Changes in work and adequacy of financial resources during COVID-19 among people with systemic sclerosis: A Scleroderma Patient-centered Intervention Network study.

Autor: Adams C; Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada.; Department of Psychiatry, McGill University, Montreal, QC, Canada., Nassar EL; Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada.; Department of Psychology, McGill University, Montreal, QC, Canada., Carrier ME; Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada., Kwakkenbos L; Department of Clinical Psychology, Behavioural Science Institute, Radboud University, Nijmegen, The Netherlands.; Department of IQ Health, Radboud University Medical Center, Nijmegen, The Netherlands.; Centre for Mindfulness, Department of Psychiatry, Radboud University Medical Center, Nijmegen, The Netherlands., Henry RS; Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada.; Department of Psychiatry, McGill University, Montreal, QC, Canada., Virgili-Gervais G; Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada., Hu S; Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada., Bartlett SJ; Department of Medicine, McGill University, Montreal, QC, Canada.; The Research Institute of the McGill University Health Centre, Montreal, QC, Canada., Fortuné C; Ottawa Scleroderma Support Group, Ottawa, ON, Canada., Gietzen A; National Scleroderma Foundation, Tri-State Chapter, Binghamton, NY, USA., Gottesman K; National Scleroderma Foundation, Los Angeles, CA, USA., Guillot G; Sclérodermie Québec, Montreal, QC, Canada., Hudson M; Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada.; Department of Medicine, McGill University, Montreal, QC, Canada., Lawrie-Jones A; Scleroderma Australia, Melton, VIC, Australia.; Scleroderma Victoria, Fitzroy, VIC, Australia., Lewis N; The Scleroderma Patient-centered Intervention Network, Montreal, QC, Canada., Malcarne V; Department of Psychology, San Diego State University, San Diego, CA, USA.; San Diego State University and University of California, San Diego, CA, USA., Mayes MD; University of Texas McGovern School of Medicine, Houston, TX, USA., Patten SB; Department of Community Health Sciences, University of Calgary, Calgary, AB, Canada.; Hotchkiss Brain Institute, University of Calgary, Calgary, AB, Canada.; O'Brien Institute for Public Health, University of Calgary, Calgary, AB, Canada., Richard M; Scleroderma Atlantic, Halifax, NS, Canada., Sauvé M; Scleroderma Society of Ontario, Hamilton, ON, Canada.; Scleroderma Canada, Hamilton, ON, Canada., Varga J; Division of Rheumatology, Department of Medicine, University of Michigan, Ann Arbor, MI, USA., Welling J; NVLE Dutch patient organization for systemic autoimmune diseases, Utrecht, The Netherlands., Wojeck R; The University of Rhode Island, Kingston, RI, USA., Mouthon L; Centre de Référence Maladies Autoimmunes Systémiques Rares d'Ile de France, Service de Médecine Interne, Hôpital Cochin, Assistance Publique-Hôpitaux de Paris (AP-HP), Paris, France.; APHP-CUP, Hôpital Cochin, Université de Paris, Paris, France., Benedetti A; Department of Medicine, McGill University, Montreal, QC, Canada.; The Research Institute of the McGill University Health Centre, Montreal, QC, Canada.; Department of Epidemiology, Biostatistics, and Occupational Health, McGill University, Montreal, QC, Canada.; Respiratory Epidemiology and Clinical Research Unit, McGill University Health Centre, Montreal, QC, Canada., Thombs BD; Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada.; Department of Psychiatry, McGill University, Montreal, QC, Canada.; Department of Psychology, McGill University, Montreal, QC, Canada.; Department of Medicine, McGill University, Montreal, QC, Canada.; Department of Epidemiology, Biostatistics, and Occupational Health, McGill University, Montreal, QC, Canada.

Publikováno v: Journal of scleroderma and related disorders [J Scleroderma Relat Disord] 2024 Oct; Vol. 9 (3), pp. 242-247. Date of Electronic Publication: 2024 Aug 05.

Experiences of telehealth during and after the COVID-19 pandemic and preferences for future care of people with systemic sclerosis: a cross-sectional study.

