The PURPLE N study: objective and perceived nutritional status in children and adolescents with cerebral palsy

Autor: Andras, Fogarasi, Elisa, Fazzi, Ana R P, Smorenburg, Maria, Mazurkiewicz-Beldzinska, Argirios, Dinopoulos, Alena, Pobiecka, Dea, Schröder-van den Nieuwendijk, Josef, Kraus, Hasan, Tekgül, Maria, Koutsaki, Giovanni, Baranello, Simona, Bertoli, Elisa, Caramaschi, Duccio Maria, Cordelli, Ramona, De Amicis, Maria Luisa, Forchielli, Azzurra, Guerra, Althea, Lividini, Maddalena, Marchiò, Andrea, Rossi, Dea Schröder-van den, Nieuwendijk, Jędrzej, Fliciński, Barbara, Gurda, Anna, Lemska, Agnieszka, Matheisel, Zuzanna, Niwinska, Małgorzata, Pawłowicz, Agnieszka, Sawicka, Barbara, Steinborn, Marta, Szmuda, Anna, Winczewska-Wiktor, Marta, Zawadzka, Ebru, Arhan, Kursad, Aydin, Erhan, Bayram, Kursat Bora, Carman, Pinar, Edem, Deniz, Ertem, Özben Akıncı, Goktas, Serdal, Gungor, Goknur, Haliloglu, Aydan, Kansu, Mustafa, Kömür, Akmer, Mutlu, Ceyda Tuna, Kırsaçlıoğlu, Çetin, Okuyaz, Bilge, Özgör, Yesim, Ozturk, Safiye Gunes, Sager, Esra, Sarıgeçili, Mukadder Ayse, Selimoglu, Hepsen Mine Öztürk, Serin, Serap Tıraş, Teber, Gülten, Thomas, Dilsad, Turkdogan, Burcu, Volkan, Coşkun, Yarar, Sanem Keskin, Yilmaz

Purpose: To obtain information on characteristics, management, current objective nutritional status and perception of nutritional status of children with cerebral palsy (CP) from healthcare professionals (HCPs) and caregivers. Materials and methods:

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::9727200483ce29407dbc20f7e3e3d6a8
https://avesis.deu.edu.tr/publication/details/824a25c6-3f2f-4d7f-94fc-9d7cf13de9ea/oai

The PURPLE N study: objective and perceived nutritional status in children and adolescents with cerebral palsy

Autor: Fogarasi, Andras, Fazzi, Elisa, Smorenburg, Ana R. P., Mazurkiewicz-Beldzinska, Maria, Dinopoulos, Argirios, Pobiecka, Alena, Nieuwendijk, Dea Schröder-van den, Kraus, Josef, Tekgül, Hasan, Koutsaki, Maria, Baranello, Giovanni, Bertoli, Simona, Caramaschi, Elisa, Cordelli, Duccio Maria, De Amicis, Ramona, Forchielli, Maria Luisa, Guerra, Azzurra, Lividini, Althea, Marchiò, Maddalena, Rossi, Andrea, Fliciński, Jędrzej, Gurda, Barbara, Lemska, Anna, Matheisel, Agnieszka, Niwinska, Zuzanna, Pawłowicz, Małgorzata, Sawicka, Agnieszka, Steinborn, Barbara, Szmuda, Marta, Winczewska-Wiktor, Anna, Zawadzka, Marta, Arhan, Ebru, Aydin, Kursad, Bayram, Erhan, Carman, Kursat Bora, Edem, Pinar, Ertem, Deniz, Goktas, Özben Akıncı, Gungor, Serdal, Haliloglu, Goknur, Kansu, Aydan, Kömür, Mustafa, Mutlu, Akmer, Kırsaçlıoğlu, Ceyda Tuna, Okuyaz, Çetin, Özgör, Bilge, Ozturk, Yesim, Sager, Safiye Gunes, Sarıgeçili, Esra, Selimoglu, Mukadder Ayse, Serin, Hepsen Mine Öztürk, Teber, Serap Tıraş, Thomas, Gülten, Turkdogan, Dilsad, Volkan, Burcu, Yarar, Coşkun, Yilmaz, Sanem Keskin

