Zobrazeno 1 - 10
of 10
pro vyhledávání: '"Michael J. S. Beauvais"'
Autor:
Michael J. S. Beauvais, Adrian M. Thorogood, Michael J. Szego, Karine Sénécal, Ma'n H. Zawati, Bartha Maria Knoppers
Publikováno v:
Frontiers in Genetics, Vol 12 (2021)
Externí odkaz:
https://doaj.org/article/50739b9ba9494cd58464a4d6330cde85
Publikováno v:
Frontiers in Genetics, Vol 12 (2021)
The COVID-19 pandemic has underscored the need for new ways of thinking about data protection. This is especially so in the case of health research with children. The responsible use of children’s data plays a key role in promoting children’s wel
Externí odkaz:
https://doaj.org/article/b51859477b124f8ea56dca62742d587e
Autor:
Michael J. S. Beauvais, Adrian M. Thorogood, Michael J. Szego, Karine Sénécal, Ma'n H. Zawati, Bartha Maria Knoppers
Publikováno v:
Frontiers in Genetics, Vol 12 (2021)
Children with rare and common diseases now undergo whole genome sequencing (WGS) in clinical and research contexts. Parents sometimes request access to their child's raw genomic data, to pursue their own analyses or for onward sharing with health pro
Externí odkaz:
https://doaj.org/article/71d61c5eaa924db984dab1114ae5407c
Publikováno v:
Philosophies, Vol 6, Iss 4, p 93 (2021)
International direct-to-participant (DTP) genomics research involves the use of mobile technology to recruit, consent, and study participants remotely. This model can facilitate research across broad geographies and many countries, but must also comp
Externí odkaz:
https://doaj.org/article/012012f479284175b2f1aaa2b62438df
Autor:
Fruzsina Molnár-Gábor, Michael J S Beauvais, Alexander Bernier, Maria Pilar Nicolas Jimenez, Mikel Recuero, Bartha Maria Knoppers
Publikováno v:
Journal of Medical Internet Research, Vol 24, Iss 10, p e37236 (2022)
In this viewpoint, we argue for the importance of creating data spaces for genomic research that are detached from contexts in which fundamental rights concerns related to surveillance measures override a purpose-specific balancing of fundamental rig
Externí odkaz:
https://doaj.org/article/dcec03e89f6f40bab02ae52f391721e7
These comments were prepared in response to the US Federal Trade Commission's advance notice of proposed rulemaking on commercial surveillance and data security (ANPR R111004). In these comments, we examine privacy and surveillance issues in children
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::e3d2bf6e23697a5c78d802cf66c62524
https://doi.org/10.31235/osf.io/sdzua
https://doi.org/10.31235/osf.io/sdzua
Autor:
Elizabeth Levitis, Cassandra Doris Gould van Praag, Remi Gau, Stephan Heunis, Elizabeth DuPre, Greg Kiar, Katherine L Bottenhorn, Tristan Glatard, Aki Nikolaidis, Kirstie Jane Whitaker, Matteo Mancini, Guiomar Niso, Soroosh Afyouni, Eva Alonso Ortiz, Stefan Appelhoff, Aurina Arnatkeviciute, Melvin Selim ATAY, Tibor Auer, Giulia Baracchini, Johanna Margarete Marianne Bayer, Michael J. S. Beauvais, Janine Diane Bijsterbosch, Isil Poyraz Bilgin, Saskia Bollmann, Steffen Bollmann, Rotem Botvinik-Nezer, Molly G Bright, Vince D Calhoun, Xiao Chen, Sidhant Chopra, Hu