‘Someone must do it’: multiple views on family’s role in end-of-life care – an international qualitative study

Autor: Vilma A. Tripodoro, Verónica I. Veloso, Eva Víbora Martín, Hana Kodba-Čeh, Miša Bakan, Birgit H. Rasmussen, Sofía C. Zambrano, Melanie Joshi, Svandis Íris Hálfdánardóttir, Guðlaug Helga Ásgeirsdóttir, Elisabeth Romarheim, Dagny Faksvåg Haugen, Tamsin McGlinchey, Berivan Yildiz, Pilar Barnestein-Fonseca, Anne Goossensen, Urška Lunder, Agnes van der Heide

Publikováno v: Palliative Care and Social Practice, Vol 18 (2024)

Background: Family is a crucial social institution in end-of-life care. Family caregivers are encouraged to take on more responsibility at different times during the illness, providing personal and medical care. Unpaid work can be overburdening, with

Externí odkaz: https://doaj.org/article/1a800c159b7e412b827c15361e39e7ef

Live well, die well – an international cohort study on experiences, concerns and preferences of patients in the last phase of life: the research protocol of the iLIVE study

Autor: Birgit H Rasmussen, Vilma Tripodoro, Gabriel Goldraij, John Ellershaw, Stephen Mason, Agnes van der Heide, Carin C D van der Rijt, Lia van Zuylen, Judit Simon, Michael Berger, Raymond Voltz, Melanie Joshi, Claudia Fischer, Katrin Ruth Sigurdardottir, Julia Strupp, Berivan Yildiz, Valgerdur Sigurdardottir, Hugo M van der Kuy, Steffen Eychmüller, Simon Allan, Rosemary Hughes, Tamsin Mcglinchey, Ida J Korfage, Carl Johan Fürst, Anne Goossensen, Mark Boughey, Dagny Faksvåg Haugen, Urska Lunder, Pilar Barnestein-Fonseca, Misa Bakan, Andri Christen, Gustavo G De Simone, Martina Egloff, Eline E C M Elsten, Eric C T Geijteman, Svandis Iris Halfdanardottir, Christel Hedman, Tanja Hoppe, Grethe Skorpen Iversen, Hana Kodba-Ceh, Nora Lüthi, Maria Luisa Martín-Roselló, Silvi Montilla, Inmaculada Ruiz-Torreras, Maria E C Schelin, Ruthmarijke Smeding, Kjersti Solvåg, Verónica I Veloso, Eva Vibora-Martin, Sofia C Zambrano

Publikováno v: BMJ Open, Vol 12, Iss 8 (2022)

Introduction Adequately addressing the needs of patients at the end of life and their relatives is pivotal in preventing unnecessary suffering and optimising their quality of life. The purpose of the iLIVE study is to contribute to high-quality perso

Externí odkaz: https://doaj.org/article/5f96b85320af4d128e30f2b2997c5a6b

Live well, die well – an international cohort study on experiences, concerns and preferences of patients in the last phase of life: the research protocol of the iLIVE study

Autor: Berivan Yildiz, Simon Allan, Misa Bakan, Pilar Barnestein-Fonseca, Michael Berger, Mark Boughey, Andri Christen, Gustavo G De Simone, Martina Egloff, John Ellershaw, Eline E C M Elsten, Steffen Eychmüller, Claudia Fischer, Carl Johan Fürst, Eric C T Geijteman, Gabriel Goldraij, Anne Goossensen, Svandis Iris Halfdanardottir, Dagny Faksvåg Haugen, Christel Hedman, Tanja Hoppe, Rosemary Hughes, Grethe Skorpen Iversen, Melanie Joshi, Hana Kodba-Ceh, Ida J Korfage, Urska Lunder, Nora Lüthi, Maria Luisa Martín-Roselló, Stephen Mason, Tamsin McGlinchey, Silvi Montilla, Birgit H Rasmussen, Inmaculada Ruiz-Torreras, Maria E C Schelin, Katrin Ruth Sigurdardottir, Valgerdur Sigurdardottir, Judit Simon, Ruthmarijke Smeding, Kjersti Solvåg, Julia Strupp, Vilma Tripodoro, Hugo M van der Kuy, Carin C D van der Rijt, Lia van Zuylen, Verónica I Veloso, Eva Vibora-Martin, Raymond Voltz, Sofia C Zambrano, Agnes van der Heide

Publikováno v: Yildiz, Berivan; Allan, Simon; Bakan, Misa; Barnestein-Fonseca, Pilar; Berger, Michael; Boughey, Mark; Christen, Andri; De Simone, Gustavo G; Egloff, Martina; Ellershaw, John; Elsten, Eline E C M; Eychmüller, Steffen; Fischer, Claudia; Fürst, Carl Johan; Geijteman, Eric C T; Goldraij, Gabriel; Goossensen, Anne; Halfdanardottir, Svandis Iris; Haugen, Dagny Faksvåg; Hedman, Christel; ... (2022). Live well, die well – an international cohort study on experiences, concerns and preferences of patients in the last phase of life: the research protocol of the iLIVE study. BMJ open, 12(8), e057229. BMJ Publishing Group 10.1136/bmjopen-2021-057229
e057229
BMJ Open, 12(8):057229. BMJ Publishing Group
Yildiz, B, Allan, S, Bakan, M, Barnestein-Fonseca, P, Berger, M, Boughey, M, Christen, A, de Simone, G G, Egloff, M, Ellershaw, J, Elsten, E E C M, Eychmüller, S, Fischer, C, Fürst, C J, Geijteman, E C T, Goldraij, G, Goossensen, A, Halfdanardottir, S I, Haugen, D F, Hedman, C, Hoppe, T, Hughes, R, Iversen, G S, Joshi, M, Kodba-Ceh, H, Korfage, I J, Lunder, U, Lüthi, N, Martín-Roselló, M L, Mason, S, Mcglinchey, T, Montilla, S, Rasmussen, B H, Ruiz-Torreras, I, Schelin, M E C, Sigurdardottir, K R, Sigurdardottir, V, Simon, J, Smeding, R, Solvåg, K, Strupp, J, Tripodoro, V, van der Kuy, H M, van der Rijt, C C D, van Zuylen, L, Veloso, V I, Vibora-Martin, E, Voltz, R, Zambrano, S C & van der Heide, A 2022, ' Live well, die well-an international cohort study on experiences, concerns and preferences of patients in the last phase of life : the research protocol of the iLIVE study ', BMJ Open, vol. 12, no. 8, 057229 . https://doi.org/10.1136/bmjopen-2021-057229
BMJ Open
BMJ Open, 12(8). BMJ Publishing Group

IntroductionAdequately addressing the needs of patients at the end of life and their relatives is pivotal in preventing unnecessary suffering and optimising their quality of life. The purpose of the iLIVE study is to contribute to high-quality person

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::9c20f725e384878e04da0a6d5c715b49
https://boris.unibe.ch/173513/1/e057229.full.pdf