COVID-PCD: a participatory research study on the impact of COVID-19 in people with primary ciliary dyskinesia

Autor: Eva S.L. Pedersen, Eugénie N.R. Collaud, Rebeca Mozun, Cristina Ardura-Garcia, Yin Ting Lam, Amanda Harris, Jane S. Lucas, Fiona Copeland, Michele Manion, Bernhard Rindlisbacher, Hansruedi Silberschmidt, Myrofora Goutaki, Claudia E. Kuehni

Publikováno v: ERJ Open Research, Vol 7, Iss 1 (2021)

COVID-PCD is a participatory study initiated by people with primary ciliary dyskinesia (PCD) who have an essential vote in all stages of the research from the design of the study to the recruitment of participants, and interpretation and communicatio

Externí odkaz: https://doaj.org/article/689388a382d74ad0b62d83d212e8d777

Nasal Nitric Oxide Measurement in Primary Ciliary Dyskinesia. A Technical Paper on Standardized Testing Protocols

Autor: Sharon D. Dell, Nadzeya Marozkina, Margaret W. Leigh, Milan J. Hazucha, Michele Manion, Adam J. Shapiro, Benjamin Gaston, Michael Glenn O’Connor

Publikováno v: Ann Am Thorac Soc

Nasal nitric oxide concentrations are extremely low in primary ciliary dyskinesia (PCD), and measurement of this nasal gas is recommended as a PCD diagnostic test in cooperative patients aged 5 years and older. However, nasal nitric oxide measurement

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::6ed3116c00091e6116cc2e44f933cedc
https://doi.org/10.1513/annalsats.201904-347ot

Variations in infection control practices suggest a need for guidelines in primary ciliary dyskinesia patient care

Autor: Ayse B. Caliskan, Amjad Horani, Michele Manion, Steven L. Brody

Publikováno v: Pediatric pulmonologyREFERENCES. 57(4)

Primary ciliary dyskinesis (PCD) is an autosomal recessive disorder associated with impaired mucociliary clearance caused by defects in ciliary structure and function. The major clinical feature of PCD is recurring or persistent respiratory tract inf

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::a6cd8f4662feaa76270c421059e77727
https://pubmed.ncbi.nlm.nih.gov/35043594

Variations in infection control practices suggest a need for guidelines in primary ciliary dyskinesia patient care

Autor: Ayse Caliskan, Amjad Horani, Michele Manion, Steven Brody

Primary ciliary dyskinesis (PCD) is an autosomal recessive disorder associated with impaired mucociliary clearance caused by defects in ciliary structure and function. The major clinical feature of PCD is recurring or persistent respiratory tract inf

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::1a400063013d10d23f4a37400e698bf3
https://doi.org/10.22541/au.163539450.02700095/v1

COVID-PCD: a participatory research study on the impact of COVID-19 in people with primary ciliary dyskinesia [protocol]

Autor: Amanda Harris, Cristina Ardura-Garcia, Jane S. Lucas, Michele Manion, Eugénie N.R. Collaud, Bernhard Rindlishbacher, Rebeca Mozun, Myrofora Goutaki, Claudia E. Kuehni, Eva Sl Pedersen, Yin Ting Lam, Fiona Copeland, Hansruedi Silberschmidt

Publikováno v: Pedersen, Eva S.L.; Collaud, Eugénie N.R.; Mozun, Rebeca; Ardura-Garcia, Cristina; Lam, Yin Ting; Harris, Amanda; Lucas, Jane S; Copeland, Fiona; Manion, Michele; Rindlisbacher, Bernhard; Silberschmidt, Hansruedi; Goutaki, Myrofora; Kuehni, Claudia E. (2021). COVID-PCD: a participatory research study on the impact of COVID-19 in people with primary ciliary dyskinesia [protocol]. ERJ Open Research, 7(1), 00843-2020. European Respiratory Society 10.1183/23120541.00843-2020
ERJ Open Research, Vol 7, Iss 1 (2021)
ERJ Open Research
article-version (VoR) Version of Record

COVID-PCD is a participatory study initiated by people with primary ciliary dyskinesia (PCD) who have an essential vote in all stages of the research from the design of the study to the recruitment of participants, and interpretation and communicatio

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::be6882e55b18d832cb869019acb7bbfe
https://boris.unibe.ch/155657/1/Pedersen_ERJOpenRes_2021.pdf