To obtain information on characteristics, management, current objective nutritional status and perception of nutritional status of children with cerebral palsy (CP) from healthcare professionals (HCPs) and caregivers. A detailed survey of several ite

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::1a323b8075b47d6ec7ba063855f20877

Autonomic seizure with prominent apnea in patient with SCN8A-related epileptic encephalopathy

Autor: Zawadzka, Marta ^*, Matheisel, Agnieszka, Konieczna, Seweryna, Mazurkiewicz-Bełdzińska, Maria

Publikováno v: In Epilepsy Research November 2020 167

The PURPLE N study: objective and perceived nutritional status in children and adolescents with cerebral palsy.

Autor: Fogarasi A; Child Neurology Department, Bethesda Children's Hospital, Budapest, Hungary., Fazzi E; Unit of Child Neurology and Psychiatry, ASST Spedali Civili, Brescia, Italy.; Department of Clinical and Experimental Sciences, University of Brescia, Brescia, Italy., Smorenburg ARP; Department of Specialized Nutrition, Danone Nutricia Research, Utrecht, The Netherlands., Mazurkiewicz-Beldzinska M; Department of Developmental Neurology, Medical University of Gdańsk, Gdańsk, Poland., Dinopoulos A; 3rd Department of Pediatrics, Attikon General Hospital, University of Athens, Athens, Greece., Pobiecka A; Department of Pediatrics, University Hospital Trnava, Slovakia., Schröder-van den Nieuwendijk D; Department of Dietetics, Roessingh Rehabilitation Centre, Enschede, The Netherlands., Kraus J; Department of Child Neurology, University Hospital Motol, Czech Republic., Tekgül H; Ege University School of Medicine, Pediatric Neurology, Izmir, Turkey., Kraus J; Department of Child Neurology, 2nd Faculty of Medicine, Charles University, University Hospital Motol, Prague, Czech Republic., Dinopoulos A; Pediatric Neurology Unit, 3rd Department of Pediatrics, University of Athens, Attikon General Hospital, Athens., Koutsaki M; Pediatric Neurology Unit, 3rd Department of Pediatrics, University of Athens, Attikon General Hospital, Athens., Fogarasi A; Bethesda Children's Hospital, Budapest., Baranello G; Fondazione IRCCS, Neurological Institute 'Carlo Besta' Milan., Bertoli S; International Center for the Assessment of Nutritional Status (ICANS), Department of Food Environmental and Nutritional Sciences (DeFENS), University of Milan., Caramaschi E; Department of Medical and Surgical Sciences of Mother, Children and Adults, Pediatric Unit, University of Modena and Reggio Emilia, Modena., Cordelli DM; Child Neurology and Psychiatry Unit, Department of Medical and Surgical Sciences (DIMEC), S. Orsola Hospital, University of Bologna., De Amicis R; International Center for the Assessment of Nutritional Status (ICANS), Department of Food Environmental and Nutritional Sciences (DeFENS), University of Milan., Fazzi E; ASST Spedali Civili, Brescia, and University of Brescia, Brescia, Italy., Forchielli ML; Pediatric Gastroenterology and Nutrition Clinic, AO Sant'Orsola - Malpighi, University of Bologna., Guerra A; Pediatric Unit, Department of Medical and Surgical Sciences for Mothers, Children and Adults, University of Modena and Reggio Emilia, Modena., Lividini A; Child Neurology and Psychiatry Unit, S. Orsola Hospital, University of Bologna., Marchiò M; Pediatric Unit, Department of Medical and Surgical Sciences for Mothers, Children and Adults, University of Modena and Reggio Emilia, Modena., Rossi A; Child and Adolescent Neurology and Psychiatry Unit, Children Hospital, ASST Spedali Civili - Brescia., Nieuwendijk DSD; Department of Dietetics, Roessingh Rehabilitation Centre, Enschede, The Netherlands., Fliciński J; Chair and Department of Developmental Neurology, Poznan University of Medical Sciences., Gurda B; Chair and Department of Developmental Neurology, Poznan University of Medical Sciences., Lemska