Výsledky vyhledávání - "Menno van der Holst"

Akademický článek

Aging With Cerebral Palsy: A Photovoice Study Into Citizenship

Autor: Vera G. van Heijningen, Mieke Cardol, Heidi J. M. van Heijningen-Tousain, Daniëlla M. Oosterveer, Frederike van Markus-Doornbosch, Jane N. T. Sattoe, Menno van der Holst, Sander R. Hilberink

Publikováno v: Frontiers in Neurology, Vol 12 (2021)

Background: Adults with cerebral palsy (CP) may experience an increasing impact of their disability on daily life and this may interfere with their citizenship. Citizenship is a layered construct. Next to formal and theoretical significations, and ci

Externí odkaz: https://doaj.org/article/a603e33013134d0094d98be5e4bd0a3d

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The Relation Between Nutritional Intake and Body Weight in 4–18 Year Old Patients with DMD: What could possibly be done to prevent weight gain?

Autor: Carmen A.W. Dietvorst, Daphne Bot, Menno van der Holst, Erik H. Niks

Publikováno v: Journal of Neuromuscular Diseases. 9:701-711

Background: Overweight is a common problem in Duchenne muscular dystrophy (DMD) and is associated with reduced mobility and quality of life. The influence of nutritional intake on (over)weight is unclear. Objective: To investigate weight and energy a

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::d960bf04c8617b1fc2599d7779feda42
https://doi.org/10.3233/jnd-220796

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Association of Elbow Flexor MRI Fat Fraction With Loss of Hand-to-Mouth Movement in Patients With Duchenne Muscular Dystrophy

Autor: Erik H. Niks, Hermien E. Kan, Erik W. van Zwet, Jan J.G.M. Verschuuren, Karin J. Naarding, Imelda J. M. de Groot, Menno van der Holst, Nienke M van de Velde

Publikováno v: Neurology, 97, E1737-E1742
Neurology, 97, 17, pp. E1737-E1742
Neurology, 97(17), E1737-E1742. LIPPINCOTT WILLIAMS & WILKINS
Neurology
article-version (Version of Record) 3

Background and ObjectivesTo study the potential of quantitative MRI (qMRI) fat fraction (FF) as a biomarker in nonambulant patients with Duchenne muscular dystrophy (DMD), we assessed the additive predictive value of elbow flexor FF to age at loss of

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::751ee7d230b2f47769488043e59611bb
https://doi.org/10.1212/wnl.0000000000012724

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Differences in the perspectives of functioning and health in the ICF model between patients with brachial plexus birth injury and their parents versus healthcare professionals

Autor: Cigdem Sarac, Rob G. H. H. Nelissen, Menno van der Holst, Martijn J. A. Malessy, Willem Pondaag

Publikováno v: Disability and Rehabilitation. TAYLOR & FRANCIS LTD
Disability and Rehabilitation

To explore and compare the perspectives of patients and their parents (PPs) with a brachial plexus birth injury (BPBI) with those of health care professionals (HCPs).We conducted a study using a questionnaire among PPs and HCPs. Importance of differe

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::45c1a91c9609c69f25774c56dd8931ae
https://hdl.handle.net/1887/3455703

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Fatigue in young patients with acquired brain injury in the rehabilitation setting: Categorizing and interpreting fatigue severity levels

Autor: Florian Allonsius, Frederike van Markus-Doornbosch, Arend de Kloet, Suzanne Lambregts, Thea Vliet Vlieland, Menno van der Holst

Publikováno v: Developmental Neurorehabilitation, 25(8), 542-553. TAYLOR & FRANCIS INC

Purpose: Fatigue in patients with acquired brain injury (ABI) is common. However, to better target fatigue, clear ways to categorize/interpret fatigue-severity in individual patients are lacking. This study aims to determine/categorize fatigue severi

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::72cc4c3e45acb2438be1eb5cfc99c066

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The Black Box of Technological Outcome Measures: An Example in Duchenne Muscular Dystrophy

Autor: Karin J. Naarding, Mariska M.H.P. Janssen, Ruben D. Boon, Paulina J.M. Bank, Robert P. Matthew, Gregorij Kurillo, Jay J. Han, Jan J.G.M. Verschuuren, Imelda J.M. de Groot, Menno van der Holst, Hermien E. Kan, Erik H. Niks

Publikováno v: Journal of Neuromuscular Diseases, 9(4), 555-569. IOS PRESS
Journal of Neuromuscular Diseases, 9, 555-569
Journal of Neuromuscular Diseases, 9, 4, pp. 555-569

Background: Outcome measures for non-ambulant Duchenne muscular dystrophy (DMD) patients are limited, with only the Performance of the Upper Limb (PUL) approved as endpoint for clinical trials. Objective: We assessed four outcome measures based on de

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::b12063cc64a27c4994b9d6ba9b7331e3
http://hdl.handle.net/1887/3497478

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Preserved thenar muscles in non-ambulant Duchenne muscular dystrophy patients

Autor: Aashley S D Sardjoe Mishre, Jedrzej Burakiewicz, Jan J.G.M. Verschuuren, Kevin R Keene, Nienke M van de Velde, Thom T J Veeger, Karin J. Naarding, Erik H. Niks, Arina J Prins, Hermien E. Kan, Menno van der Holst

Publikováno v: Journal of Cachexia, Sarcopenia and Muscle, 12(3), 694-703. WILEY
Journal of Cachexia, Sarcopenia and Muscle
Journal of Cachexia, Sarcopenia and Muscle, Vol 12, Iss 3, Pp 694-703 (2021)

Background Clinical trials in Duchenne muscular dystrophy (DMD) focus primarily on ambulant patients. Results cannot be extrapolated to later disease stages due to a decline in targeted muscle tissue. In non-ambulant DMD patients, hand function is re

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::60162bdefeb1ce0431f95c58467ad319
https://doi.org/10.1002/jcsm.12711

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Participation restrictions among children and young adults with acquired brain injury in a pediatric outpatient rehabilitation cohort

Autor: Jorit J. L. Meesters, Thea P.M. Vliet Vlieland, Frederike van Markus-Doornbosch, Menno van der Holst, Stefanie Rosema, Arend J. de Kloet, Gary Bedell, Florian Allonsius

Publikováno v: International Journal of Environmental Research and Public Health, 18(4). MDPI
International Journal of Environmental Research and Public Health
Volume 18
Issue 4
International Journal of Environmental Research and Public Health, Vol 18, Iss 1625, p 1625 (2021)

Improving participation is an important aim in outpatient rehabilitation treatment. Knowledge regarding participation restrictions in children and young adults with acquired brain injury (ABI) is scarce and little is known regarding the differences i

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::30251ac8856f6b14dac805b87dcb3d2a
https://doi.org/10.3390/ijerph18041625

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Measuring treatment outcome in children with developmental coordination disorder

Autor: Thea P.M. Vliet Vlieland, Inge Heus, Sebastiaan Severijnen, Daphne Weezenberg, Menno van der Holst

Publikováno v: Disability and Rehabilitation
Disability and Rehabilitation, 44(7), 1023-1034. TAYLOR & FRANCIS LTD

Although measuring outcome of rehabilitation in children with Developmental Coordination Disorder is considered important no consensus exists on which instruments to use. An important attribute of a measurement instrument would be that it is sensitiv

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::098819cfdfbd213663a9a2f6350f651d
https://hdl.handle.net/1887/3184153

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