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Akademický článek

Validation of a novel patient reported tool to assess the impact of treatment in erythropoietic protoporphyria: the EPP-QoL

Autor: G. Biolcatti, S. Hanneken, E. I. Minder, N. J. Neumann, J. H. P. Wilson, P. J. Wolgen, D. J. Wright, A. J. Lloyd

Publikováno v: Journal of Patient-Reported Outcomes, Vol 5, Iss 1, Pp 1-8 (2021)

Abstract Background A novel treatment has been developed for erythropoietic protoporphyria (EPP) (a rare condition that leaves patients highly sensitive to light). To fully understand the burden of EPP and the benefit of treatment, a novel patient re

Externí odkaz: https://doaj.org/article/2c9d15ce8ed5409c8a84cc284a18d928

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Akademický článek

Correction to: Validation of a novel patient reported tool to assess the impact of treatment in erythropoietic protoporphyria: the EPP-QoL

Autor: G. Biolcati, S. Hanneken, E. I. Minder, N. J. Neumann, J. H. P. Wilson, P. J. Wolgen, D. J. Wright, A. J. Lloyd

Publikováno v: Journal of Patient-Reported Outcomes, Vol 5, Iss 1, Pp 1-1 (2021)

Externí odkaz: https://doaj.org/article/cb1acc0b1eae4ac1909d03cda7e83123

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Correction to: Validation of a novel patient reported tool to assess the impact of treatment in erythropoietic protoporphyria: the EPP-QoL

Autor: E. I. Minder, A. J. Lloyd, G. Biolcati, D. J. Wright, P. J. Wolgen, J. H. P. Wilson, Norbert J. Neumann, S. Hanneken

Publikováno v: Journal of Patient-Reported Outcomes
Journal of Patient-Reported Outcomes, Vol 5, Iss 1, Pp 1-1 (2021)

A novel treatment has been developed for erythropoietic protoporphyria (EPP) (a rare condition that leaves patients highly sensitive to light). To fully understand the burden of EPP and the benefit of treatment, a novel patient reported outcome (PRO)

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::b843ddf11c914a913cc0962465405fba
https://doi.org/10.1186/s41687-021-00348-4

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Validation of a novel patient reported tool to assess the impact of treatment in erythropoietic protoporphyria: the EPP-QoL

Autor: Norbert J. Neumann, S. Hanneken, A. J. Lloyd, P. J. Wolgen, G. Biolcati, D. J. Wright, J. H. P. Wilson, E. I. Minder

Publikováno v: Journal of Patient-Reported Outcomes, Vol 5, Iss 1, Pp 1-8 (2021)
Journal of Patient-Reported Outcomes
Journal of Patient-Reported Outcomes, 5(1):65. Springer International Publishing AG

Background A novel treatment has been developed for erythropoietic protoporphyria (EPP) (a rare condition that leaves patients highly sensitive to light). To fully understand the burden of EPP and the benefit of treatment, a novel patient reported ou

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::a00b73a7c53b7450e7a449038ce9c6f2
https://doi.org/10.1186/s41687-021-00345-7

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[Multidisciplinary management of trauma patients. Role of the maxillofacial surgeon]

Autor: J I, Vermeeren, P J, Gooris, P J, Wolgen

Publikováno v: Nederlands tijdschrift voor tandheelkunde. 107(11)

The approach of patients with multiple trauma is considered to be complicated. Many (non)medical disciplines are involved. This article describes the treatment in the early post-traumatic period and the organisation of the care in both the pre-hospit

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=pmid________::c95318e4a08f0989346581497ba8665a
https://pubmed.ncbi.nlm.nih.gov/11383253

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