A; Department of Developmental Neurology, Medical University of Gdańsk., Matheisel A; Department of Developmental Neurology, Medical University of Gdańsk., Mazurkiewicz-Beldzinska M; Department of Developmental Neurology, Medical University of Gdańsk., Niwinska Z; Chair and Department of Developmental Neurology, Poznan University of Medical Sciences., Pawłowicz M; Department of Developmental Neurology, Medical University of Gdańsk.; (current affiliations: Department of Pediatric Neurology.; Provincial Specialist Children's Hospital in Olsztyn, Olsztyn.; Department of Pathophysiology, Faculty of Medicine, Warmia and Mazury University in Olsztyn, Olsztyn, Poland)., Sawicka A; Department of Developmental Neurology, Medical University of Gdańsk., Steinborn B; Chair and Department of Developmental Neurology, Poznan University of Medical Sciences., Szmuda M; Department of Developmental Neurology, Medical University of Gdańsk., Winczewska-Wiktor A; Chair and Department of Developmental Neurology, Poznan University of Medical Sciences., Zawadzka M; Department of Developmental Neurology, Medical University of Gdańsk., Pobiecka A; Department of Pediatrics, University Hospital Trnava, Slovakia., Arhan E; Gazi University School of Medicine/Neurology, Gazi., Aydin K; Gazi University, School of Medicine, Pediatric Neurology, Ankara., Bayram E; Dokuz Eylul University School of Medicine, Pediatric Neurology, Izmir., Carman KB; Division of Pediatric Intensive Care Unit, Eskişehir Osmangazi University Medical Faculty., Edem P; Dokuz Eylul University School of Medicine, Pediatric Neurology, Izmir., Ertem D; Marmara University School of Medicine/Gastroenterology, Istanbul., Goktas ÖA; Ankara University School of Medicine/Neurology Ankara., Gungor S; Inonu University School of Medicine/Neurology, Malatya., Haliloglu G; Hacettepe University Faculty of Medicine, Department of Pediatric Neurology, Ankara., Kansu A; Ankara University School of Medicine/Gastroenterology, Ankara., Kömür M; Mersin University School of Medicine, Mersin., Mutlu A; Hacettepe University, Faculty of Physical Therapy and Rehabilitation/Developmental and Early Physiotherapy Unit, Ankara., Kırsaçlıoğlu CT; Ankara University School of Medicine/Gastroenterology, Ankara., Okuyaz Ç; Division of Pediatric Neurology, Faculty of Medicine, Mersin University, Mersin., Özgör B; Inonu University School of Medicine, Malatya., Ozturk Y; Dokuzeylul University School of Medicine/Gastroenterology, Izmir., Sager SG; Marmara University School of Medicine/Gastroenterology, Istanbul., Sarıgeçili E; Mersin University School of Medicine, Mersin., Selimoglu MA; Inonu University School of Medicine/Pediatric Gastroenterology, Malatya., Serin HMÖ; Ege University School of Medicine/Neurology, Izmir., Teber ST; University of Ankara Faculty of Medicine, Department of Child Neurology, Ankara., Tekgül H; Ege University School of Medicine, Pediatric Neurology, Izmir., Thomas G; Marmara University School of Medicine/Gastroenterology, Istanbul., Turkdogan D; Marmara University School of Medicine/Neurology Istanbul., Volkan B; Marmara University School of Medicine/Gastroenterology, Istanbul., Yarar C; Department of Pediatric Neurology, Eskişehir Osmangazi University School of Medicine, Eskişehir., Yilmaz SK; Ege University School of Medicine/Neurology, Izmir.

Publikováno v: Disability and rehabilitation [Disabil Rehabil] 2022 Nov; Vol. 44 (22), pp. 6668-6675. Date of Electronic Publication: 2021 Sep 02.

Autonomic seizure with prominent apnea in patient with SCN8A-related epileptic encephalopathy

Autor: Agnieszka Matheisel, Marta Zawadzka, Maria Mazurkiewicz-Bełdzińska, Seweryna Konieczna

Publikováno v: Epilepsy Research. 167:106440

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::15407503265ad0ca82178bbff77b79a8
https://doi.org/10.1016/j.eplepsyres.2020.106440