Responsiveness and meaningful thresholds of PROMIS pain interference, fatigue, and physical function forms in adults with idiopathic inflammatory myopathies: Report from the OMERACT Myositis Working Group

Autor: Saygin, D, DiRenzo, D, Raaphorst, J, de Groot, I, Bingham, CO, Lundberg, IE, Regardt, M, Sarver, C, de Visser, M, Maxwell, LJ, Beaton, D, Kim, JY, Needham, M, Alexanderson, H, Christopher-Stine, L, Mecoli, CA, Park, JK

Publikováno v: In Seminars in Arthritis and Rheumatism February 2024 64

Demographics and Clinical Features Associated with Abnormal Small Bowel Motility in Systemic Sclerosis.

Autor: Cheah JX; Department of Medicine, University of California-Los Angeles, Los Angeles, CA., Perin J; Department of International Health, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD., Hughes M; Northern Care Alliance NHS Foundation Trust, Salford Care Organisation, Salford, UK.; Division of Musculoskeletal and Dermatological Sciences, The University of Manchester, Manchester Academic Health Science Centre, Manchester, UK., Mecoli CA; Johns Hopkins University, Department of Medicine, Division of Rheumatology, Baltimore, MD., Paik JJ; Johns Hopkins University, Department of Medicine, Division of Rheumatology, Baltimore, MD., Hummers LK; Johns Hopkins University, Department of Medicine, Division of Rheumatology, Baltimore, MD., Shah AA; Johns Hopkins University, Department of Medicine, Division of Rheumatology, Baltimore, MD., McMahan ZH; Division of Rheumatology, The University of Texas Health Science Center at Houston, Houston, TX.

Publikováno v: Rheumatology (Oxford, England) [Rheumatology (Oxford)] 2024 Oct 07. Date of Electronic Publication: 2024 Oct 07.

Construct validity of PROMIS pain interference, fatigue, and physical function as patient-reported outcomes in adults with idiopathic inflammatory myopathies: An international study from the OMERACT myositis working group.

Autor: Romich E; Division of Rheumatology, Department of Medicine, University of Pennsylvania, USA. Electronic address: ellen.romich@pennmedicine.upenn.edu., Saygin D; Division of Rheumatology, Department of Medicine, University of Pittsburgh, USA., DiRenzo D; Division of Rheumatology, Department of Medicine, University of Pennsylvania, USA., Mecoli CA; Division of Rheumatology, Department of Medicine, Johns Hopkins University, USA., de Groot I; Patient Research Partner, the Netherlands., Lodin K; Division of Rheumatology, Department of Medicine, Solna, Karolinska Institutet, Karolinska University, Stockholm, Sweden., Regardt M; Department of Neurobiology, Care Sciences and Society, Division of Occupational Therapy, Karolinska Institutet and Medical Unit Occupational Therapy and Physical Therapy, Karolinska University Hospital, Stockholm, Sweden., Sarver C; Patient Research Partner, USA., Kim JY; Division of Rheumatology, Department of Internal Medicine, Seoul National University Hospital and College of Medicine, Seoul, South Korea., Park JK; Division of Rheumatology, Department of Internal Medicine, Seoul National University Hospital and College of Medicine, Seoul, South Korea., Beer K; Department of Neurology, Fiona Stanley Hospital, IIID Murdoch University and University of Notre Dame, Perth, Australia., Needham M; Department of Neurology, Fiona Stanley Hospital, IIID Murdoch University and University of Notre Dame, Perth, Australia., Alexanderson H; Medical Unit Occupational Therapy and Physical Therapy, Karolinska University Hospital and Division of Rheumatology, Department of Medicine Solna, Karolinska Institutet, Stockholm, Sweden., Christopher-Stine L; Division of Rheumatology, Department of Medicine, Johns Hopkins University, USA., de Visser M; Department of Neurology, Amsterdam UMC, University of Amsterdam, Amsterdam Neuroscience, Amsterdam, the Netherlands., Raaphorst J; Department of Neurology, Amsterdam UMC, University of Amsterdam, Amsterdam Neuroscience, Amsterdam, the Netherlands.

Publikováno v: Seminars in arthritis and rheumatism [Semin Arthritis Rheum] 2024 Oct; Vol. 68, pp. 152534. Date of Electronic Publication: 2024 Aug 10.

Distinct clinical trajectories of gastrointestinal progression among patients with systemic sclerosis.

Autor: Perin J; Department of International Health, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA., Hughes M; Department of Rheumatology, Northern Care Alliance NHS Foundation Trust, Salford Care Organisation, Salford, UK.; Division of Musculoskeletal and Dermatological Sciences, The University of Manchester, Manchester, UK., Mecoli CA; Division of Rheumatology, Johns Hopkins University School of Medicine, Baltimore, MD, USA., Paik JJ; Division of Rheumatology, Johns Hopkins University School of Medicine, Baltimore, MD, USA., Gelber AC; Division of Rheumatology, Johns Hopkins University School of Medicine, Baltimore, MD, USA.; Department of Epidemiology, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA., Wigley FM; Division of Rheumatology, Johns Hopkins University School of Medicine, Baltimore, MD, USA., Hummers LK; Division of Rheumatology, Johns Hopkins University School of Medicine, Baltimore, MD, USA., Shah AA; Division of Rheumatology, Johns Hopkins University School of Medicine, Baltimore, MD, USA., Zeger SL; Department of Biostatistics, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA., McMahan ZH; Division of Rheumatology, UTHealth Houston, Houston, TX, USA.

