Zobrazeno 1 - 9
of 9
pro vyhledávání: '"Megan O'Boyle"'
Autor:
Rui Yin, Maxime Wack, Claire Hassen-Khodja, Michael T. McDuffie, Geraldine Bliss, Elizabeth J. Horn, Cartik Kothari, Brittany McLarney, Rebecca Davis, Kristen Hanson, Megan O’Boyle, Catalina Betancur, Paul Avillach
Publikováno v:
Molecular Autism, Vol 15, Iss 1, Pp 1-18 (2024)
Abstract Background Phelan-McDermid syndrome (PMS) is a rare neurodevelopmental disorder caused by 22q13 deletions that include the SHANK3 gene or pathogenic sequence variants in SHANK3. It is characterized by global developmental delay, intellectual
Externí odkaz:
https://doaj.org/article/6a99ab8229bd44dfa398029474c7791b
Web-Based Mindfulness-Based Interventions for Well-being: Randomized Comparative Effectiveness Trial
Autor:
Louisa G Sylvia, Mitchell R Lunn, Juno Obedin-Maliver, Robert N McBurney, W Benjamin Nowell, Rachel L Nosheny, Richard A Mularski, Millie D Long, Peter A Merkel, Mark J Pletcher, Roberta E Tovey, Christopher Scalchunes, Rebecca Sutphen, Ann S Martin, Elizabeth J Horn, Megan O'Boyle, Lisa Pitch, Michael Seid, Susan Redline, Sophie Greenebaum, Nevita George, Noah J French, Caylin M Faria, Nicha Puvanich, Dustin J Rabideau, Caitlin A Selvaggi, Chu Yu, Stephen V Faraone, Shilpa Venkatachalam, Debbe McCall, Sharon F Terry, Thilo Deckersbach, Andrew A Nierenberg
Publikováno v:
Journal of Medical Internet Research, Vol 24, Iss 9, p e35620 (2022)
BackgroundMindfulness can improve overall well-being by training individuals to focus on the present moment without judging their thoughts. However, it is unknown how much mindfulness practice and training are necessary to improve well-being. Object
Externí odkaz:
https://doaj.org/article/77ab1de8c9d845ecbbea1911bace79a9
Autor:
Dale C. Hesdorffer, PhD, Barbara L. Kroner, PhD, Jing Shen, PhD, Kathleen Farrell, MB, BCh, BAO, Steve Roberds, PhD, Brandy Fureman, PhD, Brianne McDonald, Lynn Egan, Monika Jones, Monica Weldon, Michael Harris, Kim Rice, Vinez Campbell, Juliann Brandish, Cindy Kercheval, Nichole Villas, Mary Ann Meskis, Vanessa Vogel-Farley, Ilene Miller, JD, Mike Bartenhagen, Heidi Grabenstatter, PhD, Karen Utley, Paige Nues, Angela Cherry, Gina Vozenilek, Scotty Sims, Tracy Dixon Salazar, PhD, Christina SanInocencio, MS, Stephanie Forman, Nora Wong, Kim Bischoff, Julie Walters, Megan O’Boyle, Geraldine Bliss, Audrey Davidow, Lisa Schoyer, Yssa DeWoody, PhD, Kira Wagner, Michael Arcieri, Amber Freed, Kim Nye, Jo Anne Nakagawa, JayEtta Hecker
Publikováno v:
The Journal of Pediatrics: X, Vol 2, Iss , Pp 100021- (2020)
Objective: To evaluate the impact of pediatric sleep disturbances and night-time seizure monitoring of children with rare epilepsy syndromes on the sleep quality and mental health of caregivers. Study design: A cross-sectional study was conducted usi
Externí odkaz:
https://doaj.org/article/4d344e0f844b48a68a42cce3eb0d52ce
Publikováno v:
Therapeutic Advances in Rare Disease. 4:263300402311644
Background: Patient advocacy groups (PAGs) serve a vital role for rare disease patients and families by providing educational resources, support, and a sense of community. Motivated by patient need, PAGs are increasingly at the forefront of policy, r
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::b620be676b847d7e36a904b151a2efe1
https://doi.org/10.1177/26330040231164425
https://doi.org/10.1177/26330040231164425
Web-Based Mindfulness-Based Interventions for Well-being: Randomized Comparative Effectiveness Trial
Autor:
Louisa G Sylvia, Mitchell R Lunn, Juno Obedin-Maliver, Robert N McBurney, W Benjamin Nowell, Rachel L Nosheny, Richard A Mularski, Millie D Long, Peter A Merkel, Mark J Pletcher, Roberta E Tovey, Christopher Scalchunes, Rebecca Sutphen, Ann S Martin, Elizabeth J Horn, Megan O'Boyle, Lisa Pitch, Michael Seid, Susan Redline, Sophie Greenebaum, Nevita George, Noah J French, Caylin M Faria, Nicha Puvanich, Dustin J Rabideau, Caitlin A Selvaggi, Chu Yu, Stephen V Faraone, Shilpa Venkatachalam, Debbe McCall, Sharon F Terry, Thilo Deckersbach, Andrew A Nierenberg