Autor: Nassar EL; Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC H3T 1E2, Canada; Department of Psychology, McGill University, Montreal, QC, Canada., Virgili-Gervais G; Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC H3T 1E2, Canada., Carrier ME; Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC H3T 1E2, Canada., Kwakkenbos L; Department of Clinical Psychology, Behavioural Science Institute, Radboud University, Nijmegen, Netherlands; IQ Health and Center for Mindfulness, Department of Psychiatry, Radboud University Medical Center, Nijmegen, Netherlands., Henry RS; Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC H3T 1E2, Canada; Department of Psychiatry, McGill University, Montreal, QC, Canada., Hu S; Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC H3T 1E2, Canada; Department of Epidemiology, Biostatistics, and Occupational Health, McGill University, Montreal, QC, Canada., Provencher S; Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC H3T 1E2, Canada; Department of Psychiatry, McGill University, Montreal, QC, Canada., Golberg M; Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC H3T 1E2, Canada., Bartlett SJ; Department of Medicine, McGill University, Montreal, QC, Canada; Research Institute, McGill University Health Centre, Montreal, QC, Canada., Mouthon L; Service de Médecine Interne, Centre de Référence Maladies Autoimmunes et Autoinflammatoires Systémiques Rares d'Ile de France, de l'Est et de l'Ouest, Hôpital Cochin, Assistance Publique-Hôpitaux de Paris, Paris, France., Patten SB; Department of Community Health Sciences, Hotchkiss Brain Institute, and O'Brien Institute for Public Health, University of Calgary, Calgary, AB, Canada., Varga J; Department of Medicine, Division of Rheumatology, University of Michigan, Ann Arbor, MI, USA., Benedetti A; Department of Epidemiology, Biostatistics, and Occupational Health, McGill University, Montreal, QC, Canada; Department of Medicine, McGill University, Montreal, QC, Canada; Research Institute, McGill University Health Centre, Montreal, QC, Canada; Respiratory Epidemiology and Clinical Research Unit, McGill University Health Centre, Montreal, QC, Canada., Thombs BD; Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC H3T 1E2, Canada; Department of Psychology, McGill University, Montreal, QC, Canada; Department of Psychiatry, McGill University, Montreal, QC, Canada; Department of Epidemiology, Biostatistics, and Occupational Health, McGill University, Montreal, QC, Canada; Department of Medicine, McGill University, Montreal, QC, Canada; Biomedical Ethics Unit, McGill University, Montreal, QC, Canada. Electronic address: brett.thombs@mcgill.ca.

Publikováno v: The Lancet. Rheumatology [Lancet Rheumatol] 2024 Oct; Vol. 6 (10), pp. e660-e663. Date of Electronic Publication: 2024 Jun 26.

Protocol for the development of a tool to map systemic sclerosis pain sources, patterns, and management experiences: a Scleroderma Patient-centered Intervention Network patient-researcher partnership.

Autor: Dal Santo T; Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada.; Department of Psychiatry, McGill University, Montreal, QC, Canada., Golberg M; Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada., Nassar EL; Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada.; Department of Psychology, McGill University, Montreal, QC, Canada., Carrier ME; Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada., Hu S; Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada.; Department of Epidemiology, Biostatistics, and Occupational Health, McGill University, Montreal, QC, Canada., Kwakkenbos L; Department of Clinical Psychology, Behavioural Science Institute, Radboud University, Nijmegen, the Netherlands.; Department of IQ Health, Radboud University Medical Center, Nijmegen, Netherlands.; Centre for Mindfulness, Department of Psychiatry, Radboud University Medical Center, Nijmegen, the Netherlands., Bartlett SJ; Department of Medicine, McGill University, Montreal, QC, Canada., Fox RS; College of Nursing, University of Arizona, Tucson, AZ, USA., Lee YC; Department of Medicine (Rheumatology) and Preventive Medicine, Northwestern University, Evanston, IL, USA., Varga J; Department of Internal Medicine, Division of Rheumatology), University of Michigan, Ann Arbor, Michigan, USA., Benedetti A; Department of Epidemiology, Biostatistics, and Occupational Health, McGill University, Montreal, QC, Canada.; Research Institute of the McGill University Health Centre, Montreal, QC, Canada.; Respiratory Epidemiology and Clinical Research Unit, McGill University Health Centre, Montreal, QC, Canada., Thombs BD; Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada. brett.thombs@mcgill.ca.; Department of Psychiatry, McGill University, Montreal, QC, Canada. brett.thombs@mcgill.ca.; Department of Psychology, McGill University, Montreal, QC, Canada. brett.thombs@mcgill.ca.; Department of Epidemiology, Biostatistics, and Occupational Health, McGill University, Montreal, QC, Canada. brett.thombs@mcgill.ca.; Department of Medicine, McGill University, Montreal, QC, Canada. brett.thombs@mcgill.ca.; Biomedical Ethics Unit, McGill University, Montreal, QC, Canada. brett.thombs@mcgill.ca.

