P249: Gaps in the phenotype descriptions of ultra-rare genetic conditions: Review and multi-center consensus reporting guidelines

Autor: Ali AlMail, Ahmed Jamjoom, Amy Pan, Anna Feng, Vann Chau, Alissa D'Gama, Katherine Howell, Nicole Si Yan Liang, Amy McTague, Annapurna Poduri, Kimberly Wiltrout, Anne Bassett, John Christodoulou, Lucie Dupuis, Peter Gill, Tess Levy, Paige Siper, Zornitza Stark, Jacob Vorstman, Catherine Diskin, Natalie Jewitt, Danielle Baribeau, Gregory Costain

Publikováno v: Genetics in Medicine Open, Vol 2, Iss , Pp 101145- (2024)

Externí odkaz: https://doaj.org/article/e9a17f9808f349fcb2d6ede4cec52b9c

Pediatric and Adult Cardiologists’ and Respirologists’ Referral Practices to Palliative Care

Autor: Natalie Jewitt, Kenneth Mah, Michael Bonares, Kevin Weingarten, Heather Ross, Reshma Amin, Conall Thomas Morgan, Camilla Zimmermann, Kirsten Wentlandt

Publikováno v: Journal of Pain and Symptom Management. 64:461-470

Children and adults with advanced cardiac or respiratory disease may benefit from specialized palliative care (SPC), but there has been little SPC research in this area.To explore pediatric cardiologists' and respirologists' (pediatric clinicians) be

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::10c81d4028be3d3d1cbb3411d8f312bd
https://doi.org/10.1016/j.jpainsymman.2022.07.011

