Zobrazeno 1 - 10
of 198
pro vyhledávání: '"Maureen, Smith"'
Autor:
Alison H. Howie, Kylie Tingley, Michal Inbar-Feigenberg, John J. Mitchell, Kim Angel, Jenifer Gentle, Maureen Smith, Martin Offringa, Nancy J. Butcher, Philippe M. Campeau, Pranesh Chakraborty, Alicia Chan, Dean Fergusson, Eva Mamak, Peyton McClelland, Saadet Mercimek-Andrews, Aizeddin Mhanni, Zeinab Moazin, Cheryl Rockman-Greenberg, C. Anthony Rupar, Becky Skidmore, Sylvia Stockler, Kednapa Thavorn, Alexandra Wyatt, Beth K. Potter, INFORM RARE Network
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 19, Iss 1, Pp 1-15 (2024)
Abstract Background To inform the development of a core outcome set (COS) for children and youth with mucopolysaccharidoses (MPS), we aimed to identify all outcomes and associated outcome measurement instruments that are reported in recent clinical t
Externí odkaz:
https://doaj.org/article/3f5faa2b5e894b579d9b0f0a9ed05831
Autor:
Ellen B. M. Elsman, Lidwine B. Mokkink, Caroline B. Terwee, Dorcas Beaton, Joel J. Gagnier, Andrea C. Tricco, Ami Baba, Nancy J. Butcher, Maureen Smith, Catherine Hofstetter, Olalekan Lee Aiyegbusi, Anna Berardi, Julie Farmer, Kirstie L. Haywood, Karolin R. Krause, Sarah Markham, Evan Mayo-Wilson, Ava Mehdipour, Juanna Ricketts, Peter Szatmari, Zahi Touma, David Moher, Martin Offringa
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 8, Iss 1, Pp 1-16 (2024)
Abstract Purpose Although comprehensive and widespread guidelines on how to conduct systematic reviews of outcome measurement instruments (OMIs) exist, for example from the COSMIN (COnsensus-based Standards for the selection of health Measurement INs
Externí odkaz:
https://doaj.org/article/0d2e50b284b54f3abd496116916531cb
Autor:
Janet Jull, Maureen Smith, Meg Carley, Dawn Stacey, Ian D. Graham, The Cochrane Decision Coaching Review Team
Publikováno v:
Systematic Reviews, Vol 13, Iss 1, Pp 1-17 (2024)
Abstract Background Co-production is a collaborative approach to prepare, plan, conduct, and apply research with those who will use or be impacted by research (knowledge users). Our team of knowledge users and researchers sought to conduct and evalua
Externí odkaz:
https://doaj.org/article/3ab3f68f9fb246c09d3eddad8b28a4cd
Autor:
Trevor Jamieson, Kevin Thorpe, Francois Bernier, Melyssa Aronson, Marc Clausen, Rita Kodida, Emma Reble, June C Carroll, Jordan Lerner-Ellis, Yvonne Bombard, Matthew Osmond, Muhammad Mamdani, Ronald Cohn, Emily Seto, Hanna Faghfoury, Josh Silver, Maureen Smith, Lauren Chad, Jan M Friedman, Robin Z Hayeems, Michael Brudno, Gregory Costain, Quynh Pham, Anne-Marie Laberge, Christian Marshall, Cheryl Shuman, Rebekah Jobling, Irfan Dhalla, Serena Shastri-Estrada, Daniel Assamad, Stephanie Luca, Stacy Hewson, Eriskay Liston, Frank Rudzicz, Wendy Ungar, Guylaine D'Amours
Publikováno v:
BMJ Open, Vol 14, Iss 9 (2024)
Introduction Genetic testing is used across medical disciplines leading to unprecedented demand for genetic services. This has resulted in excessive waitlists and unsustainable pressure on the standard model of genetic healthcare. Alternative models
Externí odkaz:
https://doaj.org/article/8affa2793f8c4b6b9384324d8a29b5cd
Autor:
Ellen B. M. Elsman, Maureen Smith, Catherine Hofstetter, Frank Gavin, Estelle Jobson, Sarah Markham, Juanna Ricketts, Ami Baba, Nancy J. Butcher, Martin Offringa
Publikováno v:
Research Involvement and Engagement, Vol 10, Iss 1, Pp 1-11 (2024)
Abstract Background In recent years, projects to develop reporting guidelines have attempted to integrate the perspectives of patients and public members. Best practices for patient and public involvement (PPI) in such projects have not yet been esta
Externí odkaz:
https://doaj.org/article/b82280a99bfd49fb8573212602c0ab87
Autor:
Guillaume Fontaine, Maureen Smith, Tori Langmuir, Karim Mekki, Hanan Ghazal, Elizabeth Estey Noad, Judy Buchan, Vinita Dubey, Andrea M. Patey, Nicola McCleary, Emily Gibson, Mackenzie Wilson, Amjad Alghamyan, Kateryna Zmytrovych, Kimberly Thompson, Jacob Crawshaw, Jeremy M. Grimshaw, Trevor Arnason, Jamie Brehaut, Susan Michie, Melissa Brouwers, Justin Presseau
Publikováno v:
BMC Public Health, Vol 24, Iss 1, Pp 1-19 (2024)
Abstract Background Promoting the uptake of vaccination for infectious diseases such as COVID-19 remains a global challenge, necessitating collaborative efforts between public health units (PHUs) and communities. Applied behavioural science can play
Externí odkaz:
https://doaj.org/article/9f9eb97e9e0b42e290aff74fc49d0b9b
Autor:
Krystina B. Lewis, Maureen Smith, Dawn Stacey, Meg Carley, Ian D. Graham, Cochrane Review of Patient Decision Aids Research Team
Publikováno v:
Research Involvement and Engagement, Vol 10, Iss 1, Pp 1-16 (2024)
Abstract Background When people who can use or benefit from research findings are engaged as partners on study teams, the quality and impact of findings are better. These people can include patients/consumers and clinicians who do not identify as res
Externí odkaz:
https://doaj.org/article/3f7d5509397f4b348ab019f89ad2ed67
Publikováno v:
Trials, Vol 25, Iss 1, Pp 1-14 (2024)
Abstract Background Despite the critical importance of clinical trials to provide evidence about the effects of intervention for children and youth, a paucity of published high-quality pediatric clinical trials persists. Sub-optimal reporting of key
Externí odkaz:
https://doaj.org/article/e0797e08a91d45f9acca01d8a37177ef
Autor:
Ami Baba, Dawn P. Richards, Maureen Smith, Nicole Pallone, Shelley Vanderhout, Matthew Prebeg, Ellen B. M. Elsman, Beth K. Potter, Martin Offringa, Nancy J. Butcher
Publikováno v:
Research Involvement and Engagement, Vol 9, Iss 1, Pp 1-12 (2023)
Abstract Background Pediatric trials are possible through voluntary participation of children, youth (age ≤ 18 years), and their families. Despite important arguments for trialists to provide trial progress or results, and evidence that participant
Externí odkaz:
https://doaj.org/article/912f4ee4e28b4ade988b26681ba9b47f