Understanding multi‐stakeholder needs, preferences and expectations to define effective practices and processes of patient engagement in medicine development: A mixed‐methods study

Autor: Stuart D Faulkner, Suzanne Sayuri Ii, Chi Pakarinen, Fabian Somers, Maria Jose Vicente Edo, Lucia Prieto Remon, Ana Diaz Ponce, Dianne Gove, Elisa Ferrer, Begonya Nafria, Neil Bertelsen, Mathieu Boudes, Nicholas Brooke, Alexandra Moutet, Nick Fahy

Publikováno v: Health Expectations, Vol 24, Iss 2, Pp 601-616 (2021)

Abstract Background The holistic evolution of patient engagement in medicines development requires a more detailed understanding of the needs of all involved stakeholders, and one that better accounts for the specific needs of some potentially vulner

Externí odkaz: https://doaj.org/article/9366a38501dc4d2da686b3eb9815f3ea

Sustaining Meaningful Patient Engagement Across the Lifecycle of Medicines: A Roadmap for Action

Autor: Vinciane Pirard, Kirsty Reid, Maria Cavaller-Bellaubi, Juan García-Burgos, Eva Molero, Stuart Faulkner, Neil Bertelsen, María J. Vicente, Nicholas Brooke, Laura McKeaveney, Mathieu Boudes, Jeffrey Southerton, Elisa Ferrer, Bryan Teixeira

Publikováno v: Zaguán. Repositorio Digital de la Universidad de Zaragoza
Universitat Politècnica de Catalunya (UPC)
Therapeutic Innovation & Regulatory Science

Background There is increased recognition that incorporating patients’ perspectives and insights into the medicines development process results in better health outcomes and benefits for all involved stakeholders. Despite the increased interest and

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::8efc806f51f8183cf31ebac0058d6ec9
https://doi.org/10.1007/s43441-021-00282-z

Building from Patient Experiences to Deliver Patient-Focused Healthcare Systems in Collaboration with Patients: A Call to Action

Autor: Karlin Schroeder, Neil Bertelsen, Jessica Scott, Katherine Deane, Laura Dormer, Devika Nair, Jim Elliott, Sarah Krug, Ify Sargeant, Hayley Chapman, Nicholas Brooke

Publikováno v: Therapeutic innovationregulatory science. 56(5)

Patients’ experiences of their diagnosis, condition, and treatment (including the impact on their lives), and their experiences surrounding expectations of care, are becoming increasingly important in shaping healthcare systems that meet the evolvi

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::796d1b40a37d1f2a95cd0253927b8a76
https://pubmed.ncbi.nlm.nih.gov/35854183

Patient Centricity and Pharmaceutical Companies: Is It Feasible?

Autor: Katarina Halling, Anna Georgieva, Neil Bertelsen, John-Kenneth Sake, Danie Du Plessis, Jackie Morgan

Publikováno v: Therapeutic innovationregulatory science. 51(4)

Various health care bodies (regulatory, health technology assessment, academia, health care providers, scientific journals) request patient input in their decision-making processes. This represents a shift from disease-centered to patient-centered ap

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::bf50e8c403e50e8a520064ef703cbb6e
https://pubmed.ncbi.nlm.nih.gov/30227057

Strengthening international patient advocacy perspectives on patient involvement in HTA within the HTAi Patient and Citizen Involvement Interest Group – Commentary

Autor: Neil Bertelsen, Anna Mae Scott, Janet L Wale, Nick Meade

Publikováno v: Research Involvement and Engagement

Health Technology Assessment (HTA) is an evidence-based decision-making process, focusing on evaluating health technologies for funding within a healthcare system. ‘Health technologies’ include medications, medical devices, diagnostics, medical p

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::2140eb01578bd1c6c0b6506c76884302
https://doi.org/10.1186/s40900-016-0053-8