The child’s perception on monitoring inflammatory bowel disease activity

Autor: Johanna H. van der Lee, Marc A. Benninga, Elsa A. van Wassenaer, Mira S. Staphorst, Renée R. van der Klift, Bart G. P. Koot

Publikováno v: European journal of pediatrics. Springer Verlag

To determine the perception of children with inflammatory bowel disease (IBD) regarding monitoring tests, we first compared the reported discomfort and patient perspective during gastro-intestinal (GI)-endoscopy, magnetic resonance entrography (MRE),

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::7c889a653737ba21d4b18bb6f944ee8a
https://doi.org/10.1007/s00431-021-04315-5

Young children experience little emotional burden during invasive procedures in asthma research

Autor: Marc P. van der Schee, Simone Hashimoto, Mira S. Staphorst, Amit Vos, Anne M. Padding, Wim M. C. van Aalderen, Niels W. Rutjes

Publikováno v: European journal of pediatrics, 178(2), 207-211. Springer Verlag
European Journal of Pediatrics

Research in children should strike the right balance between protecting underage study subjects and advancing the medical field. This study gives insight into the emotional burden that common invasive research procedures in asthma research have on yo

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https://pure.amc.nl/en/publications/young-children-experience-little-emotional-burden-during-invasive-procedures-in-asthma-research(f7e03de1-d76d-435c-9e81-4beb5f3533fd).html

The child's perspective on discomfort during medical research procedures

Autor: Suzanne van de Vathorst, Jan J. V. Busschbach, Karin J M de Jong, Reinier Timman, Vincent V. W. Jaddoe, Hyke G Tamminga, Jan Passchier, Mariëlle W. Pijnenburg, Mira S. Staphorst, Johannes B. van Goudoever, Marc A. Benninga, Margriet Bisschoff, Irma Bon, Eric G. Haarman, Lissy de Ridder, L. Reneman, Henning Tiemeier, Kay Diederen, Johan C. de Jongste, Jaap Oosterlaan, Angelika Kindermann, Marsh Königs, Joke A. M. Hunfeld

Publikováno v: BMJ Open, 7(7):e016077. BMJ Publishing Group
BMJ Open, 7(7):e016077, 1-9. BMJ Publishing Group
Staphorst, M S, Benninga, M A, Bisschoff, M, Oosterlaan, J & Passchier, J 2017, ' The child's perspective on discomfort during medical research procedures: a descriptive study ', BMJ Open, vol. 7, no. 7, e016077, pp. 1-9 . https://doi.org/10.1136/ bmjopen-2017-016077
Staphorst, M S, Benninga, M A, Bisschoff, M, Bon, I, Busschbach, J J V, Diederen, K, Van Goudoever, J B, Haarman, E G, Hunfeld, J A M, Jaddoe, V V W, De Jong, K J M, De Jongste, J C, Kindermann, A, Königs, M, Oosterlaan, J, Passchier, J, Pijnenburg, M W, Reneman, L, Ridder, L D, Tamminga, H G, Tiemeier, H W, Timman, R & Van De Vathorst, S 2017, ' The child's perspective on discomfort during medical research procedures : A descriptive study ', BMJ Open, vol. 7, no. 7, e016077 . https://doi.org/10.1136/bmjopen-2017-016077
BMJ Open
BMJ open, 7(7). BMJ Publishing Group
Staphorst, M S, Benninga, M A, Bisschoff, M, Bon, I, Busschbach, J J V, Diederen, K, van Goudoever, J B, Haarman, E G, Hunfeld, J A M, Jaddoe, V V W, de Jong, K J M, de Jongste, J C, Kindermann, A, Königs, M, Oosterlaan, J, Passchier, J, Pijnenburg, M W, de Ridder, L, Tiemeier, H W, Timman, R & van de Vathorst, S 2017, ' The child's perspective on discomfort during medical research procedures : A descriptive study ', BMJ Open, vol. 7, no. 7, e016077 . https://doi.org/10.1136/bmjopen-2017-016077

Objective The evaluation of discomfort in paediatric research is scarcely evidence-based. In this study, we make a start in describing children's self-reported discomfort during common medical research procedures and compare this with discomfort duri

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::f285c5b5c52722e8a5d9a8614c0695d5
https://dare.uva.nl/personal/pure/en/publications/the-childs-perspective-on-discomfort-during-medical-research-procedures(0eac2f94-618b-4be7-8e55-2addb95fa49a).html

Are positive experiences of children in non-therapeutic research justifiable research benefits?

Autor: Suzanne van de Vathorst, Joke A. M. Hunfeld, Mira S. Staphorst

Publikováno v: Journal of Medical Ethics, 43(8), 530-534. BMJ Publishing Group

Background Conducting non-therapeutic research is ethically challenging because participation conveys risks and burden and no health benefit. In this paper, we report the positive experiences of a diverse group of healthy and ill children (6–18 yea

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::955be7862c5210f418ff0dd929157a88
https://pubmed.ncbi.nlm.nih.gov/27934773

Children's self reported discomforts as participants in clinical research

Autor: Jan Passchier, Johannes B. van Goudoever, Suzanne van de Vathorst, Mira S. Staphorst, Joke A. M. Hunfeld

Publikováno v: Staphorst, M S, Hunfeld, J A M, van de Vathorst, S, Passchier, J & van Goudoever, J B 2015, ' Children's self reported discomforts as participants in clinical research. ', Social Science and Medicine, vol. 142, pp. 154-162 . https://doi.org/10.1016/j.socscimed.2015.08.019
Social Science and Medicine, 142, 154-162. Elsevier Limited
Social science & medicine (1982), 142, 154-162. Elsevier Limited
Social Science & Medicine, 142, 154-162. Elsevier Ltd.

Introduction: There is little empirical evidence on children's subjective experiences of discomfort during clinical research procedures. Therefore, Institutional Review Boards have limited empirical information to guide their decision-making on disco

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::0ccf0b8013c0e64271cbca389a63e7d8
https://research.vumc.nl/en/publications/81860c74-2cea-43d4-a8d9-86db25b08e1a