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Autor:
Meier, M.E., Hagelstein-Rotman, M., Ven, A.C. van de, Geest, I.C.M. van der, Donker, O., Pichardo, S.E.C., Muller, P.C.E.H., Meeren, S.W. van der, Dorleijn, D.M.J., Winter, E.M., Sande, M.A.J. van de, Appelman-Dijkstra, N.M.
Publikováno v:
Orphanet Journal of Rare Diseases, 17, 1
Orphanet Journal of Rare Diseases, 17
Orphanet Journal of Rare Diseases, 17(1). BMC
Orphanet Journal of Rare Diseases, 17
Orphanet Journal of Rare Diseases, 17(1). BMC
Background Fibrous dysplasia/McCune-Albright syndrome (FD/MAS) may cause pain, impaired ambulation and decreased quality of life (QoL). International guidelines advocate management of FD/MAS in a tertiary multidisciplinary care pathway, but no longit
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::8cf0ee412f498da382a1cd25d945e043