Using photovoice to investigate patient experiences of lupus nephritis in Canada

Autor: Ann Elaine Clarke, Kim Cheema, Adrian Boucher, Francesca S Cardwell, Susan J Elliott, Megan R W Barber, Sydney George

Publikováno v: Lupus Science and Medicine, Vol 11, Iss 2 (2024)

Objective Lupus nephritis (LN) is a major cause of morbidity and mortality, affecting up to 60% of patients with systemic lupus erythematosus (SLE). The perspectives of patients with SLE have been explored; however, little is known of the lived exper

Externí odkaz: https://doaj.org/article/714ba0ebde4e45c79341dd98653ac3f2

Development of an interdisciplinary early rheumatoid arthritis care pathway

Autor: Xenia Gukova, Glen S. Hazlewood, Hector Arbillaga, Paul MacMullan, Gabrielle L. Zimmermann, Cheryl Barnabe, May Y. Choi, Megan R. W. Barber, Alexandra Charlton, Becky Job, Kelly Osinski, Nicole M. S. Hartfeld, Marlene W. Knott, Paris Pirani, Claire E. H. Barber

Publikováno v: BMC Rheumatology, Vol 6, Iss 1, Pp 1-13 (2022)

Abstract Background To develop an interdisciplinary care pathway for early rheumatoid arthritis (RA) including referral triage, diagnosis, and management. Methods Our process was a four-phase approach. In Phase 1, an anonymous survey was electronical

Externí odkaz: https://doaj.org/article/4d8ba50d322f40348b9d389ca0866437

Evaluating the Construct of Damage in Systemic Lupus Erythematosus

Autor: Sindhu R. Johnson, Dafna D. Gladman, Hermine I. Brunner, David Isenberg, Ann E. Clarke, Megan R. W. Barber, Laurent Arnaud, Paul R. Fortin, Marta Mosca, Alexandre E. Voskuyl, Susan Manzi, Cynthia Aranow, Anca Askanase, Graciela S. Alarcón, Sang‐Cheol Bae, Nathalie Costedoat‐Chalumeau, Jessica A. English, Guillermo J. Pons‐Estel, Bernardo A. Pons‐Estel, Rebecca Gilman, Ellen M. Ginzler, John G. Hanly, Soren Jacobsen, Kenneth Kalunian, Diane L. Kamen, Chynace Lambalgen, Alexandra Legge, S. Sam Lim, Anselm Mak, Eric F. Morand, Christine A. Peschken, Michelle Petri, Anisur Rahman, Rosalind Ramsey‐Goldman, John A. Reynolds, Juanita Romero‐Diaz, Guillermo Ruiz‐Irastorza, Jorge Sanchez‐Guerrero, Elisabet Svenungsson, Zahi Touma, Murray Urowitz, Evelyne Vinet, Ronald F. van Vollenhoven, Heather Waldhauser, Daniel J. Wallace, Asad Zoma, Ian N. Bruce

Publikováno v: Johnson, S R, Gladman, D D, Brunner, H I, Isenberg, D, Clarke, A E, Barber, M R W, Arnaud, L, Fortin, P R, Mosca, M, Voskuyl, A E, Manzi, S, Aranow, C, Askanase, A, Alarcón, G S, Bae, S-C, Costedoat-Chalumeau, N, English, J, Pons-Estel, G J, Pons-Estel, B A, Gilman, R, Ginzler, E, Hanly, J G, Jacobsen, S, Kalunian, K, Kamen, D L, Lambalgen, C, Legge, A, Lim, S S, Mak, A, Morand, E F, Peschken, C, Petri, M, Rahman, A, Ramsey-Goldman, R, Reynolds, J A, Romero-Diaz, J, Ruiz-Irastorza, G, Sanchez-Guerrero, J, Svenungsson, E, Touma, Z, Urowitz, M, Vinet, E, van Vollenhoven, R F, Waldhauser, H, Wallace, D J, Zoma, A & Bruce, I N 2023, ' Evaluating the construct of damage in systemic lupus erythematosus ', Arthritis Care & Research, vol. 75, no. 5, pp. 998-1006 . https://doi.org/10.1002/acr.24849
Arthritis Care and Research. John Wiley and Sons Inc.
Johnson, S R, Gladman, D D, Brunner, H I, Isenberg, D, Clarke, A E, Barber, M R W, Arnaud, L, Fortin, P R, Mosca, M, Voskuyl, A, Manzi, S, Aranow, C, Askanase, A, Alarcón, G S, Bae, S-C, Costedoat-Chalumeau, N, English, J, Pons-Estel, G J, Pons-Estel, B A, Gilman, R, Ginzler, E, Hanly, J G, Jacobsen, S, Kalunian, K, Kamen, D L, Lambalgen, C, Legge, A, Lim, S S, Mak, A, Morand, E F, Peschken, C, Petri, M, Rahman, A, Ramsey-Goldman, R, Reynolds, J A, Romero-Diaz, J, Ruiz-Irastorza, G, Sanchez-Guerrero, J, Svenungsson, E, Touma, Z, Urowitz, M, Vinet, E, van Vollenhoven, R F, Waldhauser, H, Wallace, D, Zoma, A & Bruce, I N 2022, ' Evaluating the construct of damage in systemic lupus erythematosus ', Arthritis Care and Research . https://doi.org/10.1002/acr.24849

The Systemic Lupus International Collaborating Clinics (SLICC), American College of Rheumatology (ACR), and the Lupus Foundation of America are developing a revised systemic lupus erythematosus (SLE) damage index (the SLICC/ACR Damage Index [SDI]). S

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::2333605fed86e94f753283ff10a9b242
https://doi.org/10.1002/acr.24849

Development of an interdisciplinary early rheumatoid arthritis care pathway

Autor: Xenia Gukova, Glen S. Hazlewood, Hector Arbillaga, Paul MacMullan, Gabrielle L. Zimmermann, Cheryl Barnabe, May Y. Choi, Megan R. W. Barber, Alexandra Charlton, Becky Job, Kelly Osinski, Nicole M. S. Hartfeld, Marlene W. Knott, Paris Pirani, Claire E. H. Barber

Publikováno v: BMC rheumatology. 6(1)

Background To develop an interdisciplinary care pathway for early rheumatoid arthritis (RA) including referral triage, diagnosis, and management. Methods Our process was a four-phase approach. In Phase 1, an anonymous survey was electronically distri

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::93cd3b267c1f472e0dd7d501207a9d6e
https://pubmed.ncbi.nlm.nih.gov/35751106