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A civil society view of rare disease public policy in six Latin American countries

Autor: Mo Mayrides, Eva Maria Ruiz de Castilla, Silvina Szelepski

Publikováno v: Orphanet Journal of Rare Diseases, Vol 15, Iss 1, Pp 1-12 (2020)

Abstract Patients with rare diseases across the world struggle to access timely diagnosis and state-of-the-art treatment and management of their conditions. Several recently published reviews highlight the importance of country efforts to address rar

Externí odkaz: https://doaj.org/article/4d8b5e534f0e49f69727e1c9b344b3c2

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A civil society view of rare disease public policy in six Latin American countries

Autor: Eva Maria Ruiz de Castilla, Mo Mayrides, Silvina Szelepski

Publikováno v: Orphanet Journal of Rare Diseases
Orphanet Journal of Rare Diseases, Vol 15, Iss 1, Pp 1-12 (2020)

Patients with rare diseases across the world struggle to access timely diagnosis and state-of-the-art treatment and management of their conditions. Several recently published reviews highlight the importance of country efforts to address rare disease

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::365350de05e3984e47df0d78c4129a3b
http://europepmc.org/articles/PMC7047392

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