Zobrazeno 1 - 10
of 224
pro vyhledávání: '"Pascal AMEDRO"'
Autor:
Paul Padovani, Quentin Hauet, Bruno Lefort, Anne Chauviré-Drouard, Marine Letellier, Marie Bergé, Gaëlle Marguin, Myriam Titos, Audrey Grain, Marie-Lise Babonneau, Claire-Cécile Michon, Mathilde Trosdorf, Corinne Lejus-Bourdeau, Naychi Lwin, Marie-Christine Picot, Pascal Amedro, Alban-Elouen Baruteau
Publikováno v:
BMC Medical Education, Vol 24, Iss 1, Pp 1-10 (2024)
Abstract Background Effective physician-patient communication is crucial to compassionate healthcare, particularly when conveying life-altering diagnoses such as those associated with congenital heart diseases. Despite its importance, medical practit
Externí odkaz:
https://doaj.org/article/3d504cb632634a5baf3c15829b0c4825
Cardiac rehabilitation in children and adolescents with long QT syndrome: the RYTHMO’FIT pilot study
Autor:
Luc Souilla, Sophie Guillaumont, Annie Auer, Gael Metzler, Anne Requirand, Marie Vincenti, Gregoire De La Villeon, Jean-Luc Pasquie, Denis Mottet, Pascal Amedro
Publikováno v:
BMC Sports Science, Medicine and Rehabilitation, Vol 16, Iss 1, Pp 1-13 (2024)
Abstract Background To assess the feasibility, acceptability, safety, and short-term benefits of a tailored cardiac rehabilitation program for children and adolescents with long QT syndrome (LQTS). Methods Eight participants, aged between 6 and 18, w
Externí odkaz:
https://doaj.org/article/f4be3ce2a29545c1adef46c77b626f39
Autor:
Thomas Edouard, Marie-Christine Picot, Fernanda Bajanca, Helena Huguet, Aitor Guitarte, Maud Langeois, Bertrand Chesneau, Philippe Khau Van Kien, Eric Garrigue, Yves Dulac, Pascal Amedro
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 19, Iss 1, Pp 1-11 (2024)
Abstract Background This cross-sectional controlled study aims to assess health-related quality of life (HRQoL) of children and adolescents with a molecular diagnosis of Marfan syndrome (MFS) or related disorders and to evaluate the factors associate
Externí odkaz:
https://doaj.org/article/3fdcf20d63e3405d901d1338b04c6ed7
Autor:
Pascal Amedro, Stefan Matecki, Taissa Pereira dos Santos, Sophie Guillaumont, Jonathan Rhodes, Suellen Moli Yin, Alfred Hager, Julia Hock, Gregoire De La Villeon, Johan Moreau, Anne Requirand, Luc Souilla, Marie Vincenti, Marie-Christine Picot, Helena Huguet, Thibault Mura, Arthur Gavotto
Publikováno v:
Sports Medicine - Open, Vol 9, Iss 1, Pp 1-12 (2023)
Abstract Background The evaluation of health status by cardiopulmonary exercise test (CPET) has shown increasing interest in the paediatric population. Our group recently established reference Z-score values for paediatric cycle ergometer VO2max, app
Externí odkaz:
https://doaj.org/article/0c69d83531254c12b380ab0bf153c985
Publikováno v:
BMC Pediatrics, Vol 23, Iss 1, Pp 1-6 (2023)
Abstract Background We report the occurrence of a severe pulmonary hypertension (PH) in a neonate affected by a left congenital diaphragmatic hernia (CDH). PH in this patient was associated with an abnormal origin of the right pulmonary artery from t
Externí odkaz:
https://doaj.org/article/2ee0ec60df3a4633887d93ee0a02c754
Autor:
Reaksmei Ly, Clément Karsenty, Pascal Amedro, Sarah Cohen, Olivia Domanski, Francois Godart, Jelena Radojevic, Guy Vaksmann, Nicole Naccache, Anissa Boubrit, Vincent Bataille, Sébastien Hascoet, Magalie Ladouceur
