Zobrazeno 1 - 5
of 5
pro vyhledávání: '"Neal Mantick"'
Autor:
Frederick Kaplan, Eric Bachman, Nicky Williams, Oliver Collins, Robert J. Pignolo, Rolf Morhart, Nobuhiko Haga, Adam Sherman, Xiaobing Qian, Donna R. Grogan, Betsy Bogard, Matthew A. Brown, Richard Keen, Keqin Zhang, Christiaan Scott, Maja Di Rocco, Marelise E. M. W. Eekhoff, Geneviève Baujat, Roger zum Felde, Patricia Delai, Carmen De Cunto, Neal Mantick, Edward C. Hsiao, Sharon Kantanie, Jelena Milosevic, Marin Wallace
Publikováno v:
Mantick, N, Bachman, E, Baujat, G, Brown, M, Collins, O, De Cunto, C, Delai, P, Eekhoff, M, zum Felde, R, Grogan, D R, Haga, N, Hsiao, E, Kantanie, S, Kaplan, F, Keen, R, Milosevic, J, Morhart, R, Pignolo, R, Qian, X, di Rocco, M, Scott, C, Sherman, A, Wallace, M, Williams, N, Zhang, K & Bogard, B 2018, ' The FOP Connection Registry : Design of an international patient-sponsored registry for Fibrodysplasia Ossificans Progressiva ', Bone, vol. 109, pp. 285-290 . https://doi.org/10.1016/j.bone.2017.08.032
Bone, 109, 285-290. Elsevier Inc.
Bone, 109, 285-290. Elsevier Inc.
The Fibrodysplasia Ossificans Progressiva (FOP) Connection Registry is an international, voluntary, observational study that directly captures demographic and disease information initially from patients with FOP (the patient portal) and in the near f
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::449576c1415a1346ab15cbc7ba7c8749
https://research.vumc.nl/en/publications/ffb644bf-a3bd-4f90-bbce-bbcf80533f08
https://research.vumc.nl/en/publications/ffb644bf-a3bd-4f90-bbce-bbcf80533f08
Akademický článek
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K zobrazení výsledku je třeba se přihlásit.
Publikováno v:
Foundation Review. 2021, Vol. 13 Issue 4, p18-31. 14p.
Autor:
Pashos CL, Larholt K, Fraser KA, McKenzie RS, Senbetta M, Piech CT, Pashos, Chris L, Larholt, Kay, Fraser, Kimberly A, McKenzie, R Scott, Senbetta, Mekré, Piech, Catherine Tak
Publikováno v:
Supportive Care in Cancer; Jan2012, Vol. 20 Issue 1, p159-165, 7p
Autor:
U.S. Agency for Health Care Research and Quality/AHRQ, Richard E. Gliklich, Nancy A. Dreyer, Michelle B. Leavy
This User's Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organi