Using a Digital Multimedia Platform to Teach Anatomical Sciences

Autor: Bruce B., Forster, Anique de, Bruin, Abigail, Arnold, Rose, Hatala, Jeroen van, Merrienboer, Kathryn, Darras, Rebecca, Spouge, Savvas, Nicolaou, Kamal, Moghrabi, Majid, Doroudi, Juvel, Lee, Bruce, Forster, Farnaz, Javadian, Andy, Jiang, Nicole, Ng, Shirley, Tse, Jeffrey, Hu, James, Nugent, Jeff, Hu, Anne, Worthington, Claudia, Krebs, Vishesh, Oberoi, Farshad, Hosseini, Richard, Berish, Josh, Lehr, Matthew, Downer, Luke, Duffley, Phil, Hillier, Kieran, Lacey, Madison, Lewis, Brooke, Turner, Jill, Allison, Cees van der, Vleuten, Jimmie, Leppink, Cassandra, Barber, Saad, Chahine, Meghan, Gipson, Lisa Richardson MD, PhD, Claudianne, Laurin, Marie-Ève, Villeneuve, Camille, Dulude, Jasmine, Chahal, Mitesh, Patel, Shaimaa, Helal, Emaad, Mohammad, Omar, Islam, Aarti, Sayal, Jackie, Gruber, Lukas, Neville, Cathy, Rocke, Brenda, Elias, Hartley, Perlmutter, Darryl, Rolfson, Thomas, Jeffery, Vijay, Daniels, Patrick von, Hauff, Jessie, Thuswaldner, Heather, Lochnan, Paul, Hendry, Robert, Parson, Jacqueline, Ogilvie, Breanna, Chen, Jill, Sangha, Andrea, Ens, Sarah, Payne, Sheila, Harms, Natasha, Snelgrove, Ryann, Kwan, Roger, Chafe, Martha, Balicki, Barr, Darja, Robert, Renaud, Atul, Sharma, Celia, Rodd, Lauren, Friedman, Shannon, Willmott, Marie-Pier, Lirette, Larissa, Shapka, Natalie, Jewitt, Gabriel, Tse, Amy, Zipursky, Lisette, Yorke, Adelle, Atkinson, Michael, Weinstein, Angela, Punnett, Senthujan, Gunaseelan, Danielle, Walker, Natasha, Larocque, Michelle, Gibson, Portia, Tang, Ramy, Boles, Leshawn, Benedict, Joyce, Lui, Roxanne, Wright, Fok Han, Leung, Zachary, Liederman, Ivan, Silver, Rita, Selby, Ryan, Sandarage, Brandon, Tang, Katrina, Dutkiewicz, Stephan, Saad, Jocelyn, Chai, Kristin, Dawson, Vanessa, Kitchin, Iain, McCormick, Barry, Kassen, Aazad, Abbas, Sarah, McClennan, Wasimuddin, Syed, Syed, Ibrahim, Ali, Dergham, Laura, Milne, Jessica, Trier, Patrick, Albers, Brodie, Ritchie, Alexander, Miles, Eleanor, Crawford, Alan, Batt, Brett, Williams, Madison, Brydges, Matthew, Leyenaar, Walter, Tavares, Mélanie, Marceau, Denis, Bouchard, Monique, McLaughlin, Brian, Lee, Landon, James, Paul, Barber, Jennifer, Halasz, Leslie, Truong, Kendra, Raffael, Christine, Phan, Pam, Mathura, Narmin, Kassam, Tracey, Hillier, Jennifer, Croden, Shujiao, Wang, Maryam, Wagner, Valérie, Dory, Patricia, Wade, Beth-Ann, Cummings, Hannah, Smith, Diana, Sanchez-Ramirez, Jasmine, Waslowski, Morag, Paton, Mary, Freymond, Tristan, Brownrigg, Sagar, Patel, Shelby, Olesovsky, Joyce, Nyhof-Young, Adrina, Zhong, Elise, Quint, Tobey, Audcent, Jimin, Lee, Andrea, Guerin, Victoria, Lee-Kim, Karen, Grewal, Theresa, Nowlan-Suart, Sylvie, Bowden, Helen, Dimaras, Asim, Ali, Sadik, Taju, Stephanie, Kletke, Max, Solish, Alanna, Roberts, Samantha, Stasiuk, Alasdair Nazerali, Maitland, Alex, Frolkis, Allison, Michaud, Shannon, Ruzycki, Ahmed, Moussa, Evelyne, Wassef, Thomas, Pennaforte, Michael-Andrew, Assaad, Erin, Peebles, Tara, Mullowney, Sandra, Westcott, Kaif, Pardhan, Alim, Pardhan, Michael, Brown, Nicholas, Cofie, Benjamin, Kwan, Benedetto, Mussari, Pam, Moore, Lynne, Meilleur, Alexandre, Menard, Don, Soboleski, Nancy, Dalgarno, Loni, Desanghere, Anurag, Saxena, Scott J., Adams, Andrew, Volk, Hollis, Lai, Keon, Ma, Jahaan, Ali, Julianna, Deutscher, Jason, Silverman, Chris, Novak, Sandy, Dong, John, Chmelicek, Erica, Dance, Helly, Goez, Lara, Cooke, Janet de, Groot, Lynden, Crowshoe, Parichita, Choudhury, Ulemu, Luhanga, Maria, Aaron, Adam, Webb, Manon, Denis-LeBlanc, Lyne, Pitre, Maud, Mediell, Adjo, David, Salomon, Fotsing, Eric, Dionne, Laura, Tan, Lorraine, Tan, Yihan, Khoo, Ying Pin, Toh, Annelissa, Chin, Lalit, Krishna, Annie, Descôteaux, Alexandre, Berkesse, Marie-Pierre, Codsi, Antoine, Payot, Philippe, Karazivan, Vincent, Dumez, Amélie