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Akademický článek

Current Methods of Newborn Screening Follow-Up for Sickle Cell Disease Are Highly Variable and without Quality Assurance: Results from the ENHANCE Study

Autor: Najibah Galadanci, Shannon Phillips, Alyssa Schlenz, Nataliya Ivankova, Julie Kanter

Publikováno v: International Journal of Neonatal Screening, Vol 10, Iss 1, p 22 (2024)

Newborn screening (NBS) for sickle cell disease (SCD) has significantly improved childhood survival but there are still gaps resulting in delayed care for affected infants. As a state-run program, there are no national quality assurance programs to e

Externí odkaz: https://doaj.org/article/beeee6c2633748b8a28cca252c1d9aeb

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Akademický článek

Evaluating the Discriminatory Ability of the Sickle Cell Data Collection Program’s Administrative Claims Case Definition in Identifying Adults With Sickle Cell Disease: Validation Study

Autor: Ashima Singh, Marci K Sontag, Mei Zhou, Mahua Dasgupta, Tessa Crume, Morgan McLemore, Najibah Galadanci, Eldrida Randall, Nicole Steiner, Amanda M Brandow, Kathryn Koch, Joshua J Field, Kathryn Hassell, Angela B Snyder, Julie Kanter

Publikováno v: JMIR Public Health and Surveillance, Vol 9, p e42816 (2023)

BackgroundSickle cell disease (SCD) was first recognized in 1910 and identified as a genetic condition in 1949. However, there is not a universal clinical registry that can be used currently to estimate its prevalence. The Sickle Cell Data Collection

Externí odkaz: https://doaj.org/article/51153b4dc3cd4bc1a0b470e84e02cfcf

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Akademický článek

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