Publikováno v: Rheumatology (Oxford, England) [Rheumatology (Oxford)] 2024 Aug 30. Date of Electronic Publication: 2024 Aug 30.

Collaborative research in myositis-related disorders: MIHRA, a global shared community model.

Autor: Saketkoo LA; New Orleans Scleroderma and Sarcoidosis Patient Care and Research Center, Louisiana State University and Tulane University Schools of Medicine, New Orleans, LA, USA. lsaketk@tulane.edu., Paik JJ; Johns Hopkins Division of Rheumatology, Johns Hopkins University School of Medicine, Baltimore, MD, USA., Alexanderson H; Karolinska Medical Unit Occupational Therapy and Physical Therapy, Karolinska University Hospital, and Division of Rheumatology, Department of Medicine, Solna, Karolinska Institutet, Stockholm, Sweden., Dimachkie MM; Department of Neurology University of Kansas, Kansas City, KS, USA., Ernste FC; Mayo Clinic, Rochester, Minnesota, USA., Naddaf E; Mayo Clinic, Rochester, Minnesota, USA., Shafranski B; Patient Research Partner, New Jersey, USA., Gupta L; Department of Rheumatology, Royal Wolverhampton Hospitals NHS Trust, Wolverhampton, and Division of Musculoskeletal and Dermatological Sciences, Faculty of Biology, Medicine and Health, The University of Manchester, UK., Mecoli CA; Johns Hopkins Division of Rheumatology, Johns Hopkins University School of Medicine, Baltimore, MD, USA., Saygin D; Division of Rheumatology, University of Pittsburgh, Pittsburgh, PA, USA., Albayda J; Johns Hopkins Division of Rheumatology, Johns Hopkins University School of Medicine, Baltimore, MD, USA., Basharat P; Western University, Ontario, Canada., Day JA; Walter and Eliza Hall Institute of Medical Research, Melbourne, Australia., Valenzuela A; Department of Rheumatology and Clinical Immunology, Pontificia Universidad Católica de Chile, Santiago, Chile., Bromley R; The Myositis Association Columbia, MD, USA., de Groot I; The Myositis Association, Columbia, MD, USA, and Spierziekten Nederland (Dutch patient association for NeuroMuscular Diseases), Dutch Myositis Network, TMA Medical Advisory Board, The Netherlands., Edison SE; CureJM Foundation, Maryland, USA., Lanis A; Seattle Children's Hospital, Seattle, WA, USA., Lood C; Division of Rheumatology, University of Washington, Seattle, WA, USA., Regardt M; Karolinska Medical Unit Occupational Therapy and Physical Therapy, Karolinska University Hospital, and Division of Rheumatology, Department of Medicine, Solna, Karolinska Institutet, Stockholm, Sweden., Yi BY; Johns Hopkins Division of Rheumatology, Johns Hopkins University School of Medicine, Baltimore, MD, USA., Benitez AC; Rheumatology Department at the National Hospital Alejandro Posadas, University of Buenos Aires, Argentina., Chinoy H; Division of Musculoskeletal and Dermatological Sciences, Faculty of Biology, Medicine and Health, The University of Manchester, and Department of Rheumatology, Salford Royal Hospital, Northern Care Alliance NHS Foundation Trust, Manchester Academic Health Science Centre, Salford, UK., Christopher-Stine L; Johns Hopkins Division of Rheumatology, Johns Hopkins University School of Medicine, Baltimore, MD, USA., Isenberg DA; Centre for Rheumatology, Division of Medicine, University College London, UK., Lang B; Department of Paediatrics and Medicine, Dalhousie University and IWK Health, Halifax, NS, Canada., Oddis CV; Division of Rheumatology, University of Pittsburgh, Pittsburgh, PA, USA., van Royen A; Universiteit Utrecht, Utrecht, The Netherlands., Vencovsky J; Institute of Rheumatology, Prague, Czech Republic., Werth VP; Department of Dermatology, University of Pennsylvania and Corporal Michael J. Crescenz VAMC, Philadelphia, PA, USA., Machado PM; Department of Neuromuscular Diseases and Centre for Rheumatology, University College London; and Department of Rheumatology and Queen Square Centre for Neuromuscular Diseases, University College London Hospitals NHS Foundation Trust, London, UK.

Publikováno v: Clinical and experimental rheumatology [Clin Exp Rheumatol] 2024 Feb; Vol. 42 (2), pp. 207-212. Date of Electronic Publication: 2024 Mar 04.