Disconnect in Assessments of Autosomal Dominant Polycystic Kidney Disease Burden Between Patients and Physicians: A Survey Study

Autor: Sanon Aigbogun M, Oberdhan D, Doane MJ, Rooney J, Inyart BC, Pao CS, Denny AH

Publikováno v: International Journal of Nephrology and Renovascular Disease, Vol Volume 14, Pp 105-115 (2021)

Myrlene Sanon Aigbogun,1 Dorothee Oberdhan,1 Michael J Doane,2 Jillian Rooney,2 Brian C Inyart,2 Christina S Pao,1 Alexis H Denny3 1Health Outcomes, Otsuka Pharmaceutical Development & Commercialization, Inc., Princeton, NJ, USA; 2Health Outcomes Res

Externí odkaz: https://doaj.org/article/fb0baca2b90f4d808ea1146825d17c3a

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Minimal change in structural, functional and inflammatory markers of lung disease in newborn screened infants with cystic fibrosis at one year.

Autor: Davies G; Respiratory, Critical Care and Anaesthesia section, UCL Great Ormond Street Institute of Child Health (GOS ICH), London, United Kingdom; Department of Respiratory Medicine, Great Ormond Street Hospital for Children NHS Foundation Trust, London, United Kingdom. Electronic address: gwyneth.davies@ucl.ac.uk., Thia LP; Respiratory, Critical Care and Anaesthesia section, UCL Great Ormond Street Institute of Child Health (GOS ICH), London, United Kingdom; Department of Paediatric Respiratory Medicine, Cardiff University and Children's Hospital for Wales, Cardiff, United Kingdom., Stocks J; Respiratory, Critical Care and Anaesthesia section, UCL Great Ormond Street Institute of Child Health (GOS ICH), London, United Kingdom., Bush A; Department of Paediatric Respiratory Medicine, Imperial College & Royal Brompton & Harefield Hospital NHS Foundation Trust, London, United Kingdom., Hoo AF; Respiratory, Critical Care and Anaesthesia section, UCL Great Ormond Street Institute of Child Health (GOS ICH), London, United Kingdom; Department of Respiratory Medicine, Great Ormond Street Hospital for Children NHS Foundation Trust, London, United Kingdom., Wade A; Clinical Epidemiology, Nutrition and Biostatistics Section, UCL GOS ICH, London, United Kingdom., Nguyen TTD; Respiratory, Critical Care and Anaesthesia section, UCL Great Ormond Street Institute of Child Health (GOS ICH), London, United Kingdom; Department of Respiratory Medicine, Centre Hospitalier Universitaire Sainte-Justine, Montreal, QC, Canada., Brody AS; University of Cincinnati College of Medicine and Cincinnati Children's Hospital, Cincinnati, OH, United States., Calder A; Department of Radiology, Great Ormond Street Hospital for Children NHS Foundation Trust, London, United Kingdom., Klein NJ; Infection, Inflammation and Rheumatology Section, UCL GOS ICH, London, United Kingdom., Carr SB; Department of Paediatric Respiratory Medicine, Imperial College & Royal Brompton & Harefield Hospital NHS Foundation Trust, London, United Kingdom., Wallis C; Respiratory, Critical Care and Anaesthesia section, UCL Great Ormond Street Institute of Child Health (GOS ICH), London, United Kingdom; Department of Respiratory Medicine, Great Ormond Street Hospital for Children NHS Foundation Trust, London, United Kingdom., Suri R; Respiratory, Critical Care and Anaesthesia section, UCL Great Ormond Street Institute of Child Health (GOS ICH), London, United Kingdom; Department of Respiratory Medicine, Great Ormond Street Hospital for Children NHS Foundation Trust, London, United Kingdom., Pao CS; Department of Paediatric Respiratory Medicine, Royal London Hospital, London, United Kingdom., Ruiz G; Department of Paediatric Respiratory Medicine, Kings College Hospital, London, United Kingdom., Balfour-Lynn IM; Department of Paediatric Respiratory Medicine, Imperial College & Royal Brompton & Harefield Hospital NHS Foundation Trust, London, United Kingdom.

Publikováno v: Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society [J Cyst Fibros] 2020 Nov; Vol. 19 (6), pp. 896-901. Date of Electronic Publication: 2020 Feb 07.