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Autor:
Pihlstrøm, Hege Kampen, Weedon-Fekjær, Mina Susanne, Bjerkely, Birgitte Leisner, von der Lippe, Charlotte, Ørstavik, Kristin, Mathisen, Per, Heimdal, Ketil, Jenssen, Trond Geir, Dahle, Dag Olav, Solberg, Olga, Sigurdardottir, Solrun
Publikováno v:
Pihlstrøm, Hege Kampen Weedon-Fekjær, Mina Susanne Bjerkely, Birgitte Leisner von der Lippe, Charlotte Ørstavik, Kristin Mathisen, Per Heimdal, Ketil Jenssen, Trond Geir Dahle, Dag Olav Solberg, Olga Sigurdardottir, Solrun . Health-related quality of life in Norwegian adults with Fabry disease: Disease severity, pain, fatigue and psychological distress. JIMD Reports. 2021, 62(1), 56-69
JIMD Reports
JIMD Reports
Autor:
Sigurdardottir, Solrun, Bjerkely, Birgitte, Jenssen, Trond G., Mathisen, Per, von der Lippe, Charlotte, Ørstavik, Kristin, Heimdal, Ketil, Dahle, Dag Olav, Weedon-Fekjær, Mina Susanne, Solberg, Olga, Pihlstrøm, Hege K.
Additional file 2: Figure S1A. SF-36 domain scores for males with FD at follow-ups compared to the Norwegian male population.
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::f1af7e4e04a570aef5e7c020cd515a23
Autor:
Sigurdardottir, Solrun, Bjerkely, Birgitte, Jenssen, Trond G., Mathisen, Per, von der Lippe, Charlotte, Ørstavik, Kristin, Heimdal, Ketil, Dahle, Dag Olav, Weedon-Fekjær, Mina Susanne, Solberg, Olga, Pihlstrøm, Hege K.
Additional file 3: Figure S1B. SF-36 domain scores for females with FD at follow-ups compared to the Norwegian female population.
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::540ca0dec47c34082ab5d85849751fce
Autor:
Sigurdardottir, Solrun, Bjerkely, Birgitte, Jenssen, Trond G., Mathisen, Per, von der Lippe, Charlotte, Ørstavik, Kristin, Heimdal, Ketil, Dahle, Dag Olav, Weedon-Fekjær, Mina Susanne, Solberg, Olga, Pihlstrøm, Hege K.
Additional file 1: Bar chart 1. The X-axis shows the year of follow-ups, including the baseline (first visit). The Y-axis shows the frequency of SF-36 data included or not included in the database for longitudinal data. Total number of observations a
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::2960daeb9973594c5468df9fe5d246f8
Autor:
Sigurdardottir, Solrun, Bjerkely, Birgitte, Jenssen, Trond G., Mathisen, Per, von der Lippe, Charlotte, Ørstavik, Kristin, Heimdal, Ketil, Dahle, Dag Olav, Weedon-Fekjær, Mina Susanne, Solberg, Olga, Pihlstrøm, Hege K.
Additional file 5: Table S1. Model fit for PCS and MCS trajectories over time.
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::9b66762fdf34950cffffa24e10fdbbb1
Autor:
Sigurdardottir, Solrun, Bjerkely, Birgitte, Jenssen, Trond G., Mathisen, Per, von der Lippe, Charlotte, Ørstavik, Kristin, Heimdal, Ketil, Dahle, Dag Olav, Weedon-Fekjær, Mina Susanne, Solberg, Olga, Pihlstrøm, Hege K.
Additional file 4: Figure S2. Mental Component Summary Scores for 30 participants with FD between baseline and 3-5 year follow-ups.
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::5ed2e02c93cf2bcaa3e8f745d4167913