Du, Pont-Thibodeau, Nathalie, Orr-Gaucher, Melissa, Taguemout, Anne-Sophie, Eymard, Mathieu, Jackson, Clara, Dallaire, Louise, Nicaise, Yipeng, Ge, Ruth, Cull, Guylaine, Séguin, Paul, Bessette, Eve-Reine, Gagné, Sylvie, Houde, Sylvie, Mathieu, Sébastien, Roulier, Geneviève, Petit, Linda, Pinsonneault, Ghislaine, Houde, Gabrielle, Trépanier, Damien, Bélisle, Judy, Truong, Vanessa, Sheng, Priya, Sandhu, Yasamin, Sadeghi, Kevin, Venus, Nadine, Abdullah, Lindsay, Melvin, Wilson, Lam, Hassan, Sibai, Robin, Ralph-Edwards, Michael, Ott, Julie Ann, VanKoughnett, William Bédard, Michel, Véronique, Castonguay, Pierre, Desaulniers, Éric, Piette, Massimiliano, Iseppon, Patrice Chrétien, Raymer, Jean-Michel, Leduc, Ariane, Bergeron, Judith, Lefebvre, Phillip, Surmanowicz, Liam, Rourke, Ron, Damaant, Casey, Goldstein, Tianyue, Wang, Danielle, Thibodeau, Kimberley, MacNeil, Maria, Hubinette, Sandra, Jarvis-Selinger, Sara, Trincao-Batra, Kyung Joon, Mun, Tracy, Pham, Tunde, Gondocz, Allan, McDougall, Leah, Kosyakovsky, Michael, Ruiz, Jonah, Himelfarb, Healey, Shulman, Mark, Bonta, Stephanie, Jiang, Sydney, McQueen, Aidan, McParland, Melanie Hammond, Mobilio, Carol-Anne, Moulton, Keyna, Bracken, Parth, Sharma, Emily, Allison, Kaitlin, Endres, Katina, Zheng, Sarah, Elias, Mimi, Deng, Alexandra, Kobza, Aimee, Li, Veronique, Foley, David, Foley, Grainne, Kearney, Jenny, Johnston, Nigel, Hart, Gerry, Gormley, Irene, Ma, Janeve, Desy, Vicki, Noble, Andrew, Liteplo, Paul, Olszynski, Elaine, Dumoulin, Shane, Arishenkoff, Renee, Dversdal, Gigi, Liu, Brian, Buchanan, Sean, Borle, Susan, Andrew, Cody, Surgin, Omar, Selim, Andrew, Dueck, Catharine, Walsh, Ryan, Brydges, Mahan, Kulasegaram, Allan, Okrainec, Amy, Lu, Julie, Johnstone, Fern, Juster, Kelly, Dore, Helen, Mawdsley, Christen, Rachul, Keevin, Bernstein, Ira, Ripstein, Joanne, Hamilton, Véronique, Phan, Stéphane, Ouellet, Dania, Ramirez, Josée, Sabourin, Isabelle, Perreault, Nicolas, Fernandez, Adam, Pietrobon, Lucia, Chehadé, Alexandra, Beaudry-Richard, Brian, Keller, Michael, Schlossmacher, Nicole, Zaki, Teresa, Cavett, Gayle, Halas, Holly, Caretta-Weyer, Lindsay, Crawford, Sean, Taylor, Damon, Dagnone, Laura, McEwen, Matt, Kushneriuk, Deirdre, Andres, Andrea, Symon, Di Naidu, Naidu, Joshua, LLoyd, Lisa, Thurgur, Miguel, Cortel-LeBlanc, Jeffrey, Landreville, Wenxuan, Wang, Michele, Weir, Kyle, Massey, Gary, Tithecott, Cyrus, Hamadi, Silvio, Ndoja, Charles, Dion, Alexander, McCarton, Brynn, Charron, Marie-Eve, LeBel, Yuding, Wang, Kelly, dore, Edward, Matsumoto, Dana, Russle, Nathan, Wong, Jen, Hoogenes, Bobby, Shayegan, Miranda, Wan, Stewart, Spence, Melissa, Wan, Carly, Schenker, Lindsay, Herzog, Erin, Bearss, Milena, Forte, Michael, Roberts, Ian, Waters, Diana, Toubassi, Stephanie, Smith, Lauren, Griggs, Franco, Rizzuti, Joan, Horton, Aliya, Kassam, Allison, Brown, Marie, Leung, Olivia, Geen, Samantha Woodrow, Mullett, Meirui, Li, Naomi, Mudachi, Hely, Shah, Roxanne, St-Pierre-Alain, Maxime, Couture, Audrey, Désilets, Valerie S., Kim, Allison J., Chen, Anna, Chen, Lauren A., Beck, Adam, Neufeld, Greg, Malin, Laurence, Labine, Maude, Cigna, Ariane, Deneault-Marchand, Karina Salvo, Labelle, Gabriel, Lavoie, Sarah-Émilie, Racine-Hamel, Sophie, Marcoux, Kendra, Martel, Anthony, Seto, William, Kennedy, Mackenzie, Margetts, Mitchell, Rohatensky, Jian, Choo, Sean, Crooks, Nicole, Ertl, Nazia, Sharfuddin, Nathan, Zondervan, Lucas, Streith, Louise, Hufton, Alejandro, Granados, Fernando, Bello, Daniel, Wheeler, Josh, Kariath, Regan, Brownbridge, Amit, Persad, Julia, Radic, Astrid, Bicamumpaka-Shema, Sarah, Zahabi, Marie-Frédéric, Tremblay, Rosario, Rodriguez, Laura