Zobrazeno 1 - 8
of 8
pro vyhledávání: '"Matteo Macilotti"'
Autor:
Matteo Macilotti
Publikováno v:
European Journal of Health Law. 19:271-288
Abstract In my article, I discuss the role of informed consent in the context of biobanking. I argue that the basic issue in understanding the role of the consent is one of identifying the interests at stake and determining which of these interests w
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::efdc959df8c68b653a9ea7fdeb6e4a60
https://doi.org/10.1163/157180912x639134
https://doi.org/10.1163/157180912x639134
In the last few years, the boom in biobanking has prompted a lively debate on a host of interrelated legal issues, such as the Gordian knot of the ownership of biological materials, as well as privacy concerns. The latter are due to the difficulty of
Publikováno v:
Ethics, Law and Governance of Biobanking ISBN: 9789401795722
The discussion about genetic information and about the related possibility of storing DNA samples and associated data into an organised database has, in Italy, only recently developed and for sure it did not outline all the core problems and possible
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::2dfc7288a938dc6c74d320f42152b89b
https://doi.org/10.1007/978-94-017-9573-9_5
https://doi.org/10.1007/978-94-017-9573-9_5
Publikováno v:
Comparative Issues in the Governance of Research Biobanks
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::66993e7ebc8b46f56c5eb8fa1675f100
https://doi.org/10.1007/978-3-642-33116-9
https://doi.org/10.1007/978-3-642-33116-9
Autor:
Matteo Macilotti
Publikováno v:
Comparative Issues in the Governance of Research Biobanks ISBN: 9783642331152
The debate about the requirements of informed consent in research biobanks has been heated in the last few years. This debate originates from the peculiarity that characterises the condition of tissue stored in a biobank. Unlike in the traditional re
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::3bb236e4bfd5f01fdd741a0081523385
https://doi.org/10.1007/978-3-642-33116-9_9
https://doi.org/10.1007/978-3-642-33116-9_9
Publikováno v:
Comparative Issues in the Governance of Research Biobanks ISBN: 9783642331152
This book constitutes the proceedings of the International Conference entitled “Comparative Issues in the Governance of Research Biobanks: Property, Privacy, Intellectual Property, and the Role of Technology”, held in Trento, in May 2010. The Con
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::b6fe927ed2a6abc6f99e5e089084c181
https://doi.org/10.1007/978-3-642-33116-9_1
https://doi.org/10.1007/978-3-642-33116-9_1
Autor:
Matteo, Macilotti
Publikováno v:
Revista de derecho y genoma humano = Law and the human genome review. (34)
This paper discusses the legal status of human tissue when detached from the body. Scientific advances compel a change in legal perspective from the traditional 'material' view to recognise the 'informational' capacity of tissue. The aim of this arti
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=pmid________::dbb1f69772c1501746e8b8cca8fc78fa
https://pubmed.ncbi.nlm.nih.gov/22977958
https://pubmed.ncbi.nlm.nih.gov/22977958
Autor:
Ségolène Aymé, Simon Woods, Matteo Macilotti, Mats G. Hansson, Hugh Dawkins, Deborah Mascalzoni, Bartha Maria Knoppers
Publikováno v:
Nature Reviews Genetics. 14:372-372
Rare disease research is threatened by proposed changes to European privacy laws. Rare disease research is threatened by proposed changes to European privacy laws.
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::3080f4d5f26c0513d5aff561412afb3a
https://doi.org/10.1038/nrg3494
https://doi.org/10.1038/nrg3494