Zobrazeno 1 - 10
of 1 011
pro vyhledávání: '"Patient journey"'
Publikováno v:
Journal of Integrated Care, 2024, Vol. 32, Issue 5, pp. 37-58.
Externí odkaz:
http://www.emeraldinsight.com/doi/10.1108/JICA-08-2023-0060
Autor:
Gema Ariceta, Simón Lalanza, Catalina Peña, Marta Martínez Montero, Carlos Bezos Daleske, Laura Acuña Álvarez, Elisa Giner
Publikováno v:
Drugs in Context, Vol 13, Pp 1-10 (2024)
Background: Few studies have assessed patient-reported experience measures in nephropathic cystinosis. This study uses patient reports focused on the impact of cystinosis, cysteamine treatment-associated problems, and therapeutic adherence and sugges
Externí odkaz:
https://doaj.org/article/a2dbcecc1e9d43b6a07daf3870e640b8
Autor:
Pedro Granjo, Carlota Pascoal, Diana Gallego, Rita Francisco, Jaak Jaeken, Tristen Moors, Andrew C. Edmondson, Kristin A. Kantautas, Mercedes Serrano, Paula A. Videira, Vanessa dos Reis Ferreira
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 19, Iss 1, Pp 1-17 (2024)
Abstract Background Congenital disorders of glycosylation (CDG) are a group of rare metabolic diseases with heterogeneous presentations, leading to substantial diagnostic challenges, which are poorly understood. Therefore, this study aims to elucidat
Externí odkaz:
https://doaj.org/article/3cdd2f60fd6f4e29b8ff4316b5846dbb
Autor:
Christiana Dinah, Andrew Chang, Junyeop Lee, William W. Li, Rishi Singh, Lihteh Wu, David Wong, Insaf Saffar
Publikováno v:
Ophthalmology and Therapy, Vol 13, Iss 12, Pp 3025-3034 (2024)
Externí odkaz:
https://doaj.org/article/3a67f29c1d7a440481a082d659e4fcbf
Publikováno v:
Open Access Journal of Sports Medicine, Vol Volume 15, Pp 141-158 (2024)
Dominik Herzog,1 Werner Vach,2,3 Thomas Schwamborn,2 Franziska Saxer1,3,4 1Faculty of Medicine, University of Basel, Basel, Switzerland; 2Crossklinik Basel, Basel, Switzerland; 3Basel Academy for Quality and Research in Medicine, Basel, Switzerland;
Externí odkaz:
https://doaj.org/article/9f34fee795624569b39ecd30da5ef740
Publikováno v:
Current Oncology, Vol 31, Iss 10, Pp 5873-5888 (2024)
(1) Background: While there is extensive documentation on the medical experience of breast cancer, a thorough understanding of the various stages of endocrine therapy remains insufficient. The aim of this study was to map the experiences and coping s
Externí odkaz:
https://doaj.org/article/062d4a42ad9c42948fef7555201297b2
Autor:
Hong-Jie Dai, Chien-Chang Chen, Tatheer Hussain Mir, Ting-Yu Wang, Chen-Kai Wang, Ya-Chen Chang, Shu-Jung Yu, Yi-Wen Shen, Cheng-Jiun Huang, Chia-Hsuan Tsai, Ching-Yun Wang, Hsiao-Jou Chen, Pei-Shan Weng, You-Xiang Lin, Sheng-Wei Chen, Ming-Ju Tsai, Shian-Fei Juang, Su-Ying Wu, Wen-Tsung Tsai, Ming-Yii Huang, Chih-Jen Huang, Chih-Jen Yang, Ping-Zun Liu, Chiao-Wen Huang, Chi-Yen Huang, William Yu Chung Wang, Inn-Wen Chong, Yi-Hsin Yang
Publikováno v:
Computational and Structural Biotechnology Journal, Vol 24, Iss , Pp 322-333 (2024)
Data curation for a hospital-based cancer registry heavily relies on the labor-intensive manual abstraction process by cancer registrars to identify cancer-related information from free-text electronic health records. To streamline this process, a na
Externí odkaz:
https://doaj.org/article/b655b90ca42f4ec79453b90abf9ffd50
Publikováno v:
Scientific Reports, Vol 14, Iss 1, Pp 1-9 (2024)
Abstract This exploratory qualitative study aims to gain a people-centered understanding of the patient journey in axial spondyloarthritis (axSpA). Semi-structured interviews were conducted with 15 individuals diagnosed with axSpA, aged 18 years and
Externí odkaz:
https://doaj.org/article/ef3ad73da22e429cbf4cfd3be260e51c
Autor:
Katrin Klug, Katharina Beckh, Dario Antweiler, Nilesh Chakraborty, Giulia Baldini, Katharina Laue, René Hosch, Felix Nensa, Martin Schuler, Sven Giesselbach
Publikováno v:
BMC Medical Informatics and Decision Making, Vol 24, Iss 1, Pp 1-13 (2024)
Abstract Background Medical text, as part of an electronic health record, is an essential information source in healthcare. Although natural language processing (NLP) techniques for medical text are developing fast, successful transfer into clinical
Externí odkaz:
https://doaj.org/article/777b3db876ca444ead0e9ec51bb0f4c9
Autor:
Nivedita Patni, Craig Chard, David Araújo-Vilar, Helen Phillips, David A. Magee, Baris Akinci
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 19, Iss 1, Pp 1-11 (2024)
Abstract Background Lipodystrophy syndromes are a heterogeneous group of rare, life-limiting diseases characterized by a selective loss of adipose tissue and severe metabolic complications. There is a paucity of information describing the experiences
Externí odkaz:
https://doaj.org/article/e797b6f4aab84c6e8ee22d247b480f80