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Social and ethical issues regarding presymptomatic diagnosis A LITERATURE REVIEW

Autor: Akrich, Madeleine, Paterson, Florence, Rabeharisoa, Vololona

Why research the genetic status of members of a family affected by a hereditary disease andreveal this information to them, particularly when there is no treatment available? On whatbasis does the individual at risk make the decision of whether or no

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=dedup_wf_001::19037723c2d40985a81e05f2e3fda6b5
https://hal-mines-paristech.archives-ouvertes.fr/hal-03040870

Synthesis of the literature on patient-reported outcomes (2010-2019)

Autor: Akrich, Madeleine, Paterson, Florence, Rabeharisoa, Vololona

The aim of this synthesized literature review is to provide an overview of patient-reportedoutcomes (PROs), a term we use to refer to both health outcomes reported directly by patients,and the tools used for their collection and measurement. Develope

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=dedup_wf_001::a69341ceebf27de01bb3c8f2e137a87b
https://hal-mines-paristech.archives-ouvertes.fr/hal-03040858/file/i3WP_20-CSI-01_EN-Akrich-Paterson-Rabeharisoa.pdf

The techno-politics of likeliness. The French forensic DNA database (FNAEG) and the comparison of DNA profiles

Autor: Rabeharisoa, Vololona, Paterson, Florence

Publikováno v: FiTeGe International Conference Genetic. Identities and identification: social issues surrounding non-medical uses of DNA
FiTeGe International Conference Genetic. Identities and identification: social issues surrounding non-medical uses of DNA, Partenaires projet ANR FiTeGe, Oct 2018, Paris, France

International audience

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=dedup_wf_001::3a9e3fc9c22e70d8702d47fd900296a2
https://hal-mines-paristech.archives-ouvertes.fr/hal-01939198

The 'technopolitics of likelihood': the French National DNA Database (FNAEG) and the comparison of genetic profiles

Autor: Rabeharisoa, Vololona, Paterson, Florence

Publikováno v: EASST 2018-Meetings-Making Science, Technology and Society together
EASST 2018-Meetings-Making Science, Technology and Society together, EASST (European Association for the Study of Science and Technology), Jul 2018, Lancaster, United Kingdom

International audience

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=dedup_wf_001::906715fa1bb7b1b78cd6718c9c50e987
https://hal-mines-paristech.archives-ouvertes.fr/hal-01936535