Zobrazeno 1 - 8
of 8
pro vyhledávání: '"Olga Helczyk"'
Autor:
Krzysztof Barć, Julia Finsel, Olga Helczyk, Susanne Baader, Helena Aho‐Özhan, Albert C. Ludolph, Dorothée Lulé, Magdalena Kuźma‐Kozakiewicz
Publikováno v:
Brain and Behavior, Vol 14, Iss 2, Pp n/a-n/a (2024)
Abstract Objective This paper examines neurologists’ approaches to exit strategies (ESs), such as euthanasia and physician‐assisted suicide, in patients with amyotrophic lateral sclerosis (PALS) in two European countries. Methods In a nationwide
Externí odkaz:
https://doaj.org/article/b6b2f36ac5be4e11830e8249ba9dc6f3
Autor:
Katarzyna Ciećwierska, Dorothée Lulé, Maksymilian Bielecki, Olga Helczyk, Anna Maksymowicz-Śliwińska, Julia Finsel, Krzysztof Nieporęcki, Peter M. Andersen, Albert C. Ludolph, Magdalena Kuźma-Kozakiewicz
Publikováno v:
BMC Palliative Care, Vol 22, Iss 1, Pp 1-11 (2023)
Abstract Background Given the inevitable relentless progressing nature of amyotrophic lateral sclerosis (ALS), it is essential to identify factors influencing patients’ wellbeing. The study aimed to prospectively assess factors influencing the qual
Externí odkaz:
https://doaj.org/article/58c5b4dcaca54f7b9b99de6b4d8ac671
Well‐being on supportive techniques in amyotrophic lateral sclerosis: from neurologists' perspective
Autor:
Krzysztof Barć, Dorothée Lulé, Julia Finsel, Olga Helczyk, Susanne Baader, Helena Aho‐Özhan, Albert C. Ludolph, Magdalena Kuźma‐Kozakiewicz
Publikováno v:
Annals of Clinical and Translational Neurology, Vol 9, Iss 12, Pp 1874-1883 (2022)
Abstract Objective To investigate intercultural neurologists' perception of well‐being in patients with amyotrophic lateral sclerosis (ALS) using gastrostomy (PEG), non‐invasive, and/or invasive ventilation (NIV/IV) and to analyse the determinant
Externí odkaz:
https://doaj.org/article/b71259b2fd054aa8828623921ad95f51
Autor:
Julia Finsel, Ivar Winroth, Katarzyna Ciećwierska, Olga Helczyk, Erica A. Stenberg, Ann-Christin Häggström, Albert C. Ludolph, Ingo Uttner, Olof Semb, Beata Pilczuk, Natalia Szejko, Simona Rosentul, Dorothée Lulé, Magdalena Kuźma-Kozakiewicz, Peter M. Andersen
Publikováno v:
Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration. :1-10
Objective: Age and years of education are strong predictors of cognitive performance in several versions of the Edinburgh Cognitive and Behavioral ALS Screen (ECAS) and cutoffs for the Swedish and Polish versions are not established yet. Here we eval
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::762cc27238f45a71bf02473c3343dae7
https://doi.org/10.1080/21678421.2023.2192248
https://doi.org/10.1080/21678421.2023.2192248
Autor:
Katarzyna Ciećwierska, Dorothée Lulé, Olga Helczyk, Krzysztof Nieporęcki, Maksymilian Bielecki, Susanne Baader, Albert C. Ludolph, Magdalena Kuźma-Kozakiewicz
Publikováno v:
Quality of life research 32(8), 2235-2246 (2023). doi:10.1007/s11136-023-03383-4
Purpose Amyotrophic lateral sclerosis (ALS) is a progressive motor impairment leading to early death. Religiousness is one of the factors potentially alleviating the psychological burden of patients. However, its role might vary according to cultural
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::b5a8e92eac5d5aa9fa66efd7b8912074
https://doi.org/10.1007/s11136-023-03383-4
https://doi.org/10.1007/s11136-023-03383-4
Autor:
Krzysztof Barć, Olga Helczyk, Erica Stenberg, Andreas Herrmann, Cynthia Vázquez, Jürgen Keller, Katharina Linse, Dorothée Lulé, Ingo Uttner, Julia Finsel, Anna Maksymowicz-Śliwińska, Ann-Cristin Häggström, Natalia Szejko, Magdalena Kuźma-Kozakiewicz, Peter M. Andersen, Krzysztof Nieporecki, Albert C. Ludolph, Olof Semb, Susanne Petri, Katarzyna Ciecwierska, Thomas Meyer
Publikováno v:
Amyotrophic lateral sclerosis & frontotemporal degeneration 23(3-4), 252-262 (2022). doi:10.1080/21678421.2021.1936064
Background: During the course of amyotrophic lateral sclerosis (ALS), patients and their families are faced with existential decisions concerning life-prolonging and -shortening measures. Correct anticipation of patient's well-being and preferences i
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::3b02cf87b2438e4406e803e123ad4bd6
https://doi.org/10.1080/21678421.2021.1936064
https://doi.org/10.1080/21678421.2021.1936064
Autor:
Katarzyna Ciecwierska, Anna Maksymowicz-Śliwińska, Olga Helczyk, Christian Weber, Krzysztof Barć, Magdalena Kuźma-Kozakiewicz, Albert Ludolph C, Dorothée Lulé
There are a number of physical restrictions that develop in the course of amyotrophic lateral sclerosis (ALS). While loss of speech and motor control may be partially compensated by the support of assistive devices, swallowing difficulty and respirat
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::6b9c371e503064419778a2c7ca7d4a07
Autor:
Cynthia Vázquez, Peter M. Andersen, Olga Helczyk, Markus Loose, Magdalena Kuzma-Kozakiewicz, Ingo Uttner, Albert C. Ludolph, Katarzyna Ciecwierska, Dorothée Lulé
Publikováno v:
Neurology
ObjectiveThis is an observational study on well-being and end-of-life preferences in patients with amyotrophic lateral sclerosis (ALS) in the locked-in state (LIS) in a Polish sample within the EU Joint Programme–Neurodegenerative Disease Research
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::d212a0818a8517f4be66d68d33d1cad8
http://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-168586
http://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-168586