Creation of an Electronic Resource Repository for Differences of Sex Development (DSD): Collaboration Between Advocates and Clinicians in the DSD-Translational Research Network

Autor: Meilan M, Rutter, Miriam, Muscarella, Janet, Green, Gnendy, Indig, Alexandra, von Klan, Kimberly, Kennedy, Erica M, Weidler, Margaret, Barrett, David E, Sandberg

Publikováno v: Sex Dev

Introduction: People with differences of sex development (DSD) and their families need education about these conditions while receiving emotional and peer support to participate in shared decision-making, reduce social isolation, and optimize physica

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::8510c9d8560ace66c75f2191cf0b4ab2
https://pubmed.ncbi.nlm.nih.gov/35636406

Global Application of the Assessment of Communication Skills of Paediatric Endocrinology Fellows in the Management of Differences in Sex Development Using the ESPE E-Learning.Org Portal

Autor: Stenvert L. S. Drop, Alina German, Miriam Muscarella, Raja Brauner, Wilma Oostdijk, Jean-Pierre Chanoine, Sam T. H. Reerds, Kristen A Neville, Xiaoping Luo, Nalini S. Shah, Ellie Magrite, Antonio Balsamo, Berenice B. Mendonca, Patricia Y. Fechner, Shereen Abdelgaffar, Martijn Kuiper, Laura Kranenburg, Kalinka Grijpink, Paul-Martin Holterhus, Asma Deeb, Anders Juul, Rodolfo Rey, Martine Cools, Anna Nordenström, Julie Alderson, Meilan M. Rutter

Publikováno v: Hormone Research in Paediatrics, 88(2), 127-139. Karger
Hormone Research in Paediatrics, 88(2), 127-139
Repositório Institucional da USP (Biblioteca Digital da Produção Intelectual)
Universidade de São Paulo (USP)
instacron:USP
CONICET Digital (CONICET)
Consejo Nacional de Investigaciones Científicas y Técnicas
instacron:CONICET

Background: Information sharing in chronic conditions such as disorders of/differences in sex development (DSD) is essential for a comprehensive understanding by parents and patients. We report on a qualitative analysis of communication skills of fel

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::9bdcdc6907f2daf08e2bb7573fb10238
https://pure.eur.nl/en/publications/74d3f8d1-93ce-411a-82e2-48b38ca12fd3

Transition to Adult Care in Persons With Disorders of Sexual Development: The Role of the Gynecologist

Autor: Miriam Muscarella, Veronica Gomez-Lobo, Anne Marie Amies Oelschlager

Publikováno v: Obstetrics and gynecology. 126(4)

Disorders of sexual development (DSD) are a spectrum of conditions diagnosed in infancy resulting from atypical development of the external genitalia, in adolescence resulting from atypical pubertal development, or in adulthood as a result of inferti

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::281f225fbcb618d8f20ef44e6048e270
https://pubmed.ncbi.nlm.nih.gov/26348185

Global Application of Disorders of Sex Development-Related Electronic Resources: e-Learning, e-Consultation and e-Information Sharing

Autor: Laura Kranenburg-van Koppen, Kalinka Grijpink-van den Biggelaar, Stenvert L. S. Drop, Miriam Muscarella

The past 20 years have seen proliferation of electronic (e) resources that promote improved understanding of disorders of sex development (DSD): e-learning for physicians and trainees, e-consultation between clinicians, and e-information for families

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::77fb7e90a627ca85e4efeb8ec551dd26
https://doi.org/10.1159/000363674