Zobrazeno 1 - 10
of 86
pro vyhledávání: '"Molly McFatrich"'
Autor:
Dandan Chen, Christina K. Zigler, Li Lin, Nicole Lucas, Molly McFatrich, Jennifer Panagoulias, Allyson Berent, Bryce B. Reeve
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 8, Iss 1, Pp 1-7 (2024)
Abstract Aims Caregivers rate improved communication ability as one of the most desired outcomes for successful interventions for individuals with Angelman syndrome (AS). When measuring communication ability in clinical trials, the reliability of suc
Externí odkaz:
https://doaj.org/article/7c1ba299b85e4ea292481cd5df58de30
Autor:
Timothy J. Amrhein, Molly McFatrich, Kate Ehle, Michael D. Malinzak, Linda Gray, Peter G. Kranz, E. Hope Weant, Christina K. Zigler
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 7, Iss 1, Pp 1-9 (2023)
Abstract Background & objectives Spontaneous intracranial hypotension (SIH) is an underdiagnosed and debilitating condition caused by a spinal cerebrospinal fluid (CSF) leak. Although SIH can lead to substantial morbidity and disability, little data
Externí odkaz:
https://doaj.org/article/becc404d0f2240629c5bd1cd3220f467
Autor:
Kristin M. Schroeder, Tyler Rizzieri, Ryan R. Lion, Norbert Mtenga, Mwitasrobert Gisiri, Molly McFatrich, Bryce B. Reeve
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 7, Iss 1, Pp 1-8 (2023)
Abstract Background The pediatric patient-reported outcomes version of the common terminology criteria for adverse event measure was developed and validated for use in pediatric cancer clinical trials to better capture the symptom experiences through
Externí odkaz:
https://doaj.org/article/f9a6c48826494a328d88fcd230f6e379
Autor:
Bin Huang, Lauren Wilson, Maria Pisu, Tomi Akinyemiju, Andrew Berchuck, Ashwini Joshi, Kevin Ward, Margaret Liang, April Deveaux, Anjali Gupta, Malcolm Bevel, Chioma Omeogu, Onyinye Ohamadike, Molly McFatrich, Erin Daniell, Laura Jane Fish, Maria Schymura, Arnold L Potosky
Publikováno v:
BMJ Open, Vol 11, Iss 10 (2021)
Externí odkaz:
https://doaj.org/article/b63e63f5ff3442149baec5529be067c4
Autor:
Christina K. Zigler, Nicole Lucas, Molly McFatrich, Kelly L. Gordon, Harrison N. Jones, Allyson Berent, Jennifer Panagoulias, Paula Evans, Bryce B. Reeve
Publikováno v:
American Journal on Intellectual and Developmental Disabilities. 128:185-203
Communication deficits have a substantial impact on quality of life for individuals with Angelman syndrome (AS) and their families, but limited qualitative work exists to support the necessary content of measures aiming to assess communication for th
Autor:
Theresa M. Coles, Nicole Lucas, Molly McFatrich, Debra Henke, Jennifer L. Ridgeway, Emma M. Behnken, Kevin Weinfurt, Bryce B. Reeve, Amy Corneli, Shannon M. Dunlay, John A. Spertus, Li Lin, Ileana L. Piña, Fraser D. Bocell, Michelle E. Tarver, Heidi Dohse, Anindita Saha, Brittany Caldwell
Publikováno v:
Quality of Life Research. 32:841-852
The purpose of this study is to evaluate potential gender-based differences in interpreting the Kansas City Cardiomyopathy Questionnaire (KCCQ-23) and to explore if there are aspects of health-related quality of life (HRQOL) not captured by the KCCQ-
Autor:
Dale J. Langford, Jennifer S. Gewandter, Dagmar Amtmann, Bryce B. Reeve, Amy Corneli, Kevin McKenna, Teresa Swezey, Molly McFatrich, Mark P. Jensen, Dennis C. Turk, Robert H. Dworkin
Publikováno v:
The Journal of Pain. 23:1945-1957
Measures of pain intensity (eg, numeric rating scales [NRS]) are widely used in clinical research and practice. While these measures have evidence for validity and reliability, poor standardization of instructions, and response options limits precisi
Autor:
Janice S. Withycombe, Molly McFatrich, Pamela S. Hinds, Antonia Bennett, Li Lin, Scott H. Maurer, Nicole R. Lucas, Courtney M. Mann, Sharon M. Castellino, Justin N. Baker, Bryce B. Reeve
Publikováno v:
Cancer Nurs
BACKGROUND: Multiple symptoms occur in children receiving cancer therapy. Decreased steps-per-day may be associated with burdensome symptoms. OBJECTIVE: To evaluate associations between self-reported symptoms (pain interference, anxiety, depressive s
Publikováno v:
Support Care Cancer
Background Fatigue, pain, and anxiety, symptoms commonly experienced by children with cancer, may predict pediatric symptom suffering profile membership that is amenable to treatment. Methods Three latent profiles (Low, Medium, and High symptom suffe
Autor:
Bryce B. Reeve, Alexy Hernandez, David R. Freyer, Lauri A. Linder, Leanne Embry, Allison Barz Leahy, Justin N. Baker, Jennifer W. Mack, Molly McFatrich, Debra M. Henke, Catriona Mowbray, Shana S. Jacobs, Scott H. Maurer, Stuart H. Gold, Pamela S. Hinds
Publikováno v:
Pediatric Blood & Cancer. 70