Chuan-Peng, Thomas Close, Savannah Cookson, Cameron Craddock, Alejandro De La Vega, Benjamin De Leener, Damion Demeter, Paola Di Maio, Erin W Dickie, Simon B Eickhoff, Oscar Esteban, Karolina Finc, Matteo Frigo, Saampras Ganesan, Melanie Ganz, Kelly Garner, Eduardo A. Garza-Villarreal, Gabriel Gonzalez-Escamilla, Rohit Goswami, John David Griffiths, Tijl Grootswagers, Samuel Guay, Olivia Guest, Daniel A. Handwerker, Peer Herholz, Katja Heuer, Dorien Huijser, Vittorio Iacovella, Michael Joseph, Agah Karakuzu, David Keator, Xenia Kobeleva, Manoj Kumar, Angie Laird, Linda J. Larson-Prior, Alexandra Lautarescu, Alberto Lazari, Jon Haitz Legarreta Gorroño, Jeff jeffers, Jinglei Lv, Sina Mansour L., David Meunier, Dustin Moraczewski, Tulika Nandi, Samuel A. Nastase, Matthias Nau, Stephanie Noble, Martin Norgaard, Johnes Obungoloch, Robert Oostenveld, Edwina R Orchard, Ana Luísa Pinho, Russell Poldrack, Anqi Qiu, Pradeep Reddy Raamana, Ariel Rokem, Saige Rutherford, Malvika Sharan, Thomas Shaw, Warda T Syeda, Meghan M. Testerman, Roberto Toro, Sofie L. Valk, Sofie Van Den Bossche, Gael P. Varoquaux, Frantisek Vasa, Michele Veldsman, Jakub Vohryzek, Adina Svenja Wagner, Reubs J Walsh, Tonya White, null zuxfoucault, Xihe Xie, Chao-Gan Yan, Yu-Fang Yang, Yohan Yee, Gaston E Zanitti, Ana Van Gulick, Eugene Duff, Camille MAUMET
Publikováno v:
GigaScience
GigaScience, 2021, 10 (8), ⟨10.1093/gigascience/giab051⟩
GigaScience, BioMed Central, 2021, 10 (8), ⟨10.1093/gigascience/giab051⟩
Levitis, E, Van Praag, C D G, Gau, R, Heunis, S, Dupre, E, Kiar, G, Bottenhorn, K L, Glatard, T, Nikolaidis, A, Whitaker, K J, Mancini, M, Niso, G, Afyouni, S, Alonso-Ortiz, E, Appelhoff, S, Arnatkeviciute, A, Atay, S M, Auer, T, Baracchini, G, Bayer, J M M, Beauvais, M J S, Bijsterbosch, J D, Bilgin, I P, Bollmann, S, Bollmann, S, Botvinik-Nezer, R, Bright, M G, Calhoun, V D, Chen, X, Chopra, S, Chuan-Peng, H, Close, T G, Cookson, S L, Craddock, R C, De La Vega, A, De Leener, B, Demeter, D V, Di Maio, P, Dickie, E W, Eickhoff, S B, Esteban, O, Finc, K, Frigo, M, Ganesan, S, Ganz, M, Garner, K G, Garza-Villarreal, E A, Gonzalez-Escamilla, G, Goswami, R, Griffiths, J D, Grootswagers, T, Guay, S, Guest, O, Handwerker, D A, Herholz, P, Heuer, K, Huijser, D C, Iacovella, V, Joseph, M J E, Karakuzu, A, Keator, D B, Kobeleva, X, Kumar, M, Laird, A R, Larson-Prior, L J, Lautarescu, A, Lazari, A, Legarreta, J H, Li, X Y, Lv, J, Mansour L., S, Meunier, D, Moraczewski, D, Nandi, T, Nastase, S A, Nau, M, Noble, S, Norgaard, M, Obungoloch, J, Oostenveld, R, Orchard, E R, Pinho, A L, Poldrack, R A, Qiu, A, Raamana, P R, Rokem, A, Rutherford, S, Sharan, M, Shaw, T B, Syeda, W T, Testerman, M M, Toro, R, Valk, S L, Van Den Bossche, S, Varoquaux, G, Váša, F, Veldsman, M, Vohryzek, J, Wagner, A S, Walsh, R J, White, T, Wong, F T, Xie, X, Yan, C G, Yang, Y F, Yee, Y, Zanitti, G E, Van Gulick, A E, Duff, E & Maumet, C 2021, ' Centering inclusivity in the design of online conferences-An OHBM-Open Science perspective ', GigaScience, vol. 10, no. 8, giab051, pp. 1-14 . https://doi.org/10.1093/gigascience/giab051
