Health-related quality of life 6 months after pediatric intensive care unit admission for bronchiolitis: a prospective single-center cohort study

Autor: Tessel van Dijk, Milou V. van Benthum, Nienke M. Maas-van Schaaijk, Annelies van Zwol

Publikováno v: European Journal of Pediatrics. 182:403-409

Health-Related Quality of Life (HRQoL) after Pediatric Intensive Care Unit (PICU) admission is considered a valuable outcome measure. Yet, data on HRQoL after PICU admission are scarce and often collected in heterogeneous patient groups. The current

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::e1776fcaeda504342b0e937e88ddc8d2
https://doi.org/10.1007/s00431-022-04700-8

Effect and Process Evaluation of e-Powered Parents, a Web-Based Support Program for Parents of Children With a Chronic Kidney Disease: Feasibility Randomized Controlled Trial

Autor: Jaqueline L Knoll, Elisabeth A.M. Cornelissen, Maria W.G. Nijhuis-van der Sanden, Nienke M Maas, Betsie G.I. van Gaal, Wytske W. Geense, Gerjo Kok

Publikováno v: Journal of Medical Internet Research, 20, e245
Journal of Medical Internet Research, 20, 8, pp. e245
Journal of Medical Internet Research
Journal of Medical Internet Research, 20(8):e245. JMIR Publications Inc.

Contains fulltext : 195585.pdf (Publisher’s version ) (Open Access) BACKGROUND: Parents of children with chronic kidney disease (CKD) experience high levels of stress in the daily management of their child's illness. Parents need continuously avail

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::0b9b50b328165cb7b9494526c9878f33
http://hdl.handle.net/2066/195585

Parents' experiences, needs, and preferences in pediatric diabetes care: Suggestions for improvement of care and the possible role of the Internet. A qualitative study

Autor: Hans J. G. Marks, Cees Noordam, Nienke M. Maas‐van Schaaijk, Emiel A Boogerd, Chris M. Verhaak

Publikováno v: Journal for Specialists in Pediatric Nursing. 20:218-229

PURPOSE: To investigate the needs and preferences of parents of children with type 1 diabetes (T1D) concerning pediatric diabetes care and use of Internet in care. DESIGN AND METHODS: Parents of 34 children, aged 2-12, with T1D participated in seven

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::0ce6d565773c475f4bbd47689ecdf897
https://doi.org/10.1111/jspn.12118

Implementation of quality of life monitoring in Dutch routine care of adolescents with type 1 diabetes: appreciated but difficult

Autor: Maartje de Wit, Nienke M. Maas-van Schaaijk, Frank J. Snoek, Joost Rotteveel, Minke Eilander, Angelique B. C. Roeleveld-Versteegh

Publikováno v: Pediatric Diabetes. 17:112-119

Objective Monitoring quality of life (QoL) improves well-being and care satisfaction of adolescents with type 1 diabetes. We set out to evaluate the implementation of the program DAWN (Diabetes Attitudes Wishes and Needs) MIND-Youth (Monitoring Indiv

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::26a84edbff8fce72d03443f1bc80b87d
https://doi.org/10.1111/pedi.12237

Goal Disturbance and Coping in Children with Type I Diabetes Mellitus: Relationships with Health-Related Quality of Life and A1C

Autor: Kathinka Rijk, Anke M. Nieuwesteeg, Bea Van den Bergh, Annika Van Bussel, Hedwig J.A. van Bakel, Roelof Odink, Esther Hartman, Eef Janssen, Nienke M. Maas-van Schaaijk

Publikováno v: Canadian Journal of Diabetes, 37(3), 169-174. Canadian Diabetes Association

A b s t r a c t Objective Our first objective was to compare the health-related quality of life (HRQoL) of children with type 1 diabetes mellitus (8–12 years) with that of a healthy reference group, and to compare glycated hemoglobin (A1C) values o

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::6fe9275cdafd23bffe84449838d285e2
https://doi.org/10.1016/j.jcjd.2013.02.058