Zobrazeno 1 - 10
of 49
pro vyhledávání: '"Michaela Dellenmark-Blom"'
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 18, Iss 1, Pp 1-7 (2023)
Abstract Background Children born with esophageal atresia experience feeding difficulties. This study investigates the association of feeding difficulties and generic health-related quality of life among children aged 2–7 and 8–17 years, born wit
Externí odkaz:
https://doaj.org/article/3e82918996174e3a94bdef09aa2ff4f5
Autor:
Michaela Dellenmark-Blom, Sofie Örnö Ax, Elin Öst, Jan F. Svensson, Ann-Marie Kassa, Linus Jönsson, Kate Abrahamsson, Vladimir Gatzinsky, Pernilla Stenström, AnnaMaria Tollne, Erik Omling, Helene Engstrand Lilja
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 17, Iss 1, Pp 1-16 (2022)
Abstract Background In 10–15% of children with esophageal atresia (EA) delayed reconstruction of esophageal atresia (DREA) is necessary due to long-gap EA and/or prematurity/low birth weight. They represent a patient subgroup with high risk of comp
Externí odkaz:
https://doaj.org/article/28b3acb31fe54d90ab89be65b2ad3a37
Autor:
Michaela Dellenmark-Blom, Kate Abrahamsson, Jens Dingemann, Stefanie Witt, Carmen Dingemann, Linus Jönsson, Vladimir Gatzinsky, Monika Bullinger, Benno M. Ure, John E. Chaplin, Julia H. Quitmann
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 17, Iss 1, Pp 1-11 (2022)
Abstract Background After repair of esophageal atresia (EA), childhood survivors commonly present with digestive and respiratory morbidity, and around 55% have associated anomalies. Although it is known that these problems can reduce health-related q
Externí odkaz:
https://doaj.org/article/79ec2ad939cb41f4ab0ea38ddb78d40e
Autor:
Stefanie Witt, Michaela Dellenmark-Blom, Susanne Kuckuck, Jens Dingemann, Kate Abrahamsson, Carmen Dingemann, John Eric Chaplin, Benno Ure, Monika Bullinger, Vladimir Gatzinsky, Linus Jönsson, Julia Hannah Quitmann
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-12 (2021)
Abstract Background The aim was to compare parent and child-reported health-related quality of life (HRQOL) of children born with esophageal atresia (EA) and determine factors that affect the level of parent–child agreement. Methods We included 63
Externí odkaz:
https://doaj.org/article/20c6c6c6bfde4a4b9e87a5282f203255
Autor:
Chantal A. ten Kate, Hanneke IJsselstijn, Michaela Dellenmark-Blom, E. Sofie van Tuyll van Serooskerken, Maja Joosten, René M. H. Wijnen, Michiel P. van Wijk, on behalf of the DCEA Study Group
Publikováno v:
Children, Vol 9, Iss 10, p 1508 (2022)
A condition-specific instrument (EA-QOL©) to assess quality of life of children born with esophageal atresia (EA) was developed in Sweden and Germany. Before implementing this in the Netherlands, we evaluated its psychometric performance in Dutch ch
Externí odkaz:
https://doaj.org/article/b42698d230364a12bead040bded7f219
Publikováno v:
Frontiers in Pediatrics, Vol 9 (2021)
Introduction/Aim: Children and adolescents with a chronic somatic disease have a higher risk of developing psychological disorders than healthy peers. Therefore, we aim to investigate internalizing and behavioral problems in pediatric patients with e
Externí odkaz:
https://doaj.org/article/32e103c9436946a18956b60d1572ccff
Autor:
Stefanie Witt, Janika Bloemeke, Monika Bullinger, Jens Dingemann, Michaela Dellenmark-Blom, Julia Quitmann
Publikováno v:
BMC Pediatrics, Vol 19, Iss 1, Pp 1-9 (2019)
Abstract Background Esophageal atresia (EA) is a rare congenital malformation, which is characterized by the discontinuity of the esophagus. We investigated the agreement between mothers’, fathers’, and children’s’ ratings on health-related q
Externí odkaz:
https://doaj.org/article/21ac03139d944761a5346ae21499f2db
Navigating global collaboration: challenges faced by the international network on esophageal atresia
Autor:
Frédéric Gottrand, Usha Krishnan, Anke Widenmann, Michaela Dellenmark Blom, Luigi Dall’Oglio, Rene Wijnen, Michiel van Wijk, JoAnne Fruithof, Daniel von Allmen, Tom Kovesi, Christophe Faure
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 19, Iss 1, Pp 1-3 (2024)
Abstract The International Network on Esophageal Atresia (INoEA) stands as a beacon of collaboration in addressing the complexities of this congenital condition on a global scale. The eleven board members, from various countries (USA, Canada, France,
Externí odkaz:
https://doaj.org/article/0bfa3699d3a84146b303578a77c181f1
Autor:
Michaela Dellenmark-Blom, Colin Reilly, Elin Öst, Sofie Örnö Ax, Jan F Svensson, Ann-Marie Kassa, Linus Jönsson, Kate Abrahamsson, Vladimir Gatzinsky, AnnaMaria Tollne, Erik Omling, Pernilla Stenström, Helene Engstrand Lilja
Background: Children with long-gap esophageal atresia (LGEA) risk living with aerodigestive morbidity and mental health difficulties. No previous study has investigated their experiences of schooling, despite the importance of schools in children’s
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::be11ff492b9becfa70f8162211bfa7b0
https://doi.org/10.21203/rs.3.rs-2843936/v1
https://doi.org/10.21203/rs.3.rs-2843936/v1
Background: Children born with esophageal atresia experience feeding difficulties. This study investigates the association of feeding difficulties and generic health-related quality of life among children aged 2-7 and 8-17 years, born with esophageal
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::afdab416fa0bea10632a456d48f177bd
https://doi.org/10.21203/rs.3.rs-2128593/v1
https://doi.org/10.21203/rs.3.rs-2128593/v1