Gigascience
GigaScience 10(8), giab051 (2021). doi:10.1093/gigascience/giab051
GigaScience, 2021, 10 (8), ⟨10.1093/gigascience/giab051⟩
GigaScience, BioMed Central, 2021, 10 (8), ⟨10.1093/gigascience/giab051⟩
Levitis, E, Van Praag, C D G, Gau, R, Heunis, S, Dupre, E, Kiar, G, Bottenhorn, K L, Glatard, T, Nikolaidis, A, Whitaker, K J, Mancini, M, Niso, G, Afyouni, S, Alonso-Ortiz, E, Appelhoff, S, Arnatkeviciute, A, Atay, S M, Auer, T, Baracchini, G, Bayer, J M M, Beauvais, M J S, Bijsterbosch, J D, Bilgin, I P, Bollmann, S, Bollmann, S, Botvinik-Nezer, R, Bright, M G, Calhoun, V D, Chen, X, Chopra, S, Chuan-Peng, H, Close, T G, Cookson, S L, Craddock, R C, De La Vega, A, De Leener, B, Demeter, D V, Di Maio, P, Dickie, E W, Eickhoff, S B, Esteban, O, Finc, K, Frigo, M, Ganesan, S, Ganz, M, Garner, K G, Garza-Villarreal, E A, Gonzalez-Escamilla, G, Goswami, R, Griffiths, J D, Grootswagers, T, Guay, S, Guest, O, Handwerker, D A, Herholz, P, Heuer, K, Huijser, D C, Iacovella, V, Joseph, M J E, Karakuzu, A, Keator, D B, Kobeleva, X, Kumar, M, Laird, A R, Larson-Prior, L J, Lautarescu, A, Lazari, A, Legarreta, J H, Li, X Y, Lv, J, Mansour L., S, Meunier, D, Moraczewski, D, Nandi, T, Nastase, S A, Nau, M, Noble, S, Norgaard, M, Obungoloch, J, Oostenveld, R, Orchard, E R, Pinho, A L, Poldrack, R A, Qiu, A, Raamana, P R, Rokem, A, Rutherford, S, Sharan, M, Shaw, T B, Syeda, W T, Testerman, M M, Toro, R, Valk, S L, Van Den Bossche, S, Varoquaux, G, Váša, F, Veldsman, M, Vohryzek, J, Wagner, A S, Walsh, R J, White, T, Wong, F T, Xie, X, Yan, C G, Yang, Y F, Yee, Y, Zanitti, G E, Van Gulick, A E, Duff, E & Maumet, C 2021, ' Centering inclusivity in the design of online conferences-An OHBM-Open Science perspective ', GigaScience, vol. 10, no. 8, giab051, pp. 1-14 . https://doi.org/10.1093/gigascience/giab051
Gigascience
GigaScience 10(8), giab051 (2021). doi:10.1093/gigascience/giab051
As the global health crisis unfolded throughout the world, many academic conferences moved online in 2020. This move has been hailed as a positive step towards inclusivity in its attenuation of economic, physical and legal barriers and effectively en
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::9c70f973370285950053c63d4ef40379
https://www.hal.inserm.fr/inserm-03221005/document
https://www.hal.inserm.fr/inserm-03221005/document
Autor:
Mark A. Rothstein, Ma’n H. Zawati, Adrian Thorogood, Michael J. S. Beauvais, Yann Joly, Kyle B. Brothers, Michael Lang, Pamela Andanda, Calvin Ho, Rosario Isasi, Jane Kaye, Won Bok Lee, Obiajulu Nnamuchi, Andrea Saltzman, Bartha Maria Knoppers
Publikováno v:
Science. 375:825-826
Single-site review means protection and efficiency
UNSTRUCTURED Researchers must collaborate globally to rapidly respond to the COVID-19 pandemic. In Europe, the General Data Protection Regulation (GDPR) regulates the processing of personal data, including health data of value to researchers. Even du
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::716c24f0a3fcc7e41484969f39a968fa
https://doi.org/10.2196/preprints.19799
https://doi.org/10.2196/preprints.19799