Výsledky vyhledávání - "Michele Pritchard"

Managing Pandora’s Box: Familial Expectations around the Return of (Future) Germline Results

Autor: Liza-Marie Johnson, Belinda N. Mandrell, Chen Li, Zhaohua Lu, Jami Gattuso, Lynn W. Harrison, Motomi Mori, Annastasia A. Ouma, Michele Pritchard, Katianne M. Howard Sharp, Kim E. Nichols

Publikováno v: AJOB Empirical Bioethics. 13:152-165

Pediatric oncology patients are increasingly being offered germline testing to diagnose underlying cancer predispositions. Meanwhile, as understanding of variant pathogenicity evolves, planned reanalysis of genomic results has been suggested. Little

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::e8486fe06c89dc91c4ea197e1b6d4cfb
https://doi.org/10.1080/23294515.2022.2063994

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Knowledge Is Power: Benefits, Risks, Hopes, and Decision-Making Reported by Parents Consenting to Next-Generation Sequencing for Children and Adolescents with Cancer

Autor: Mary Caples, Jessica M. Valdez, Katianne M. Howard Sharp, Annastasia A. Ouma, Liza-Marie Johnson, Lynn W. Harrison, Kim E. Nichols, Jami S. Gattuso, Michele Pritchard, Belinda N. Mandrell

Publikováno v: Seminars in oncology nursing. 37(3)

Objectives To qualitatively describe parent perspectives of next-generation genomic sequencing (NGS) for their children with cancer, including perceived benefits, risks, hopes/expectations, and decision-making process when consenting or not consentin

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::52bf67c7ae3990840f8234aeb3497669
https://pubmed.ncbi.nlm.nih.gov/34127338

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Are we meeting the informational needs of cancer patients and families? Perception of physician communication in pediatric oncology

Autor: Deena R. Levine, Zhaohua Lu, Erik Liederbach, Holly Spraker-Perlman, Erica C. Kaye, Dave Wendler, Belinda N. Mandrell, Justin N. Baker, Michele Pritchard, Liza-Marie Johnson, April Sykes

Publikováno v: Cancer. 125:1518-1526

BACKGROUND High-quality oncology care is marked by skillful communication, yet little is known about patient and family communication perceptions or content preferences. Our study sought to elicit pediatric oncology patient and parent perceptions of

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::31a959940dc90dace15bf9600b57a4aa
https://doi.org/10.1002/cncr.31937

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Sleep and mood during hospitalization for high-dose chemotherapy and hematopoietic rescue in pediatric medulloblastoma

Autor: Belinda N. Mandrell, Michele Pritchard, Pamela S. Hinds, Valerie McLaughlin Crabtree, Chenghong Li, Deo Kumar Srivastava, Danielle M. Graef

Publikováno v: Psycho-Oncology. 27:1847-1853

OBJECTIVE: Disrupted sleep is common in pediatric cancer, which is associated with psychological distress and may impact neural recovery. Information regarding sleep during pediatric brain tumor treatment is limited. This study aimed to describe obje

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::5f5e27e4e387d6805950dfc89f4a98ec
https://doi.org/10.1002/pon.4737

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Speaking genomics to parents offered germline testing for cancer predisposition: Use of a 2-visit consent model

Autor: Jessica M. Valdez, Michele Pritchard, Rose B. McGee, Elsie L. Gerhardt, Liza-Marie Johnson, Regina Nuccio, Lynn W. Harrison, Zhaohua Lu, Belinda N. Mandrell, Niki Jurbergs, April Sykes, Stacy Hines-Dowell, Justin N. Baker, Emily Quinn, Kim E. Nichols, Jami S. Gattuso, Annastasia A. Ouma, Kayla V. Hamilton

Publikováno v: Cancer. 125(14)

BACKGROUND Patients with cancer are increasingly offered genomic sequencing, including germline testing for cancer predisposition or other disorders. Such testing is unfamiliar to patients and families, and clear communication is needed to introduce

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::7409ff7bdf3a4c4eb98b49a6732934f8
https://pubmed.ncbi.nlm.nih.gov/30901077

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Are we meeting the informational needs of cancer patients and families? Perception of physician communication in pediatric oncology

Autor: Deena R, Levine, Erik, Liederbach, Liza-Marie, Johnson, Erica C, Kaye, Holly, Spraker-Perlman, Belinda, Mandrell, Michele, Pritchard, April, Sykes, Zhaohua, Lu, Dave, Wendler, Justin N, Baker

Publikováno v: Cancer

High-quality oncology care is marked by skillful communication, yet little is known about patient and family communication perceptions or content preferences. Our study sought to elicit pediatric oncology patient and parent perceptions of early cance

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=pmid________::b1f65eaed154222abe88f17158d13f62
https://pubmed.ncbi.nlm.nih.gov/30602057

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Patients’ and Parents’ Needs, Attitudes, and Perceptions About Early Palliative Care Integration in Pediatric Oncology

Autor: Deborah V. Gibson, April Sykes, David Wendler, Justin N. Baker, Michele Pritchard, Belinda N. Mandrell, Heather J. Symons, Deena R. Levine

Importance Early palliative care integration for cancer patients is now touted as the optimal care model, yet significant barriers often prevent its implementation. A perceived barrier, especially for pediatric oncology patients, is the notion that p

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::7f02e0b234842c29a993a413931f49c2
https://europepmc.org/articles/PMC5824292/

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Excessive daytime sleepiness and sleep-disordered breathing disturbances in survivors of childhood central nervous system tumors

Autor: Merrill S. Wise, Kirsten K. Ness, Robert Schoumacher, Valerie McLaughlin Crabtree, Thomas E. Merchant, Michele Pritchard, Belinda N. Mandrell, Nancy West, Brannon Morris

Publikováno v: Pediatric Blood & Cancer. 58:746-751

Background Improvements in treatment and management for pediatric central nervous system (CNS) tumors have increased survival rates, allowing clinicians to focus on long-term sequelae, including sleep disorders. The objective of this study was to des

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::5e919e8807d6a2f485ef355837851d3a
https://doi.org/10.1002/pbc.23311

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Bereaved Parents' Perceptions About When Their Child's Cancer-Related Death Would Occur

Autor: Wayne L. Furman, Pamela S. Hinds, James O. Okuma, Michele Pritchard, Justin N. Baker, Elizabeth Burghen, Brent Powell, Nancy West, Sheri L. Spunt, Javier R. Kane, Deo Kumar Srivastava, Jami S. Gattuso

Publikováno v: Journal of Pain and Symptom Management. 38:561-567

Parents of terminally ill children with cancer frequently ask clinicians when their child will die. Such information helps parents prepare for the child's death. To identify how parents perceived when their child's cancer-related death would occur, w

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::3c97ecf7487e42607a99b7a478b86d96
https://doi.org/10.1016/j.jpainsymman.2009.01.005

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Autor: Pamela S. Hinds, Elizabeth Burghen, Brent Powell, Lisa H. Anderson, Wayne L. Furman, Deo Kumar Srivastava, Michele Pritchard, James O. Okuma

Publikováno v: Pediatrics. 121:e1301-e1309

OBJECTIVE. Studies of symptoms in children dying a cancer-related death typically rely on medical chart reviews or parental responses to symptom checklists. However, the mere presence of a symptom does not necessarily correspond with the distress it

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::95d0cbbd6ea4d089f1658023a199fc26
https://doi.org/10.1542/peds.2007-2681

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