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Patient-reported outcomes in multiple sclerosis: a prospective registry cohort study.

Autor: Lerede, Annalaura, Rodgers, Jeff, Middleton, Rod M., Hampshire, Adam, Nicholas, Richard

Publikováno v: Brain Communications; 2023, Vol. 5 Issue 4, p1-13, 13p

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The feasibility of collecting information from people with Multiple Sclerosis for the UK MS Register via a web portal: characterising a cohort of people with MS

Autor: Ford David V, Jones Kerina H, Middleton Rod M, Lockhart-Jones Hazel, Maramba Inocencio DC, Noble Gareth J, Osborne Lisa A, Lyons Ronan A

Publikováno v: BMC Medical Informatics and Decision Making, Vol 12, Iss 1, p 73 (2012)

Abstract Background A UK Register of people with Multiple Sclerosis has been developed to address the need for an increased knowledge-base about MS. The Register is being populated via: a web-based portal; NHS neurology clinical systems; and administ

Externí odkaz: https://doaj.org/article/129142fd54b745d580f8fb8c5b403115

The impact of smoking cessation on multiple sclerosis disease progression.

Autor: Rodgers J; Population Data Science, Swansea University Medical School, Swansea SA2 8PP, UK., Friede T; Department of Medical Statistics, University Medical Center Göttingen, Göttingen, Germany., Vonberg FW; Department of Cellular and Molecular Neuroscience, Imperial College London, London W12 0NN, UK., Constantinescu CS; Division of Clinical Neuroscience, University of Nottingham, Nottingham NG7 2UH, UK., Coles A; Cambridge Neuroscience, University of Cambridge, Cambridge CB2 3EL, UK., Chataway J; Queen Square Multiple Sclerosis Centre, Department of Neuroinflammation, UCL Queen Square Institute of Neurology, Faculty of Brain Sciences, University College London, London WC1B 5EH, UK.; National Institute for Health Research, University College London Hospitals, Biomedical Research Centre, London W1T 7HA, UK., Duddy M; Neurosciences, Newcastle upon Tyne Hospitals NHS Trust, Newcastle upon Tyne NE7 7DN, UK., Emsley H; Lancaster Medical School, Faculty of Health & Medicine, Lancaster University, Lancaster, UK.; Lancaster, UK & Department of Neurology, Lancashire Teaching Hospitals NHS Foundation Trust, Preston PR1 2HE, UK., Ford H; Centre for Neurosciences, Leeds Teaching Hospitals NHS Trust, Leeds General Infirmary, Leeds LS1 3EX, UK., Fisniku L; Brighton and Sussex University NHS Trust, Brighton BN1 6AG, UK., Galea I; Clinical Neurosciences, Clinical & Experimental Sciences, Faculty of Medicine, University of Southampton, Southampton SO17 1BJ, UK., Harrower T; Royal Devon and Exeter NHS Trust, Barrack Road, Exeter EX25DW, UK., Hobart J; Plymouth University Peninsula Schools of Medicine and Dentistry, Consultant Neurologist, University Hospitals Plymouth, Plymouth, Devon PL6 8BX, UK., Huseyin H; Luton and Dunstable University Hospital, Bedfordshire Hospitals NHS Foundation Trust, Luton LU4 0DZ, UK., Kipps CM; Clinical Neurosciences, Clinical & Experimental Sciences, Faculty of Medicine, University of Southampton, Southampton SO17 1BJ, UK., Marta M; Neurology-Southend University Hospital NHS Foundation Trust,Westcliff-on-SeaSS0 0RY, UK.; Blizard Institute, Royal London Hospital, Barts Health NHS Trust, London E1 1BB, UK., McDonnell GV; MS Clinic, Belfast City Hospital, BHSCT, Belfast BT9 7AB, UK., McLean B; The Royal Cornwall Hospitals NHS Trust, Treliske, Truro TR1 3LJ, UK., Pearson OR; Swansea Bay University Health Board, Swansea SA6 6NL, UK., Rog D; Manchester Centre for Clinical Neurosciences, Salford Royal NHS Foundation Trust, Salford M6 8HD, UK., Schmierer K; Blizard Institute, Royal London Hospital, Barts Health NHS Trust, London E1 1BB, UK.; Clinical Board Medicine (Neuroscience), Barts Health NHS Trust, The Royal London Hospital, London, UK., Sharrack B; Department of Neurology and NIHR Neurosciences Biomedical Research Centre, Sheffield Teaching Hospitals NHS Foundation Trust and University of Sheffield, Sheffield S10 2JF, UK., Straukiene A; Torbay and South Devon NHS Foundation Trust, Torquay TQ2 7AA, UK., Wilson HC; National Hospital for Neurology and Neurosurgery, London WC1H 3BG, UK., Ford DV; Population Data Science, Swansea University Medical School, Swansea SA2 8PP, UK., Middleton RM; Population Data Science, Swansea University Medical School, Swansea SA2 8PP, UK., Nicholas R; Population Data Science, Swansea University Medical School, Swansea SA2 8PP, UK.; Department of Cellular and Molecular Neuroscience, Imperial College London, London W12 0NN, UK.; Department of Visual Neuroscience, UCL Institute of Ophthalmology, London EC1V 9RL, UK.

Publikováno v: Brain : a journal of neurology [Brain] 2022 May 24; Vol. 145 (4), pp. 1368-1378.