Publikováno v: BMC rheumatology [BMC Rheumatol] 2024 Jun 21; Vol. 8 (1), pp. 28. Date of Electronic Publication: 2024 Jun 21.

Researcher and patient experiences of co-presenting research to people living with systemic sclerosis at a patient conference: content analysis of interviews.

Autor: Wurz A; School of Kinesiology, University of the Fraser Valley, 45190 Caen Ave, Chilliwack, BC, V2R 0N3, Canada. amanda.wurz@ufv.ca.; Faculty of Kinesiology, University of Calgary, Calgary, AB, Canada. amanda.wurz@ufv.ca., Ellis K; Faculty of Medicine, University of Toronto, Toronto, ON, Canada., Nordlund J; Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada., Carrier ME; Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada., Cook V; Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada., Gietzen A; National Scleroderma Foundation, Tri-State Chapter, New York, USA., Adams C; Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada.; Department of Psychiatry, McGill University, Montreal, QC, Canada., Nassar EL; Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada.; Department of Psychology, McGill University, Montreal, QC, Canada., Rice DB; Mood Disorders Treatment and Research Centre, St. Joseph's Healthcare Hamilton, Hamilton, ON, Canada.; Department of Psychiatry and Behavioural Neurosciences, McMaster University, Hamilton, ON, Canada., Fortune C; Ottawa Scleroderma Support Group, Ottawa, ON, Canada., Guillot G; Sclérodermie Québec, Longueuil, QC, Canada., Mieszczak T; Rochester Scleroderma Support Group, National Scleroderma Foundation, New York, USA., Richard M; Scleroderma Atlantic, Halifax, NS, Canada., Sauve M; Scleroderma Society of Ontario, Hamilton, ON, Canada., Thombs BD; Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada.; Department of Psychiatry, McGill University, Montreal, QC, Canada.; Department of Psychology, McGill University, Montreal, QC, Canada.; Department of Epidemiology, Biostatistics, and Occupational Health, McGill University, Montreal, QC, Canada.; Department of Medicine, McGill University, Montreal, QC, Canada.; Biomedical Ethics Unit, McGill University, Montreal, QC, Canada.

Publikováno v: Research involvement and engagement [Res Involv Engagem] 2024 Jan 27; Vol. 10 (1), pp. 13. Date of Electronic Publication: 2024 Jan 27.

Results from a living systematic review of the prevalence of mood and anxiety disorders and factors associated with symptoms in systemic sclerosis.

Autor: Nassar EL; Lady Davis Institute for Medical Research, Jewish General Hospital, 3755 Cote Ste Catherine Road, Pavilion H4.83, Montreal, QC, H3T 1E2, Canada.; Department of Psychiatry, McGill University, Montreal, QC, Canada., Abdulkareem DA; Lady Davis Institute for Medical Research, Jewish General Hospital, 3755 Cote Ste Catherine Road, Pavilion H4.83, Montreal, QC, H3T 1E2, Canada., Thombs BD; Lady Davis Institute for Medical Research, Jewish General Hospital, 3755 Cote Ste Catherine Road, Pavilion H4.83, Montreal, QC, H3T 1E2, Canada. brett.thombs@mcgill.ca.; Department of Psychiatry, McGill University, Montreal, QC, Canada. brett.thombs@mcgill.ca.; Department of Epidemiology, Biostatistics, and Occupational Health, McGill University, Montreal, QC, Canada. brett.thombs@mcgill.ca.; Department of Psychology, McGill University, Montreal, QC, Canada. brett.thombs@mcgill.ca.; Department of Medicine, McGill University, Montreal, QC, Canada. brett.thombs@mcgill.ca.; Biomedical Ethics Unit, McGill University, Montreal, QC, Canada. brett.thombs@mcgill.ca.

Publikováno v: Scientific reports [Sci Rep] 2023 Mar 30; Vol. 13 (1), pp. 5181. Date of Electronic Publication: 2023 Mar 30.