Rojas, Rozo, Luka, Pusic, Martin, Pusic, Mark, Baxter, Adam, Dubrowski, Tim, Weber, Krystina, Clarke, Zhujiang, Wang, Robert, Savaglio, Ruth, Simpson, Maurice, DiGiuseppe, Bill, Kapralos, Sarah, Frangou, Kristen, Edwards, Natalie, Garrett, Joshua, Frost, Megan, Deck, Kiran, Rabheru, Peter, Hedlin, Marla, Davidson, Amélie, Frégeau, Alexis, Cournoyer, Nathalie, Soucy, David, Fortier, Richard, Fleet, Minisha, Suri, Deborah, Kopansky-Giles, Silvano, Mior, Lianne, Jeffs, Kari, White, Douglas, Campbell, Jackson, Blonde, Andrew, Atkins, Susan, Munro, Cyril, Boulila, Élise, Girouard-Chantal, Matthew, Lassman, Christophe, Gendron, Timothy, Dubé, Elise, Girourard-Chantal, Marcel, D'Eon, Get, Lombamo, Jelyssa, Luc, Natasha Hubbard, Murdoch, Poppy, Lowe, Timothy, Weber, Alvaro, Quevedo, Chris, Winstead-Derlega, Stefanie, Sebok-Syer, Michelle, Bach, Elizabeth, Trinh, Natalia, Trounce, Milana, Boukhman, Camille Pelletier, Vernooy, Clément, Cohé, Kira, Abelsohn, James, Owen, Cathy, Fournier, David, Rojas, Lisa, Richardson, Cynthia, Whitehead, Sadie, King, Ahmed, Maherzi, Samuel, Blain, Claudie, Paul, Laurianne, Petiquay, Claudia, Petiquay, Sharon, Yeung, Amy, Bombay, Chad, Walker, Jeff, Denis, Debbie, Martin, Paul, Sylvestre, Heather, Castleden, Ashton, Cox, Joanne, Rodger, Devon, Stride, Teresa, Chan, Valerie, Hladky, Amelia, Lamontagne, Qi, Li, Chantal, Phillips, Anita, Balakrishna, Lisa, Robinson, Christine, Seabrook, Emily (Tu Nhi), Nham, James, Watterson, Anahita, Malvea, Francis, Diaz, Anita, Ens, Sasha, Thiem, Amanda, Condon, Filippos, Papadopoulos, Danielle, Portnoy, Martin, Moran, Hanna, Faghfoury, Maureen, Thivierge-Southidara, Mathieu, Courchesne, Steven, Bonneau, Michel, Carrier, Margaret, Henri, Graham, Kasper, Saly, Halawa, Shirley Xue, Jiang, Caterina, Masino, Michelle, Turcotte, Chloé, Thabet, Melissa, Phuong, Glara, Rhee, Phillip, Tsang, Olwyn, Foley, Ryan, Gotfrit, Laura, Zuccaro, Vladimir, Contreras-Dominguez, Robert, Bell, Safaa El, Bialy, Mohammad, Jay, John, Leddy, Christopher, Ramnanan, Yamilee, Hebert, Dalia limor, Karol, Neraj, Manhas, Rebecca, Correia, Lindsay, Klea, Graham, Campbell, Andrew, Costa, Linda, Wang, Stephanie, Dizon, Amel, Arnaout, Daniel, Andruchow, Shawn, Dowling, Kevin, Lonergan, Tom, Rich, Catherine, Patocka, Chantal, D'aoust-Bernard, Anne-Marie, Friesen, David, Adjo, Cassandra, Préfontaine, Chantal, Lemire, Hélène, Corriveau, Marie-Josée, April, Isabelle, Gaboury, Kristen, Bishop, Hasan, Hawilo, Ravi, Taneja, Mark, Goldszmidt, Lemay, Genevieve, Christopher, Zou, Meghan, McConnell, Patrick, Antonacci, Ann, Graillon, Joanie, Poirier, Kathleen, Ouellet, Valérie, Désilets, Marianne, Xhignesse, Christina, St-Onge, Ayelet, Kuper, Jacqueline, Hui, Keith, Wycliffe-Jones, Jocelyn, Lockyer, Craig, Campbell, Shanna, DiMillo, Debra, Sibbald, Diana C, Sanchez-Ramirez, Dori, Rainey, Jean-Sébastien, Renaud, Martine, Bourget, Kevin, Eva, Alexis Salvador, Loye, Matthew, Homer, Robert, Gagnon, Christian, Bourdy, Geneviève, Grégoire, Boris, Zevin, David, Barber, Robyn, Houlden, Eleftherios, Soleas, Lynn, Roberts, Richard van, Wylick, Katie, Evans, Stephen, Miller, Diane, MacKenzie, Gail, Creaser, Kim, Sponagle, Dana, Turcotte, Jessica, Clendenan, Margaret, Rauliuk, Wendy A, Stewart, Ellen M., Friedman, Larry, Laufman, Joan, Friedland, Anne, Gill, Vandana, Shah, Camila, Velez, Deborah, Friedman, Nicole-Ann, Shery, Rebecca, Maftoul, Vincent, Jobin, Bernard, Charlin, Annie, Descoteaux, Caroline, Lebel, Marc, Rouleau, Anouck, Sénécal, Tin, Ngo-Minh, Gilles, Brousseau, Michel, Leblanc, Fabien, Vadnais, Melissa, Nutik, Risa, Freeman, Nicole, Woods, Azadeh, Moaveni, Ruby, Alvi, Jared, Gleberzon, Michael, Lee-Poy, Sietske, Speerstra, Daniel, Livy, Cara, Dosman, Debbi, Andrews, Andrea Davila, Cervantes, Qi, Guo, Sheila, Gallagher, Sabrina, Eliason, Carol, Hodgson, Victoria-Marie, Cusson, Gladys, Bruyninx, Stefan