Publikováno v:
Journal of the American Heart Association: Cardiovascular and Cerebrovascular Disease, Vol 12, Iss 8 (2023)
Background Quality of Life (QoL) is a prognostic factor in heart failure (HF) of patients with acquired cardiac disease. The aim of this study was to determine the predictive value of QoL on outcomes in adults with congenital heart disease (ACHD) and
Externí odkaz:
https://doaj.org/article/f5297bbb897b400485abbcf2b022da37
Autor:
Luc Souilla, Martina Avesani, Aymeric Boisson, Anne Requirand, Stefan Matecki, Marie Vincenti, Oscar Werner, Gregoire De La Villeon, Victor Pommier, Jean-Luc Pasquie, Sophie Guillaumont, Pascal Amedro
Publikováno v:
Frontiers in Cardiovascular Medicine, Vol 9 (2023)
BackgroundIn children with congenital long QT syndrome (LQTS), the risk of arrhythmic events during exercise commonly makes it difficult to balance exercise restrictions versus promotion of physical activity. Nevertheless, in children with LQTS, card
Externí odkaz:
https://doaj.org/article/1f87c36703ad46b5b0bca90c43f4bcd6
Autor:
Pascal Amedro, Oscar Werner, Hamouda Abassi, Aymeric Boisson, Luc Souilla, Sophie Guillaumont, Johanna Calderon, Anne Requirand, Marie Vincenti, Victor Pommier, Stefan Matecki, Gregoire De La Villeon, Kathleen Lavastre, Alain Lacampagne, Marie-Christine Picot, Constance Beyler, Christophe Delclaux, Yves Dulac, Aitor Guitarte, Philippe Charron, Isabelle Denjoy-Urbain, Vincent Probst, Alban-Elouen Baruteau, Philippe Chevalier, Sylvie Di Filippo, Jean-Benoit Thambo, Damien Bonnet, Jean-Luc Pasquie
Publikováno v:
Health and Quality of Life Outcomes, Vol 19, Iss 1, Pp 1-9 (2021)
Abstract Background Advances in paediatric cardiology have improved the prognosis of children with inherited cardiac disorders. However, health-related quality of life (QoL) and physical activity have been scarcely analysed in children with inherited
Externí odkaz:
https://doaj.org/article/d56b3be256d042baaf62bc952e6d1f50
Autor:
Pascal Amedro, Helena Huguet, Valerie Macioce, Raphael Dorka, Annie Auer, Sophie Guillaumont, Pascal Auquier, Hamouda Abassi, Marie-Christine Picot
Publikováno v:
Health and Quality of Life Outcomes, Vol 19, Iss 1, Pp 1-14 (2021)
Abstract Background The Pediatric Quality of Life Inventory Version 4.0 (PedsQLTM4.0) is a generic health-related quality of life (HRQoL) questionnaire, widely used in pediatric clinical trials but not yet validated in France. We performed the psycho
Externí odkaz:
https://doaj.org/article/a45eb2e4d7fd431bab8a675b470853be
Autor:
Oscar Werner, Charlene Bredy, Kathleen Lavastre, Sophie Guillaumont, Gregoire De La Villeon, Marie Vincenti, Cristelle Gerl, Yves Dulac, Nathalie Souletie, Philippe Acar, Laurence Pages, Marie-Christine Picot, Gerard Bourrel, Agnes Oude Engberink, Elodie Million, Hamouda Abassi, Pascal Amedro
Publikováno v:
Health and Quality of Life Outcomes, Vol 19, Iss 1, Pp 1-7 (2021)
Abstract Background Recent advances in the field of congenital heart disease (CHD) led to an improved prognosis of the patients and in consequence the growth of a new population: the grown up with congenital heart disease. Until recently, more than 5
Externí odkaz:
https://doaj.org/article/cabcafa6c6a4480b81a71ae992a527b5