Výsledky vyhledávání - "Melanie Joshi"

Akademický článek

‘Someone must do it’: multiple views on family’s role in end-of-life care – an international qualitative study

Autor: Vilma A. Tripodoro, Verónica I. Veloso, Eva Víbora Martín, Hana Kodba-Čeh, Miša Bakan, Birgit H. Rasmussen, Sofía C. Zambrano, Melanie Joshi, Svandis Íris Hálfdánardóttir, Guðlaug Helga Ásgeirsdóttir, Elisabeth Romarheim, Dagny Faksvåg Haugen, Tamsin McGlinchey, Berivan Yildiz, Pilar Barnestein-Fonseca, Anne Goossensen, Urška Lunder, Agnes van der Heide

Publikováno v: Palliative Care and Social Practice, Vol 18 (2024)

Background: Family is a crucial social institution in end-of-life care. Family caregivers are encouraged to take on more responsibility at different times during the illness, providing personal and medical care. Unpaid work can be overburdening, with

Externí odkaz: https://doaj.org/article/1a800c159b7e412b827c15361e39e7ef

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Akademický článek

'Saying goodbye all alone with no close support was difficult'- Dying during the COVID-19 pandemic: an online survey among bereaved relatives about end-of-life care for patients with or without SARS-CoV2 infection

Autor: Karlotta Schloesser, Steffen T Simon, Berenike Pauli, Raymond Voltz, Norma Jung, Charlotte Leisse, Agnes van der Heide, Ida J Korfage, Anne Pralong, Claudia Bausewein, Melanie Joshi, Julia Strupp, for PallPan and the CO-LIVE study

Publikováno v: BMC Health Services Research, Vol 21, Iss 1, Pp 1-11 (2021)

Abstract Background During the SARS-CoV2 pandemic, protection measures, as well as visiting restrictions, had a severe impact on seriously ill and dying patients and their relatives. The study aims to describe the experiences of bereaved relatives of

Externí odkaz: https://doaj.org/article/258fe40ee419493d9e9b228db57c055d

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Availability as key determinant in the palliative home care setting from the patients’ and family caregivers’ perspectives: A quantitative-qualitative-content analysis approach

Autor: Melanie Joshi, Roman Rolke, Norbert Krumm, Holger Brunsch, Julia Strupp, Lukas Radbruch, Kim Dillen, Raymond Voltz, Michaela Hesse, Holger Schmidt

Publikováno v: Palliative and Supportive Care. 19:570-579

ObjectiveA sense of security is important in palliative home care. Yet, knowledge about which components contribute most to feeling secure from the patients’ and family caregivers’ perspectives, especially since the introduction of specialist pal

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::c3a4f06bdb46e3362f9f3c5a1048bb5a
https://doi.org/10.1017/s147895152000125x

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Live well, die well – an international cohort study on experiences, concerns and preferences of patients in the last phase of life: the research protocol of the iLIVE study

Autor: Berivan Yildiz, Simon Allan, Misa Bakan, Pilar Barnestein-Fonseca, Michael Berger, Mark Boughey, Andri Christen, Gustavo G De Simone, Martina Egloff, John Ellershaw, Eline E C M Elsten, Steffen Eychmüller, Claudia Fischer, Carl Johan Fürst, Eric C T Geijteman, Gabriel Goldraij, Anne Goossensen, Svandis Iris Halfdanardottir, Dagny Faksvåg Haugen, Christel Hedman, Tanja Hoppe, Rosemary Hughes, Grethe Skorpen Iversen, Melanie Joshi, Hana Kodba-Ceh, Ida J Korfage, Urska Lunder, Nora Lüthi, Maria Luisa Martín-Roselló, Stephen Mason, Tamsin McGlinchey, Silvi Montilla, Birgit H Rasmussen, Inmaculada Ruiz-Torreras, Maria E C Schelin, Katrin Ruth Sigurdardottir, Valgerdur Sigurdardottir, Judit Simon, Ruthmarijke Smeding, Kjersti Solvåg, Julia Strupp, Vilma Tripodoro, Hugo M van der Kuy, Carin C D van der Rijt, Lia van Zuylen, Verónica I Veloso, Eva Vibora-Martin, Raymond Voltz, Sofia C Zambrano, Agnes van der Heide

Publikováno v: Yildiz, Berivan; Allan, Simon; Bakan, Misa; Barnestein-Fonseca, Pilar; Berger, Michael; Boughey, Mark; Christen, Andri; De Simone, Gustavo G; Egloff, Martina; Ellershaw, John; Elsten, Eline E C M; Eychmüller, Steffen; Fischer, Claudia; Fürst, Carl Johan; Geijteman, Eric C T; Goldraij, Gabriel; Goossensen, Anne; Halfdanardottir, Svandis Iris; Haugen, Dagny Faksvåg; Hedman, Christel; ... (2022). Live well, die well – an international cohort study on experiences, concerns and preferences of patients in the last phase of life: the research protocol of the iLIVE study. BMJ open, 12(8), e057229. BMJ Publishing Group 10.1136/bmjopen-2021-057229
e057229
BMJ Open, 12(8):057229. BMJ Publishing Group
Yildiz, B, Allan, S, Bakan, M, Barnestein-Fonseca, P, Berger, M, Boughey, M, Christen, A, de Simone, G G, Egloff, M, Ellershaw, J, Elsten, E E C M, Eychmüller, S, Fischer, C, Fürst, C J, Geijteman, E C T, Goldraij, G, Goossensen, A, Halfdanardottir, S I, Haugen, D F, Hedman, C, Hoppe, T, Hughes, R, Iversen, G S, Joshi, M, Kodba-Ceh, H, Korfage, I J, Lunder, U, Lüthi, N, Martín-Roselló, M L, Mason, S, Mcglinchey, T, Montilla, S, Rasmussen, B H, Ruiz-Torreras, I, Schelin, M E C, Sigurdardottir, K R, Sigurdardottir, V, Simon, J, Smeding, R, Solvåg, K, Strupp, J, Tripodoro, V, van der Kuy, H M, van der Rijt, C C D, van Zuylen, L, Veloso, V I, Vibora-Martin, E, Voltz, R, Zambrano, S C & van der Heide, A 2022, ' Live well, die well-an international cohort study on experiences, concerns and preferences of patients in the last phase of life : the research protocol of the iLIVE study ', BMJ Open, vol. 12, no. 8, 057229 . https://doi.org/10.1136/bmjopen-2021-057229
BMJ Open
BMJ Open, 12(8). BMJ Publishing Group

IntroductionAdequately addressing the needs of patients at the end of life and their relatives is pivotal in preventing unnecessary suffering and optimising their quality of life. The purpose of the iLIVE study is to contribute to high-quality person

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::9c20f725e384878e04da0a6d5c715b49
https://boris.unibe.ch/173513/1/e057229.full.pdf