de, Laplante, Fong, Chan, Tony, Seet, Janice, Yeung, Sharon, Leung, Reanne, Li, Justine, Saran, Amanda, Stalwick, Regina, Taylor-Gjevre, Shayna, Kulman-Lipsey, Joanne Leo, Leo, Samantha, Yang, Arshia, Javidan, Andrea, Levinson, Leslie, Nickell, Colleen, Brady, Michelle, Fischer, Shelley, Ross, Alexandra, Aquilina, Rob, Kiddell, Deena, Hamza, Theresa van der, Goes, Cheryl, Poth, Shirley, Schipper, Paige, Blumer, Michael, Claydon, Katey, Murray, Sabine, Schneidewind, Philip, Bintaro, Hadas, Haft, Sarah, Tajani, Bob, Bluman, Karen, MacDonell, Brenna, Lynn, Kathryn, Young, Bianca, Boicu, Oron, Frenkel, Richard, Pittini, Yuxin, Tu, Glenys, Babcock, Mariela, Ruetalo, Fernanda, Claudio, Christine, Polimeni, Paula, Rowland, Suzan, Schneeweiss, Shiphra, Ginsburg, Francesca, Luconi, Elizabeth, Wooster, Meron, Teferra, Andrea, Quaiattini, Clare, Cook, Lisa, Kokanie, Julie, Colquhoun, Susan, Cauti, Heather, Gaunt, Kari, Osmar, Joanne, Goldman, Brian, Wong, Lisha, Lo, Anne, Smeraglio, Takaia, Larsen, Kevin, Busche, Mike, Paget, Wayne, Woloschuk, Dominique, Piquette, Briseida, Mema, Christie, Lee, Alberto, Goffi, Debaroti Mullick, Borschel, Umberin, Najeeb, Danny, Panisko, Giovanna, Sirianni, Susan, Glover-Takahashi, Lise, Cusson, Suzanne, Laurin, Judith, Peranson, Helen, Batty, Ancy, Jacob, Abbas, Ghavam-Rassoul, Jana, Lazor, Jennifer, Bell, Lori, Innes, Eleanor, Good, Pete, Tonseth, Anthony, Sturgeon, Angelina, Marinkovic, Alasdair, Nazerali-Maitland, Jennifer, Railer, Denise, Stockley, Leslie, Flynn, Amber, Hastings-Truelove, Alicia, Hussain, Cary, Cuncic, James, Tessaro, Harp, Nagi, Allison, Nakanishi, Aman, Nijjar, Douglas, Myhre, Rebecca, Malhi, Jodie, Ornstein, Molly, Whalen-Browne, Sonya, Lee, Sudha, Koppula, Stephen, Mintsioulis, Maureen, Topps, Sarah, Jacobs, Jennifer, Wyman, Ethan, Cohen, Anne, Wideman, Andrea, David, Mira, Shuman, Heather, Zimcik, Marcus, Law, Jennifer, McCabe, Stuart, Murdoch, Mandy, Esliger, Lara, Hazelton, Heather, Milliken, Kim, Good, Aditya, Nidumolu, Kuo-Hsing, Kuo, Joyce, Leo, David, Topps, Marise, Lombard, King, Keely, Frances, Kilbertus, Susan, Robinson, Sayra, Cristancho, Sarah, Burm, Stella, Ng, Lori, Nemoy, Filomena, Meffe, Linda, Moscovitch, Catherine, Bishop, Sabina, Fella, Nirmala, Chandrasekaran, Sylvie, Grosjean, Luc, Bonneville, Richard, Waldolf, Isaac, Nahon-Serfaty, Julianna, Caon, Stuart, McAdam, Tasha, Kulai, Babar, Haroon, Nicholas, Fairbridge, Vernon, Curran, Diana, Deacon, Karen, Sauve, Alison, Greig, Sue, Murphy, Riley, Louie, Joseph, Anthony, Toi, Harris, Erik, Malmberg, Katie, Marchington, Warren, Lewin, Susan, Love, Lisa, Bonang, Jacqueline, Torti, Ali, Inayat, Hamza, Inayat, Wael, Haddara, Nabil, Sultan, Emmanuelle, Careau, Marie-Claire, Bérubé, Émélie, Provost, Julien, Poitras, Judith, Boileau, Maria, Cherba, Tamara, Vesel, Grace, Wang, Maria, Blanco, Emma, Ernst, Leah, Walker, Rebecca, Howse, Rebekah, Eatmon, Yan, Chow, Kate, Campbell, Claudia, Hopkins, Andrea, Keesey, Isabelle, Burnier, Marie Hélène, Chomienne, Diane, Bouchard-Lamothe, Andrea, Davila-Cervantes, Marghalara, Rashid, Karen, Cook, Chelsea, Jalloh, Roger, Berrington, Nina, Condo, Felicien, Rubayita, Ian, Whetter, Jill, Konkin, Daniel, Lemoine, Darren, Nichols, Ute, Hauck, Amanda, Bell, Karl, Stobbe, Larry W., Chambers, Vesa, Basha, Jessie, Brazier, Delia, Dragomir, Meghan, Glibbery, Hannah, Kearney, Alison, Knapp, Daniel, Levin, Dyon, Tucker, Seddiq, Weera, Jorin, Lukings, Karen, Pinder, Jason, Ford, Charles, Penner, Jean, Ouellet, Elise, Martel, Sébastien, Turgeon, Alexandra, Dubé-Louber, Julie, Fortin, Raymond, Thibodeau, Mathieu, Pelletier, Diane, Comeau, Claudine, Parent, Angela, Coderre-Ball, Jessica, Baumhour, Iris, Ko, Vittoria, Zubani, Audrey, L'Espérance, Taryn, Taylor

