Inaugural Huntington Disease Clinical Research Symposium Organized by the Huntington Study Group

Autor: E. Fine, T. Cahill, Elise Kayson, M. W. Jacobson, S. Kathuria, S. Leit, J. Smith, C. Tang, J. H. Cha, C. Higginson, Melinda M. Swenson, A. J. Lechich, L. Wasserman, H. Patzke, A. Clarke, S. Gevorkian, Noelle E. Carlozzi, Steven M. Hersch, Peter Como, C. Beck, A.E. Kane, S. Sandler, Robert Pacifici, M. C. Chirieac, T. Gillis, Thomas D. Bird, S. Peng, E. A. de Blieck, S. A. Johnson, A. Tomusk, H. D. Rosas, E. Kayson, R. Chesworth, Dennis J. Zgaljardic, J. Lee, S. Hastings, Danielle A. Simmons, David Eidelberg, Hans J. Johnson, V. Magnotta, Bernhard Landwehrmeyer, J. Wang, Elizabeth Aylward, J. L. Goldstein, Vicki L. Wheelock, N. Ramza, J. L. Marsh, S. Montas, Nonna Stepanov, Christopher A. Ross, P. Beaulieu, Elizabeth McCusker, M. K. Ahlijanian, E. Chiu, R. Deziel, Richard H. Myers, L. Carr, B. Walker, Jess G. Fiedorowicz, G. Chadwick, C. McCallum, B. Di Toro, Shannon A. Johnson, J. Srinidhi Mysore, Sharon L. Sims, Josef Priller, F. P. Albayya, Ira Shoulson, Ronald Pierson, J. F. Gusella, Jan Bausch, Kimberly A. Quaid, L. Veatch Goodman, B. Westphal, Henry L. Paulson, L. Deuel, K. Illes, Vijay Dhawan, G. Shapiro, A. Goh, G. M. Peavy, P. Young, M. Adams, J. Latourelle, Ryan Y. Kim, Aimee Aubeeluck, K. Whitlock, Douglas R. Langbehn, J.S. Paulsen, K. M. Biglan, Hillary Lipe, Kevin Duff, William Adams, J. Klager, J. Pallos, J. Dawson, F. L. Huet, D. Johnson, S. Queller, M. Casale, C. Zuccato, G. Suter, Emily Oster, P. Kingsley, S. Lifer, E. Fossale, Mark W. Jacobson, Katharine Moser, E. R. Dorsey, F. Raeppel, D. L. McArthur, A. Pae, Joan M. Harrison, Guerry M. Peavy, A. Lownie, K. Sigvardt, E. Cattaneo, Z. Li, D. Ecker, Russell Katz, A. Duckett, Aileen Shinaman, J. Besterman, Laura Mickes, Andrew Feigin, B. L. Apostol, Jana M. Hanson, Leigh J. Beglinger, L. Michels Thompson, M. Fournel, C. Moskowitz, Mark Guttman, Teresa Tempkin, Peg Nopoulos, H. Sainte-Croix, L. Beglinger, K.B. Whitlock, David Oakes, S. J. Nolan, T. Massood, N. Carlozzi, Jody Corey-Bloom, P. Mattis, G. Rahil, O. Yastrubetskaya, Marcy E. MacDonald, D.R. Langbehn, Heather Buchanan, Jody Goldstein, S. Perlman, Julie C. Stout, R. Stewart, J. Preston, Stephanie Lessig, A. Barbier, Kevin M. Biglan, Wayne R. Matson, G. Schwartz, Yilong Ma, Jane S. Paulsen

Publikováno v: Neurotherapeutics. 5:362-375

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::bad4ff0e7de53fe6fe4325be2490e29f
https://doi.org/10.1016/j.nurt.2007.10.053

Living at risk: concealing risk and preserving hope in Huntington disease

Autor: Sharon L. Sims, Carol Moskowitz, Kimberly A. Quaid, Beryl J. Westphal, Melinda M. Swenson, G. Suter, Nonna Stepanov, Joan M. Harrison

Publikováno v: Journal of genetic counseling. 17(1)

Much of the qualitative research on Huntington disease has focused on the genetic testing aspects of HD. The overall purpose of this qualitative study was to gather information about the everyday experience of living with the risk of developing Hunti

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::065b4d8ed1afbe3b618f734da53b779e
https://pubmed.ncbi.nlm.nih.gov/17943424

Living at Risk: Concealing Risk and Preserving Hope in Huntington Disease.

Autor: Kimberly Quaid, Sharon Sims, Melinda Swenson, Joan Harrison, Carol Moskowitz, Nonna Stepanov, Gregory Suter, Beryl Westphal

Publikováno v: Journal of Genetic Counseling; Feb2008, Vol. 17 Issue 1, p117-128, 12p