Zobrazeno 1 - 10
of 137
pro vyhledávání: '"Mona L Martin"'
Autor:
Masoom Priyadarshini, Zaneta Balantac, Simran K Tiwana, Shweta S Bapat, Sean Garrison, Mona L Martin
Publikováno v:
HemaSphere, Vol 7, p e023224f (2023)
Externí odkaz:
https://doaj.org/article/5c3cc3480cc644fb9f3c8425085178e2
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 17, Iss 1, Pp 1-12 (2022)
Abstract Background Hereditary angioedema (HAE) is a genetic disorder characterized by re-occurring swelling episodes called “attacks,” usually in the limbs, face, airways, and intestinal tract. New prophylactic therapies have reduced the frequen
Externí odkaz:
https://doaj.org/article/6940efa64c254708be498255ba7458ec
Autor:
William R. Lenderking, Milena Anatchkova, Robin Pokrzywinski, Anne Skalicky, Mona L. Martin, Heather Gelhorn
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 5, Iss 1, Pp 1-7 (2021)
Abstract Background There has been a growing emphasis on health-related quality of life (HRQoL) as an important outcome in rare disease drug development, although its assessment may be useful outside the drug development context, including in clinica
Externí odkaz:
https://doaj.org/article/33e20763b7ad4099b3574a7557381c8e
Autor:
Kelly P. McCarrier, Mariam Hassan, Paul Hodgkins, Ellison Suthoff, Lisa J. McGarry, Mona L. Martin
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 4, Iss 1, Pp 1-11 (2020)
Abstract Background Patients with cystic fibrosis (CF) experience significant disease burden, including progressive pulmonary decline and reduced survival. This multicenter qualitative study was conducted to develop a new patient-reported outcome (PR
Externí odkaz:
https://doaj.org/article/4bc2b40a2e1f48d4b5732dfa8e11c7a8
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 3, Iss 1, Pp 1-11 (2019)
Abstract Purpose To conduct qualitative interviews to evaluate and refine the Itch Diary (ID) and weekly version of the PBC-40 in patients with itching associated with primary biliary cholangitis (PBC). Methods Twenty adults with self-reported PBC di
Externí odkaz:
https://doaj.org/article/a10508c01d354872b5114b144163df8e
Autor:
Catherine Acquadro, Donald L. Patrick, Sonya Eremenco, Mona L. Martin, Dagmara Kuliś, Helena Correia, Katrin Conway, on behalf of the International Society for Quality of Life Research (ISOQOL) Translation and Cultural Adaptation Special Interest Group (TCA-SIG)
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 2, Iss 1, Pp 1-11 (2018)
Abstract This paper presents emerging Good Practices for Translatability Assessment (TA) of Patient-Reported Outcome (PRO) Measures. The ISOQOL Translation and Cultural Adaptation Special Interest Group (TCA-SIG) undertook the review of several TA ap
Externí odkaz:
https://doaj.org/article/98fc6d8727a940e99737b2af3afe64a3
Autor:
Thorin L. Geister, Donald M. Bushnell, Jie Yang, Yuqiong Zhang, Mona L. Martin, Alev Heilbronn, Zhenhuan Liu
Publikováno v:
Health and Quality of Life Outcomes, Vol 15, Iss 1, Pp 1-13 (2017)
Abstract Background The Questionnaire on Pain caused by Spasticity (QPS) is a modular patient- and observer-reported outcome measure of spasticity-related pain (SRP) in children with cerebral palsy (CP). Originally developed for an English-speaking p
Externí odkaz:
https://doaj.org/article/db735d8572374c6d9460c289270cf29a
Publikováno v:
Health and Quality of Life Outcomes, Vol 15, Iss 1, Pp 1-10 (2017)
Abstract Background The aim of this study was to explore the need for a new disease-specific patient reported outcome (PRO) measure for use in clinical trials of drugs designed to target the underlying causes of polycystic ovary syndrome (PCOS), and
Externí odkaz:
https://doaj.org/article/54c107511c4844aab91f2c93910b1151
Publikováno v:
Quality of Life Research. 31:1147-1155
Purpose Immunotherapy is an evolving therapeutic approach for non-small cell lung cancer (NSCLC). This study explored factors involved in patients’ perceptions about reporting or not reporting treatment-related symptoms experienced while undergoing
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::b55da5b4511d44656806a8d158f42b06
https://doi.org/10.1007/s11136-021-02966-3
https://doi.org/10.1007/s11136-021-02966-3
Publikováno v:
Quality of Life Research
Purpose To describe symptoms and side effects experienced by patients with advanced non-small cell lung cancer (NSCLC), assess how patients allocate sensations (i.e. symptoms or side effects) to either the disease or its treatment, and evaluate how p
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::ff4b24b9b029487a4d7653f943162d27
https://doi.org/10.1007/s11136-021-02882-6
https://doi.org/10.1007/s11136-021-02882-6