Publikováno v: Canadian Medical Education Journal

Background/Purpose: Virtual dissection is performed with CT scans on near life-size touchscreens, which function like hospital radiology workstations. Students work together to manipulate the data and perform their dissection. The purpose of this stu

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=pmc_________::ac302038eda9e49dd4f91b2ebdde352e
http://europepmc.org/articles/PMC7162311

Illness intrusiveness and subjective well-being in patients with glioblastoma

Autor: Warren P. Mason, Gerald M. Devins, Natalie Jewitt, Kim Edelstein, Linda Coate, Christine Massey

Publikováno v: Journal of Neuro-Oncology. 126:127-135

Glioblastoma (GBM) is the most common adult CNS malignancy but its impact on quality of life (QOL) is poorly understood. In other patient populations, illness intrusiveness (the extent to which disease and treatment disrupts valued activities and int

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::aece3a1fca757b2e145173dbcd5b1f25
https://doi.org/10.1007/s11060-015-1943-6

DIAGNOSTIC SLEEP STUDIES IN CHILDREN WITH MEDICAL COMPLEXITY: DO THEY CHANGE MANAGEMENT?

Autor: Natalie Jewitt, Indra Narang, Julia Orkin, Reshma Amin, Eyal Cohen, Suhail Al-Saleh

Publikováno v: Paediatrics & Child Health. 22:e5-e5

Children with medical complexity (CMC) can be described by four characteristics: a chronic complex medical condition, severe functional limitations, substantial healthcare needs, and high healthcare utilization. CMC and their families are faced with

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::136e995c8b46912ec83105b69b538890
https://doi.org/10.1093/pch/pxx086.010