Zobrazeno 1 - 10
of 530
pro vyhledávání: '"Paediatric Palliative Care"'
Autor:
Kim C. van Teunenbroek, Renée L. Mulder, Dayna A. M. van Heel, Jurrianne C. Fahner, Mirjam A. de Vos-Broerse, Johannes M.A. Verheijden, Hester Rippen, Brigitt C. M. Borggreve, Leontien C. M. Kremer, Marijke C. Kars, Erna M. C. Michiels, A. A. Eduard Verhagen, on behalf of the working group advance care planning & shared decision-making of the Dutch paediatric palliative care guideline
Publikováno v:
BMC Palliative Care, Vol 23, Iss 1, Pp 1-15 (2024)
Abstract Background In paediatric palliative care, children with life-threatening and life-limiting conditions, their families, and their health care professionals often face difficult decisions about treatment, goals of care, and delivery of care. A
Externí odkaz:
https://doaj.org/article/8f8040b3094044e2a0b857c7b6695d56
Publikováno v:
SSM: Qualitative Research in Health, Vol 6, Iss , Pp 100473- (2024)
Within paediatric palliative care, it is essential for families and providers to have open, equal, and trusting relationships. In practice, however, building relationships can be challenging. Investing in better understanding the differences in each
Externí odkaz:
https://doaj.org/article/640972c33c344021b6481fdd303414a9
Publikováno v:
International Journal of Qualitative Studies on Health & Well-Being, Vol 19, Iss 1 (2024)
Background There is a lack of knowledge regarding siblings’ experiences of being a brother or sister of a child with a life-threatening or life-limiting condition. Siblings’ perspectives are often expressed through their parents and not by siblin
Externí odkaz:
https://doaj.org/article/929e3cab7b824c08849e3a1beb83843c
Publikováno v:
BMC Palliative Care, Vol 23, Iss 1, Pp 1-12 (2024)
Abstract Background Paediatric palliative and hospice care aims to improve the quality of life of children with life-limiting and life-threatening conditions and their families. The number of these patients has risen significantly in recent years, re
Externí odkaz:
https://doaj.org/article/2ec3a68ee4974ca0b400a58caccd24c1
Autor:
Toro-Pérez, Daniel a, b, c, d, ⁎, Camprodon-Rosanas, Ester b, Bolancé, Catalina e, Guillen, Montserrat e, Navarro Vilarrubí, Sergi c, d, Limonero, Joaquin T. a
Publikováno v:
In Anales de Pediatria January 2025 102(1)
Autor:
Kim C. van Teunenbroek, Renée L. Mulder, Inge M. L. Ahout, Karen G. C. B. Bindels-de Heus, Catharina M. Delsman-van Gelder, Annemie F. S. Galimont-Collen, Marinka A. R. de Groot, Katja M. J. Heitink-Polle, Jeffry Looijestijn, Maarten O. Mensink, Selma Mulder, Jolanda H. Schieving, Antoinette Y. N. Schouten-van Meeteren, Johannes M. A. Verheijden, Hester Rippen, Brigitt C. M. Borggreve, Leontien C. M. Kremer, A. A. Eduard Verhagen, Erna M. C. Michiels, on behalf of the working groups symptom treatment and refractory symptom treatment of the Dutch paediatric palliative care guideline
Publikováno v:
BMC Palliative Care, Vol 23, Iss 1, Pp 1-20 (2024)
Abstract Background Children with life-threatening and life-limiting conditions can experience high levels of suffering due to multiple distressing symptoms that result in poor quality of life and increase risk of long-term distress in their family m
Externí odkaz:
https://doaj.org/article/c54bc563965e48718e280a2037caeec7
Autor:
Kim C. van Teunenbroek, Leontien C. M. Kremer, A. A. Eduard Verhagen, Johannes M. A. Verheijden, Hester Rippen, Brigitt C. M. Borggreve, Erna M. C. Michiels, Renée L. Mulder, on behalf of the Dutch Paediatric Palliative Care Guideline Panel
Publikováno v:
BMC Palliative Care, Vol 22, Iss 1, Pp 1-16 (2023)
Abstract Background Provision of paediatric palliative care for children with life-threatening or life-limiting conditions and their families is often complex. Guidelines can support professionals to deliver high quality care. Stakeholders expressed
Externí odkaz:
https://doaj.org/article/6537f6a8f10940cbbe5146ace5746b9f
Publikováno v:
BMC Palliative Care, Vol 22, Iss 1, Pp 1-9 (2023)
Abstract Background Perinatal palliative care is an emerging branch of children’s palliative care. This study sought to better understand the pattern of antenatal referrals and the role of a specialist paediatric palliative care (PPC) team in suppo
Externí odkaz:
https://doaj.org/article/5bcdb1d458ac4454b4e83a21dd2b6ecc
Publikováno v:
Annals of Medicine, Vol 55, Iss 2 (2023)
AbstractBackground: Paediatric Palliative Care (PPC) has undergone rapid growth in Portugal, where there are over 7800 children with life-limiting conditions. This is a complex experience for families due to the ongoing threat and vulnerability cause
Externí odkaz:
https://doaj.org/article/13ef23cfb17d4208b21a68e047b9d957
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