
Publikováno v:
Zhongguo linchuang yanjiu, Vol 37, Iss 8, Pp 1274-1277,1283 (2024)
Objective To summarize the research trends and hotspots of patient reported outcome measurement information system (PROMIS). Methods China National Knowledge Infrastructure (CNKI) and PubMed databases were systematically searched, Bicomb 2.0 software
Externí odkaz:
https://doaj.org/article/7de06e785ded4dacb0e211feb2594363
Autor:
Priya S. Kishnani, Simon Shohet, Syed Raza, Noemi Hummel, Jeffrey P. Castelli, Sheela Sitaraman Das, Heng Jiang, Agnieszka Kopiec, Ian Keyzor, Andreas Hahn
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 8, Iss 1, Pp 1-12 (2024)
Abstract Background The construct validity and interpretation of the Patient-Reported Outcome Measurement Information System (PROMIS®) Physical Function short form 20a (PF20a) questionnaire were evaluated for patients with late-onset Pompe disease (
Externí odkaz:
https://doaj.org/article/2bea6ae7ace94f38add7a9b92b63452c
Autor:
Dana M. Chase, MD, Lelan D. McCann, MD, Alice Treuth, BA, Haiyan Cui, PhD, Pawel Laniewski, PhD, Nicole R. Jimenez, PhD, Nicole D. Mahnert, MD, Denise J. Roe, DrPH, Melissa M. Herbst-Kralovetz, PhD
Publikováno v:
AJOG Global Reports, Vol 3, Iss 4, Pp 100275- (2023)
BACKGROUND: Patients presenting for gynecologic surgery are a heterogeneous group. Preoperative quality of life may be a useful tool to guide postoperative management. OBJECTIVE: This study aimed to examine the key drivers of preoperative quality of
Externí odkaz:
https://doaj.org/article/3396a7fa5ab64e38b6b503ced638b3ba