Measuring and Demonstrating the Value of Patient Engagement Across the Medicines Lifecycle: A Patient Engagement Impact Measurement Framework.

Autor: Klein B; Novartis Pharma AG, Basel, Switzerland. fraubeyzaklein@gmail.com., Perfetto EM; Department of Pharmaceutical Health Services Research, University of Maryland, Baltimore, MD, USA., Oehrlein EM; Applied Patient Experience, Washington, DC, USA., Weston F; Patient Author, London, UK., Lobban TCA; Arrhythmia Alliance, Winchester, UK., Boutin M; Novartis Pharma AG, Basel, Switzerland.

Publikováno v: The patient [Patient] 2024 Sep 16. Date of Electronic Publication: 2024 Sep 16.

Development and Testing of a Chronic-Disease Patient Experience Mapping Toolbox.

Autor: Oehrlein EM; National Health Council, 1730 M St. NW Suite 650, Washington, DC, 20036, USA. eoehrlein@appliedpx.com.; Applied Patient Experience, LLC, 2201 Wisconsin Ave NW, Suite 200, Washington, DC, 20007, USA. eoehrlein@appliedpx.com., Schoch S; National Health Council, 1730 M St. NW Suite 650, Washington, DC, 20036, USA., Majercak K; National Health Council, 1730 M St. NW Suite 650, Washington, DC, 20036, USA., Gressler LE; Division of Pharmaceutical Evaluation and Policy, College of Pharmacy, University of Arkansas for Medical Sciences, 4301 W Markham St, Little Rock, AR, 72205, USA., Costantino RC; National Health Council, 1730 M St. NW Suite 650, Washington, DC, 20036, USA.; School of Pharmacy, University of Maryland, 20 N. Pine St, Baltimore, MD, 21201, USA., Love TR; School of Pharmacy, University of Maryland, 20 N. Pine St, Baltimore, MD, 21201, USA.; Enterprise Intelligence and Data Solutions Program Management Office, Program Executive Office, Defense Healthcare Management Systems, 1700 North Moore Street, Suite 2300, Arlington, VA, 22209, USA., Perfetto EM; National Health Council, 1730 M St. NW Suite 650, Washington, DC, 20036, USA.; School of Pharmacy, University of Maryland, 20 N. Pine St, Baltimore, MD, 21201, USA.

Publikováno v: The patient [Patient] 2024 May; Vol. 17 (3), pp. 263-274. Date of Electronic Publication: 2024 Jan 03.

Improving Access and Quality of Health Care in the United States: Shared Goals Among Patient Advocates.

Autor: Oehrlein EM; National Health Council, 1730 M St, Suite 500, Washington, DC, USA. eoehrlein@nhcouncil.org., Harris J; National Health Council, 1730 M St, Suite 500, Washington, DC, USA.; Lupus Foundation of America, Inc., 2121 K Street NW, Suite 200, Washington, DC, USA., Balch A; Patient Advocate Foundation, 1100 H St NW, Washington, DC, USA., Furlong P; Parent Project Muscular Dystrophy, 401 Hackensack Avenue, 9th Floor, Hackensack, NJ, USA., Hargis E; Colon Cancer Alliance, 1025 Vermont Ave NW Suite 1066, Washington, DC, USA., Woolley M; Research!America, 241 18th St S, Arlington, VA, USA., Perfetto E; National Health Council, 1730 M St, Suite 500, Washington, DC, USA.; Department of Pharmaceutical Health Services Research, University of Maryland Baltimore, 220 Arch Street 12th floor, Baltimore, MD, 21201, USA.

Publikováno v: The patient [Patient] 2021 Sep; Vol. 14 (5), pp. 687-690.

Developing Patient-Centered Real-World Evidence: Emerging Methods Recommendations From a Consensus Process.

Autor: Oehrlein EM; National Health Council, Washington, DC, USA. Electronic address: eoehrlein@appliedpx.com., Schoch S; National Health Council, Washington, DC, USA., Burcu M; Merck & Co, Inc, Rahway, NJ, USA., McBeth JF; Celiac Disease Foundation, Woodland Hills, CA, USA., Bright J; Innovation and Value Initiative, Alexandria, VA, USA., Pashos CL; Genesis Research, Hoboken, NJ, USA., Willke R; International Society for Pharmacoeconomics and Outcomes Research (ISPOR), Lawrenceville, NJ, USA., Love TR; Department of Pharmaceutical Health Services Research, University of Maryland Baltimore, Baltimore, MD, USA., Mattingly TJ 2nd; Department of Pharmaceutical Health Services Research, University of Maryland Baltimore, Baltimore, MD, USA., Perfetto EM; National Health Council, Washington, DC, USA; Merck & Co, Inc, Rahway, NJ, USA; Department of Pharmaceutical Health Services Research, University of Maryland Baltimore, Baltimore, MD, USA.

Publikováno v: Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research [Value Health] 2023 Jan; Vol. 26 (1), pp. 28-38. Date of Electronic Publication: 2022 Jul 19.

Patient-Centered Core Impact Sets: What They are and Why We Need Them.

Autor: Perfetto EM; National Health Council, Washington, DC, USA.; Pharmaceutical Health Services Research, School of Pharmacy, University of Maryland, Baltimore, MD, USA., Oehrlein EM; National Health Council, Washington, DC, USA., Love TR; Pharmaceutical Health Services Research, School of Pharmacy, University of Maryland, 220 Arch Street, 12th Floor, Room 01-328, Baltimore, MD, 21201, USA. troseganser@umaryland.edu., Schoch S; National Health Council, Washington, DC, USA., Kennedy A; EveryLife Foundation for Rare Diseases, Washington, DC, USA., Bright J; Innovation and Value Initiative (IVI), Alexandria, VA, USA.

Publikováno v: The patient [Patient] 2022 Nov; Vol. 15 (6), pp. 619-627. Date of Electronic Publication: 2022 Jun 02.