Ethical and practical issues to consider in the governance of genomic and human research data and data sharing in South Africa: a meeting report [version 1; peer review: 4 approved]

Autor: Ciara Staunton, Rachel Adams, Edward S. Dove, Natalie Harriman, Lyn Horn, Melodie Labuschaigne, Nicola Mulder, Antonel Olckers, Anne Pope, Michèle Ramsay, Carmen Swanepoel, Nora Ni Loideain, Jantina De Vries

Publikováno v: AAS Open Research, Vol 2 (2019)

Genomic research and biobanking has undergone exponential growth in Africa and at the heart of this research is the sharing of biospecimens and associated clinical data amongst researchers in Africa and across the world. While this move towards open

Externí odkaz: https://doaj.org/article/2debb8bd4e764498bc423f997e60e26a

Brexit, Data Adequacy, and the EU Law Enforcement Directive

Autor: Nora Ni Loideain

Publikováno v: SSRN Electronic Journal.

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::8056a196280fc7db7c60e00acb99c4a1
https://doi.org/10.2139/ssrn.4037322

Raising standards for global data-sharing

Autor: Edward S. Dove, Nora Ni Loideain, Jiahong Chen

Publikováno v: Science
Dove, E S, Chen, J & Loideain, N N 2021, ' Raising standards for global data-sharing ', Science, vol. 371, no. 6525, pp. 133-134 . https://doi.org/10.1126/science.abf4286

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::358b5dedca1220a42e3ad8652453a140
https://pubmed.ncbi.nlm.nih.gov/33414214

Ethical and practical issues to consider in the governance of genomic and human research data and data sharing in South Africa: a meeting report

Autor: Carmen Swanepoel, Natalie Harriman, Jantina de Vries, M Labuschaigne, Edward S. Dove, Lyn Horn, Michèle Ramsay, Antonel Olckers, Anne Pope, Rachel Adams, Nicola Mulder, Ciara Staunton, Nora Ni Loideain

Publikováno v: AAS open research

Genomic research and biobanking has undergone exponential growth in Africa and at the heart of this research is the sharing of biospecimens and associated clinical data amongst researchers in Africa and across the world. While this move towards open

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::04c68142ec909deef3b3aef8bcf92bb9
https://pubmed.ncbi.nlm.nih.gov/32259025

Expanding the artificial intelligence-data protection debate

Autor: Fred H. Cate, Christopher Millard, Orla Lynskey, Dan Jerker B. Svantesson, Christopher Kuner, Nora Ni Loideain

Publikováno v: International Data Privacy Law. 8:289-292

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::9f8a13cfb9979a4c17e7fac7a609b0cc
https://doi.org/10.1093/idpl/ipy024