Publikováno v:
Journal of medical Internet research. 24(9)
Background Mindfulness can improve overall well-being by training individuals to focus on the present moment without judging their thoughts. However, it is unknown how much mindfulness practice and training are necessary to improve well-being. Object
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::70aed9309fa91d4f18a517021a435ce7
https://pubmed.ncbi.nlm.nih.gov/36094813
https://pubmed.ncbi.nlm.nih.gov/36094813
Autor:
Louisa G Sylvia, Mitchell R Lunn, Juno Obedin-Maliver, Robert N McBurney, W Benjamin Nowell, Rachel L Nosheny, Richard A Mularski, Millie D Long, Peter A Merkel, Mark J Pletcher, Roberta E Tovey, Christopher Scalchunes, Rebecca Sutphen, Ann S Martin, Elizabeth J Horn, Megan O'Boyle, Lisa Pitch, Michael Seid, Susan Redline, Sophie Greenebaum, Nevita George, Noah J French, Caylin M Faria, Nicha Puvanich, Dustin J Rabideau, Caitlin A Selvaggi, Chu Yu, Stephen V Faraone, Shilpa Venkatachalam, Debbe McCall, Sharon F Terry, Thilo Deckersbach, Andrew A Nierenberg
BACKGROUND Mindfulness can improve overall well-being by training individuals to focus on the present moment without judging their thoughts. However, it is unknown how much mindfulness practice and training are necessary to improve well-being. OBJECT
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::8b455867d6a2b6bbf7787a45a6f7c7ad
https://doi.org/10.2196/preprints.35620
https://doi.org/10.2196/preprints.35620
Autor:
Holly L. Peay, Elizabeth L. Cope, Elizabeth Horn, Madelaine E. Faulkner, Thomas W. Carton, Megan O'Boyle, Lorraine B. Johnson
Publikováno v:
Researching Health Together: Engaging Patients and Stakeholders, From Topic Identification to Policy Change ISBN: 9781544351063
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::58dab9999d9eb740619d94499237705b
https://doi.org/10.4135/9781071909539.n20
https://doi.org/10.4135/9781071909539.n20
Autor:
Ilene Miller, Amber Freed, Yssa DeWoody, Kim Nye, Karen Utley, Julie Walters, Heidi L. Grabenstatter, JayEtta Hecker, Jo Anne Nakagawa, Monica Weldon, Mary Ann Meskis, Cindy Kercheval, Dale C. Hesdorffer, Gina Vozenilek, Barbara Kroner, Monika Jones, Vinez Campbell, Nora Wong, Geraldine Bliss, Audrey Davidow, Michael R. Harris, Kira Wagner, Megan O’Boyle, Mike Bartenhagen, Scotty Sims, Kim Rice, Lisa Schoyer, Nichole Villas, Kim Bischoff, Jing Shen, Christina SanInocencio, Kathleen Farrell, Vanessa Vogel-Farley, Lynn Egan, Juliann Brandish, Angela Cherry, Brianne McDonald, Brandy E. Fureman, Steve Roberds, Tracy Dixon Salazar, Michael Arcieri, Paige Nues, Stephanie Forman
Publikováno v:
The Journal of Pediatrics: X, Vol 2, Iss, Pp 100021-(2020)
Objective To evaluate the impact of pediatric sleep disturbances and night-time seizure monitoring of children with rare epilepsy syndromes on the sleep quality and mental health of caregivers. Study design A cross-sectional study was conducted using
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::f723d49822266836e5033d3ce31e3d0c
https://doi.org/10.1016/j.ympdx.2020.100021
https://doi.org/10.1016/j.ympdx.2020.100021
Autor:
Sarah E Daugherty, Sarita Wahba, Rachael Fleurence, Paul Avillach, Janice Buelow, Richard Colletti, Florian Eichler, Seth Ginsberg, Esi Morgan Dewitt, Robert McBurney, Peter A. Merkel, Richard Mularski, Marc Natter, Andrew A. Nierenberg, Liz Horn, Megan O'Boyle, Holly Peay, Mark Pletcher, Susan Redline, Bruce Robinson, Michael D Kappleman, Kathleen E. Sullivan, Sue Friedman, Rebecca Sutphen, John Walsh
Publikováno v:
Journal of the American Medical Informatics Association : JAMIA
The Patient-Centered Outcomes Research Institute (PCORI) recently launched PCORnet to establish a single inter-operable multicenter data research network that will support observational research and randomized clinical trials. This paper provides an
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::ad4911d471cbda4122d5b8b014296dec
http://europepmc.org/articles/PMC4078295
http://europepmc.org/articles/PMC4078295