Development and Content Validation of Novel Patient-Reported Outcome Measures to Assess Disease Severity and Change in Patients with Erythropoietic Protoporphyria: The EPP Impact Questionnaire (EPIQ)

Autor: Mathias SD, Burke L, Colwell HH, Mensing G, Savage W, Naik H

Publikováno v: Patient Related Outcome Measures, Vol Volume 15, Pp 17-30 (2024)

Susan D Mathias,1 Laurie Burke,2 Hilary H Colwell,1 George Mensing,3 Will Savage,3 Hetanshi Naik4 1Health Outcomes Solutions, Palm Beach Gardens, FL, USA; 2LORA Group, Normal, IL, USA; 3Disc Medicine, Watertown, MA, USA; 4Department of Genetics, Stan

Externí odkaz: https://doaj.org/article/152063e7f6604ac08742e6e15a3ce69f

On the design and fabrication of nanoliter-volume hanging drop networks.

Autor: Wester M; Department of Bioengineering, University of Illinois Urbana-Champaign, Urbana, IL, 61801, USA.; Nick Holonyak Jr. Micro and Nanotechnology Laboratory, University of Illinois Urbana-Champaign, Urbana, IL, 61801, USA., Lim J; Department of Bioengineering, University of Illinois Urbana-Champaign, Urbana, IL, 61801, USA.; Nick Holonyak Jr. Micro and Nanotechnology Laboratory, University of Illinois Urbana-Champaign, Urbana, IL, 61801, USA., Khaertdinova L; Department of Bioengineering, University of Illinois Urbana-Champaign, Urbana, IL, 61801, USA.; Nick Holonyak Jr. Micro and Nanotechnology Laboratory, University of Illinois Urbana-Champaign, Urbana, IL, 61801, USA., Darsi S; Department of Bioengineering, University of Illinois Urbana-Champaign, Urbana, IL, 61801, USA.; Nick Holonyak Jr. Micro and Nanotechnology Laboratory, University of Illinois Urbana-Champaign, Urbana, IL, 61801, USA., Donthamsetti N; Department of Bioengineering, University of Illinois Urbana-Champaign, Urbana, IL, 61801, USA.; Nick Holonyak Jr. Micro and Nanotechnology Laboratory, University of Illinois Urbana-Champaign, Urbana, IL, 61801, USA., Mensing G; Nick Holonyak Jr. Micro and Nanotechnology Laboratory, University of Illinois Urbana-Champaign, Urbana, IL, 61801, USA., Vasmatzis G; Center for Individualized Medicine, Mayo Clinic, Rochester, MN, 55905, USA.; Mayo-Illinois Alliance for Technology-Based Healthcare, Urbana, IL, 61801, USA., Anastasiadis P; Mayo-Illinois Alliance for Technology-Based Healthcare, Urbana, IL, 61801, USA.; Department of Cancer Biology, Mayo Clinic, Jacksonville, FL, 32224, USA., Valera E; Department of Bioengineering, University of Illinois Urbana-Champaign, Urbana, IL, 61801, USA.; Nick Holonyak Jr. Micro and Nanotechnology Laboratory, University of Illinois Urbana-Champaign, Urbana, IL, 61801, USA.; Carl R. Woese Institute for Genomic Biology, University of Illinois at Urbana-Champaign, Urbana, IL, 61801, USA.; Biomedical Research Center, Carle Foundation Hospital, Urbana, IL, 61801, USA., Bashir R; Department of Bioengineering, University of Illinois Urbana-Champaign, Urbana, IL, 61801, USA. rbashir@illinois.edu.; Nick Holonyak Jr. Micro and Nanotechnology Laboratory, University of Illinois Urbana-Champaign, Urbana, IL, 61801, USA. rbashir@illinois.edu.; Mayo-Illinois Alliance for Technology-Based Healthcare, Urbana, IL, 61801, USA. rbashir@illinois.edu.; Carl R. Woese Institute for Genomic Biology, University of Illinois at Urbana-Champaign, Urbana, IL, 61801, USA. rbashir@illinois.edu.; Biomedical Research Center, Carle Foundation Hospital, Urbana, IL, 61801, USA. rbashir@illinois.edu.; Cancer Center at Illinois, University of Illinois at Urbana-Champaign, Urbana, IL, 61801, USA. rbashir@illinois.edu.; Department of Biomedical and Translation Science, Carle Illinois College of Medicine, University of Illinois at Urbana-Champaign, Urbana, IL, 61801, USA. rbashir@illinois.edu.; Chan Zuckerberg Biohub Chicago, Chicago, IL, 60642, USA. rbashir@illinois.edu.; Department of Electrical and Computer Engineering, University of Illinois at Urbana-Champaign, Urbana, IL, 61801, USA. rbashir@illinois.edu.; Department of Mechanical Science and Engineering, University of Illinois at Urbana-Champaign, Urbana, IL, 61801, USA. rbashir@illinois.edu.; Department of Materials Science and Engineering, University of Illinois at Urbana-Champaign, Urbana, IL, 61801, USA. rbashir@illinois.edu.

Publikováno v: Microsystems & nanoengineering [Microsyst Nanoeng] 2024 Oct 16; Vol. 10 (1), pp. 147. Date of Electronic Publication: 2024 Oct 16.

Development and content validation of a sunlight exposure diary in patients with erythropoietic protoporphyria.

Autor: Mathias SD; Health Outcomes Solutions, Palm Beach Gardens, FL, USA., Burke L; LORA Group, Normal, IL, USA., Colwell HH; Health Outcomes Solutions, Palm Beach Gardens, FL, USA., Mensing G; Disc Medicine, Watertown, MA, USA., Savage W; Disc Medicine, Watertown, MA, USA., Naik H; Department of Genetics, Stanford University School of Medicine, Palo Alto, CA, USA. naikh@stanford.edu.

Publikováno v: Journal of patient-reported outcomes [J Patient Rep Outcomes] 2023 Nov 20; Vol. 7 (1), pp. 119. Date of Electronic Publication: 2023 Nov 20.

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A Review of Current Approaches to Pain Management in Knee Osteoarthritis with a Focus on Italian Clinical Landscape.

Autor: Giaretta, Stefano¹ (AUTHOR) stefano.giaretta@gmail.com, Magni, Alberto² (AUTHOR) alberto.magni@icloud.com, Migliore, Alberto³ (AUTHOR) migliore.alberto60@gmail.com, Natoli, Silvia^4,5 (AUTHOR) silvia.natoli@unipv.it, Puntillo, Filomena⁶ (AUTHOR) filomena.puntillo@uniba.it, Ronconi, Gianpaolo⁷ (AUTHOR) gianpaolo.ronconi@policlinicogemelli.it, Santoiemma, Luigi⁸ (AUTHOR) santoiemmaluigi@libero.it, Sconza, Cristiano⁹ (AUTHOR) cristiano.sconza@humanitas.it, Viapiana, Ombretta¹⁰ (AUTHOR) ombretta.viapiana@univr.it, Zanoli, Gustavo¹¹ (AUTHOR) zanolig@me.com

Publikováno v: Journal of Clinical Medicine. Sep2024, Vol. 13 Issue 17, p5176. 29p.