Zobrazeno 1 - 10 of 500 pro vyhledávání: '"Maud, M. A."'
1
Akademický článek
Educating patients about patient-reported outcomes—are we there yet?
Autor: Elizabeth Unni, Maud M. van Muilekom, Kate Absolom, Bishnu Bajgain, Lotte Haverman, Maria Santana
Publikováno v: Journal of Patient-Reported Outcomes, Vol 8, Iss 1, Pp 1-4 (2024)
Abstract Background Using Patient Reported Outcome Measures (PROMs) in clinical settings can improve patient outcomes by enhancing communication between patient and provider. There has been significant improvements in the development of PROMs, their
Externí odkaz: https://doaj.org/article/33885552153b491ebc257d9ce2c32c96
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2
Akademický článek
PROs for RARE: protocol for development of a core patient reported outcome set for individuals with genetic intellectual disability
Autor: Nadia Y. van Silfhout, Maud M. van Muilekom, Clara D. van Karnebeek, Lotte Haverman, Agnies M. van Eeghen
Publikováno v: Orphanet Journal of Rare Diseases, Vol 19, Iss 1, Pp 1-9 (2024)
Abstract Introduction Rare genetic neurodevelopmental disorders and intellectual disability (ID), collectively called genetic ID (GID), can profoundly impact daily functioning and overall well-being of affected individuals. To improve our understandi
Externí odkaz: https://doaj.org/article/867cad4038a642219531ff65d47c129a
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3
Akademický článek
Outcome measures in Angelman syndrome
Autor: Doesjka A. Hagenaar, Karen G. C. B. Bindels-de Heus, Maud M. van Gils, Louise van den Berg, Leontine W. ten Hoopen, Philine Affourtit, Johan J. M. Pel, Koen F. M. Joosten, Manon H. J. Hillegers, Henriëtte A. Moll, Marie-Claire Y. de Wit, Gwen C. Dieleman, Sabine E. Mous
Publikováno v: Journal of Neurodevelopmental Disorders, Vol 16, Iss 1, Pp 1-20 (2024)
Abstract Background Angelman syndrome (AS) is a rare neurodevelopmental disorder characterized by severe intellectual disability, little to no expressive speech, visual and motor problems, emotional/behavioral challenges, and a tendency towards hyper
Externí odkaz: https://doaj.org/article/856668e8b5f44749a3e85e1460045e02
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4
Akademický článek
Microstructural integrity of the locus coeruleus and its tracts reflect noradrenergic degeneration in Alzheimer’s disease and Parkinson’s disease
Autor: Chen-Pei Lin, Irene Frigerio, John G. J. M. Bol, Maud M. A. Bouwman, Alex J. Wesseling, Martin J. Dahl, Annemieke J. M. Rozemuller, Ysbrand D. van der Werf, Petra J. W. Pouwels, Wilma D. J. van de Berg, Laura E. Jonkman
Publikováno v: Translational Neurodegeneration, Vol 13, Iss 1, Pp 1-17 (2024)
Abstract Background Degeneration of the locus coeruleus (LC) noradrenergic system contributes to clinical symptoms in Alzheimer’s disease (AD) and Parkinson’s disease (PD). Diffusion magnetic resonance imaging (MRI) has the potential to evaluate
Externí odkaz: https://doaj.org/article/d072a13e824f4775bc8fbafeb9002b95
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5
Akademický článek
Regional differences in synaptic degeneration are linked to alpha-synuclein burden and axonal damage in Parkinson’s disease and dementia with Lewy bodies
Autor: Irene Frigerio, Maud M. A. Bouwman, Ruby T. G. M. M. Noordermeer, Ema Podobnik, Marko Popovic, Evelien Timmermans, Annemieke J. M. Rozemuller, Wilma D. J. van de Berg, Laura E. Jonkman
Publikováno v: Acta Neuropathologica Communications, Vol 12, Iss 1, Pp 1-16 (2024)
Abstract Regional differences in synaptic degeneration may underlie differences in clinical presentation and neuropathological disease progression in Parkinson’s Disease (PD) and Dementia with Lewy bodies (DLB). Here, we mapped and quantified synap
Externí odkaz: https://doaj.org/article/6d9d11a8c2154852a86459dbc3824377
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6
Akademický článek
PROs for RARE: protocol for development of a core patient reported outcome set for individuals with genetic intellectual disability.
Autor: van Silfhout, Nadia Y.1,2,3,4,5 (AUTHOR), van Muilekom, Maud M.1,4 (AUTHOR), van Karnebeek, Clara D.2,3,5 (AUTHOR), Haverman, Lotte1,6 (AUTHOR), van Eeghen, Agnies M.2,3,5,7,8 (AUTHOR) a.m.vaneeghen@amsterdamumc.nl
Publikováno v: Orphanet Journal of Rare Diseases. 9/27/2024, Vol. 19 Issue 1, p1-9. 9p.
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7
Akademický článek
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8
Akademický článek
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10
Akademický článek
The five continuum of care criteria that should accompany rectal artesunate interventions: lessons learned from an implementation study in Malawi
Autor: Monique S. Oliff, Pamela Muniina, Kenneth Babigumira, John Phuka, Hans Rietveld, John Sande, Humphreys Nsona, Maud M. Lugand
Publikováno v: Malaria Journal, Vol 22, Iss 1, Pp 1-14 (2023)
Abstract Background Rectal artesunate (RAS) is a World Health Organization (WHO) recommended intervention that can save lives of children 6 years and younger suffering from severe malaria and living in remote areas. Access to RAS and a referral syste
Externí odkaz: https://doaj.org/article/e0070a16750a4df28327b6a651c9f5dc
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