Zobrazeno 1 - 10
of 4 351
pro vyhledávání: '"Outcome Measurement"'
Autor:
Priya S. Kishnani, Barry J. Byrne, Kristl G. Claeys, Jordi Díaz-Manera, Mazen M. Dimachkie, Hani Kushlaf, Tahseen Mozaffar, Mark Roberts, Benedikt Schoser, Noemi Hummel, Agnieszka Kopiec, Fred Holdbrook, Simon Shohet, Antonio Toscano, on behalf of the PROPEL Study Group
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 8, Iss 1, Pp 1-9 (2024)
Abstract Background Late-onset Pompe disease (LOPD), a rare autosomal recessive multisystemic disorder, substantially impacts patients’ day-to-day activities, outcomes, and health-related quality of life (HRQoL). The PROPEL trial compared cipagluco
Externí odkaz:
https://doaj.org/article/6c94129535e0439fa3e890c6a89ede54
Autor:
Josephine J. Koldenhof, Bernice O. Akpobome, Danielle Zweers, Stance Klaasse, Saskia C. C. M. Teunissen, Petronella O. Witteveen, Karijn P. M. Suijkerbuijk, Alexander de Graeff, Frederieke H. van der Baan
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 8, Iss 1, Pp 1-8 (2024)
Abstract Introduction The Utrecht Symptom Diary (USD) is a validated Dutch patient-reported outcome measurement (PROM) tool - based on the Edmonton Symptom Assessment System - to assess and monitor symptoms in cancer patients. The USD contains 11 ite
Externí odkaz:
https://doaj.org/article/ed426d8ccce442a5abfc3e6493f545b6
Autor:
Siegfried, Doreen
Publikováno v:
Marketing Libraries Journal, Vol 8, Iss 1, Pp 124-152 (2024)
This article describes the challenges, goals and opportunities of impact-oriented communication for academic libraries using the example of the ZBW – Leibniz Information Centre for Economics. The article describes how the ZBW is working to strength
Externí odkaz:
https://doaj.org/article/cd97d737c8c547c4bab29bb7f82290da
Autor:
Elizabeth Holmes-Truscott, Jasmine Schipp, Debbie D. Cooke, Christel Hendrieckx, Elizabeth J. Coates, Simon R. Heller, Jane Speight
Publikováno v:
Health and Quality of Life Outcomes, Vol 22, Iss 1, Pp 1-12 (2024)
Abstract Background Diabetes-specific quality of life (QoL) questionnaires are commonly used to assess the impact of diabetes and its management on an individual’s quality of life. While several valid and reliable measures of diabetes-specific QoL
Externí odkaz:
https://doaj.org/article/7e047a996c3947ebbb88b6445d2fca1a
Autor:
Alex Woods, Anthony Howard, Nicholas Peckham, Ines Rombach, Asma Saleh, Juul Achten, Duncan Appelbe, Praveen Thamattore, Stephen E. Gwilym
Publikováno v:
Bone & Joint Open, Vol 5, Iss 7, Pp 534-542 (2024)
Aims: The primary aim of this study was to assess the feasibility of recruiting and retaining patients to a patient-blinded randomized controlled trial comparing corticosteroid injection (CSI) to autologous protein solution (APS) injection for the tr
Externí odkaz:
https://doaj.org/article/76252c03e83c4e7ea5fe1a501fda5049
Publikováno v:
BMC Health Services Research, Vol 24, Iss 1, Pp 1-13 (2024)
Abstract Background Comprehensive care (CC) is becoming a widely acknowledged standard for modern healthcare as it has the potential to improve health service delivery impacting both patient-centred care and clinical outcomes. In 2019, the Australian
Externí odkaz:
https://doaj.org/article/ec01d71eea0a4961a8430669f6d9dffa
Autor:
Ellen B. M. Elsman, Lidwine B. Mokkink, Caroline B. Terwee, Dorcas Beaton, Joel J. Gagnier, Andrea C. Tricco, Ami Baba, Nancy J. Butcher, Maureen Smith, Catherine Hofstetter, Olalekan Lee Aiyegbusi, Anna Berardi, Julie Farmer, Kirstie L. Haywood, Karolin R. Krause, Sarah Markham, Evan Mayo-Wilson, Ava Mehdipour, Juanna Ricketts, Peter Szatmari, Zahi Touma, David Moher, Martin Offringa
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 8, Iss 1, Pp 1-16 (2024)
Abstract Purpose Although comprehensive and widespread guidelines on how to conduct systematic reviews of outcome measurement instruments (OMIs) exist, for example from the COSMIN (COnsensus-based Standards for the selection of health Measurement INs
Externí odkaz:
https://doaj.org/article/0d2e50b284b54f3abd496116916531cb
Publikováno v:
PEC Innovation, Vol 4, Iss , Pp 100264- (2024)
Objective: Prospective cohort study to test the real-life feasibility of longitudinal patient-reported outcome measurement PROM (Integrated Palliative Outcome Scale IPOS, and NCCN Distress Thermometer DT) required for outpatients with non-curable lun
Externí odkaz:
https://doaj.org/article/0d21a440939644609169cb3470131ed4
Autor:
Kai Lin, Mi Yao, Xinxin Ji, Rouyan Li, Lesley Andrew, Jacques Oosthuizen, Moira Sim, Yongsong Chen
Publikováno v:
BMC Primary Care, Vol 25, Iss 1, Pp 1-14 (2024)
Abstract Background Measuring treatment burden is important for the effective management of Type 2 Diabetes Mellitus (T2DM) care. The purpose of this systematic review was to identify the most robust approach for measuring treatment burden in people
Externí odkaz:
https://doaj.org/article/8c922aae5eae4458a420ac01edc9a311
Autor:
Madeleine Fink, Sandy M?ller, Eva Warnecke, J?rg Hense, Martin Schuler, Martin Teufel, Maria Rosa Salvador Comino, Mitra Tewes
Publikováno v:
Palliative Medicine Reports, Vol 5, Iss 1, Pp 194-200 (2024)
Background: The overall level of physical and psychological symptom burden of advanced cancer patients (ACP) in an outpatient setting is notoriously difficult to assess. Therefore, more efficient and objective assessment is needed to accomplish this
Externí odkaz:
https://doaj.org/article/e241abd5bc884568b721a7dc60f88a85