Return of aggregate results to study participants: Facilitators, barriers, and recommendations

Autor: Gina M. Sgro, Maureen Maurer, Beth Nguyen, Joanna E. Siegel

Publikováno v: Contemporary Clinical Trials Communications, Vol 33, Iss , Pp 101136- (2023)

Background: Most researchers and study participants believe that the summary, or aggregate, results of health research should be returned to study participants. However, researchers often do not return aggregate results. A better understanding of the

Externí odkaz: https://doaj.org/article/b5ffadf8d0ed46a49bfa504a27a4fbc9

Lessons Learned from Developing Plain Language Summaries of Research Studies

Autor: Maureen Maurer, Joanna E. Siegel, Kirsten B. Firminger, Jane Lowers, Tania Dutta, Jane S. Chang

Publikováno v: Health Literacy Research and Practice, Vol 5, Iss 2, Pp e155-e161 (2021)

Background: Plain language translation may facilitate the public's ability to understand and use results of scientific research. Brief description of activity: This article describes the Patient-Centered Outcomes Research Institute's (PCORI) approach

Externí odkaz: https://doaj.org/article/5dd86dd4ebe94f8bab964d07e2bb21d4

Understanding the Influence and Impact of Stakeholder Engagement in Patient-centered Outcomes Research: a Qualitative Study

Autor: Maureen Maurer, Rikki Mangrum, Tandrea Hilliard-Boone, Andrew Amolegbe, Kristin L. Carman, Laura Forsythe, Rachel Mosbacher, Julie Kennedy Lesch, Krista Woodward

Publikováno v: Journal of General Internal Medicine. 37:6-13

Background Engaging patients and other stakeholders as partners in research offers promise in improving the relevance and usefulness of research findings. Objective To explore the influence and impact of patient and other stakeholder engagement on th

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::ab712d7d897405c9fcafa2e83246758e
https://doi.org/10.1007/s11606-021-07104-w

What motivates patients and caregivers to engage in health research and how engagement affects their lives: Qualitative survey findings

Autor: Kristin L. Carman, Andrea Heckert, Rikki Mangrum, Andrew Amolegbe, Rachel C. Hemphill, Laura P. Forsythe, Ninma Fearon, Maureen Maurer, Laura Esmail, Lisa Maureen Stewart

Publikováno v: Health Expectations, Vol 23, Iss 2, Pp 328-336 (2020)
Health Expectations : An International Journal of Public Participation in Health Care and Health Policy

Background US research organizations increasingly are supporting patient and stakeholder engagement in health research with a goal of producing more useful, relevant and patient-centered evidence better aligned with real-world clinical needs. The Pat

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::f8d571b0bfc0c41d8786d57cb4ad85f5
https://doaj.org/article/7fa64c7c025e4d568d4c3a77f65de4be

Lessons Learned from Developing Plain Language Summaries of Research Studies

Autor: Kirsten Firminger, Tania Dutta, Jane S Chang, Jane Lowers, Maureen Maurer, Joanna E. Siegel

Publikováno v: Health Literacy Research and Practice, Vol 5, Iss 2, Pp e155-e161 (2021)
HLRP: Health Literacy Research and Practice

Background: Plain language translation may facilitate the public's ability to understand and use results of scientific research. Brief description of activity: This article describes the Patient-Centered Outcomes Research Institute's (PCORI) approach

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::4c5d44d877b095b9feea24cb515f33e3
https://doi.org/10.3928/24748307-20210524-01